CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15910 Assessment date and time

The date of participant's injury

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15572 Imaging diffusion direction count

Count of diffusion directions in the associated diffusion imaging study

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C18027 Comment text

Provide any additional information that pertains to the question

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C14938 Cytosine adenine guanine repeat test indicator

Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C18992 Macroscopical examination fresh brain other text

The free-text field related to 'Macroscopical examination fresh brain source' specifying other text. The part(s) of the fresh brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14940 Cytosine adenine guanine repeat known indicator

Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14958 Diagnosis physician indicator

Has diagnosis been made by a physician?

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14947 Family history relative type biological sample in repository count

The number of family members that have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C14963 Imaging field maps acquisition indicator

Indicator of whether field maps were acquired during the acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C18991 Huntingtons Disease developing motor symptom other text

The free-text field related to 'Huntingtons Disease developing motor symptom type' specifying other text. Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15088 Ischemic or hemorrhagic changes description text

The text description of the ischemic or hemorrhagic changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15044 Brain atrophy thalamus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14976 Brain atrophy surface severity result

Quantitative result of the severity of cerebral atrophy on external brain surface

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15096 Hemorrhages single or multiple vascular territories name

Name of the vascular territories where hemorrhages occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15056 Brain atrophy substantia nigra pars reticulata neuronal loss severity result

Quantitative result of the severity of neuronal loss in the pars reticulata

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14984 Brain atrophy coronal sections amygdala severity result

Quantitative result of the severity of amygdala atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15104 Amyloid angiopathy stain type

Type of stain used to identify cerebral amyloid angiopathy

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15064 Brain atrophy nucleus coeruleus globosum neuronal tangles (GNT) severity result

Quantitative result of the severity of GNT in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14992 Brain atrophy striatum status cribrosus or lacunaris severity result

Quantitative result of the severity of atrophy located in the status cribrosus or lacunaris, or both

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15072 Brain atrophy medulla oblongata inferior olivary nucleus severity result

Quantitative result of the severity of neuronal loss in the inferior olivary nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15028 Brain atrophy cerebral cortex neuronal loss severity result

Quantitative result of the severity of neuronal loss located in the cerebral cortex

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15080 Brain atrophy cerebellum myelin loss in cerebellar white matter indicator

Indicator of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15036 Brain atrophy neuronal loss and fibrillary astrocytosis pontes griseum or gray matter caudo-lenticular bridges anatomic site

Anatomic site in the pontes griseum or gray matter caudo-lenticular bridges where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18993 Macroscopical examination fixed brain other text

The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 226 - 250 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.