CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 226 - 250 of 427

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1211-C08110	C08110	Preschool end date	Date participant/subject ended preschool	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08157	C08157	Photograph macroscopic indicator	Indicator of whether macroscopic photographs were taken	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08100	C08100	Pneumonia episode age value	Participant's/subject's age at the time of the pneumonia episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08169	C08169	Antibody stain method name	Name of staining method used for antibodies	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C08232	C08232	Drug or substance illicit use ever indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C08181	C08181	Other pathology ischemic vascular disease indicator	Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3143-C09596	C09596	Brief Psychiatric Rating Scale (BPRS) - mannerisms posturing score	The score of the participant's/subject's mannerisms and posturing, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	0	Huntington's Disease	Huntington's Disease
F3143-C09604	C09604	Brief Psychiatric Rating Scale (BPRS) - unusual thought content score	The score of the participant's/subject's unusual thought content, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	0	Huntington's Disease	Huntington's Disease
F1211-C08088	C08088	Age value unit of measure	Unit of measure used to initially record the age value	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08149	C08149	Diagnosis final clinical death type	Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08101	C08101	Pneumonia episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the pneumonia episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08170	C08170	Neuritic plaque density category	Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C08233	C08233	Drug or substance first illicit use date and time	Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C08185	C08185	Amyloid angiopathy severity scale	Whether or not amyloid deposits are present in the walls of the blood vessels of the central nervous system and if so, their severity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08080	C08080	Twin sibling indicator	Indicator of whether the participant/subject has a twin brother or sister	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08147	C08147	Data source	Source of the data provided on the case report form	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08158	C08158	Brain weight measurement	Weight of the participant's/subject's brain in grams	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F2370-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1236-C15572	C15572	Imaging diffusion direction count	Count of diffusion directions in the associated diffusion imaging study	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15051	C15051	Brain atrophy cerebral white matter myelin loss indicator	Indicator of myelin loss in the cerebral white matter	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15099	C15099	Cortical laminar necrosis single or multiple vascular territories name	Name of the vascular territories where cortical laminar necrosis occurs	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15059	C15059	Brain atrophy nucleus coeruleus neuronal loss indicator	Indicator of neuronal loss in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.