CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 409

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1225-C17737	C17737	Chorea anatomic site informant type	Anatomic site of the participant's/subject's body affected by chorea as noted by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15090	C15090	Cortical infarcts single or multiple vascular territories name	Name of the vascular territories where cortical microinfarcts occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3107-C14706	C14706	Berg Balance Scale (BBS) - scale total score	The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1236-C14962	C14962	Imaging acquisition entire brain coverage indicator	Indicator of whether the imaging acquisition covered the entire brain	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1225-C18990	C18990	Huntingtons Disease motor symptom first appeared informant other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared informant type' specifying other text. The type of initial motor symptoms of Huntington disease (HD) described by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15098	C15098	Cortical laminar necrosis single or multiple event category	Category of the cortical laminar necrosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15058	C15058	Brain atrophy substantia nigra Lewy body containing neurons and Lewy neurites severity result	Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the substantia nigra.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C17750	C17750	Imaging functional magnetic resonance imaging task type	Tasks performed during a functional magnetic resonance imaging (fMRI) scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1229-C14937	C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1237-C15106	C15106	Clinicopathology diagnosis final type	The participant/subject's final clinicopathological diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15066	C15066	Brain atrophy pons neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pons	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C19064	C19064	Imaging functional magnetic resonance imaging task other text	The free-text field related to 'Imaging functional magnetic resonance imaging task type' specifying other text. Tasks performed during a functional magnetic resonance imaging (fMRI) scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1230-C14939	C14939	Huntingtons disease risk grade	Participant's/subject's risk for HD based on number of CAG repeats	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1237-C17752	C17752	Photographs macroscopic text	Description of available macroscopic photographs	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15074	C15074	Brain atrophy cerebellum cortical neuronal loss in associative layer severity result	Quantitative result of the severity of cortical neuronal loss in the associative layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1225-C14957	C14957	Huntingtons Disease developing motor symptom type	Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17760	C17760	Striatum atrophy thalamus atrophy severity result	Quantitative result of the severity of atrophy located in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15082	C15082	Brain atrophy cerebellum dentate nucleus neuronal loss indicator	Indicator of neuronal loss in the dentate nucleus of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C08245	C08245	Imaging slice count	Count representing the total number of single image planes captured during imaging acquisition	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1212-C08100	C08100	Pneumonia episode age value	Participant's/subject's age at the time of the pneumonia episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1209-C14943	C14943	Family history relative deceased indicator	Indicator of whether family member is deceased	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C14984	C14984	Brain atrophy coronal sections amygdala severity result	Quantitative result of the severity of amygdala atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 276 - 300 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.