CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 394
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08148 Neuropath specimen identifier number

Unique identification number given to the neuropathology specimen

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08081 Twin sibling type

Type of twin the participant/subject has

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08157 Photograph macroscopic indicator

Indicator of whether macroscopic photographs were taken

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08105 Day care start date

Date participant/subject first started day care outside of home

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08170 Neuritic plaque density category

Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08185 Amyloid angiopathy severity scale

Whether or not amyloid deposits are present in the walls of the blood vessels of the central nervous system and if so, their severity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08115 Meningitis or encephalitis diagnosed type

Type of meningitis/encephalitis that participant/subject was diagnosed with

Supplemental Infection History Huntington's Disease Huntington's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C08149 Diagnosis final clinical death type

Physician's final clinical diagnosis for the participant/subject

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08082 Sibling rank type

Sibling rank order to identify who is the eldest sibling and the second eldest sibling

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08160 Brain tissue weigh type

Type of brain tissue weighed

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08106 Day care end date

Date participant/subject ended day care outside of home

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08171 Diffuse plaques density category

Density of diffuse plaques (plaques with non-compact amyloid and no apparent dystrophic neurites)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08096 Influenza vaccine history indicator

Indicator of whether the participant/subject has ever received an influenza vaccination

Supplemental Infection History Huntington's Disease Huntington's Disease
C08116 Meningitis or encephalitis episode age value

Participant's/subject's age at the time of the meningitis or encephalitis episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C08151 Diagnosis final clinical death date

Date of participant's/subject's final clinical diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08083 Sibling name

Name of the sibling

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08084 Sibling gender type

Reported gender of the sibling. Gender is the socially constructed identity of sex

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08162 National Institute on Aging (NIA) or Reagan Institute neuropathological criteria scale

National Institute on Aging (NIA)/Reagan Institute neuropathological criteria used to determine the likelihood of dementia being due to Alzheimer's disease.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08173 Ischemic hemorrhagic or vascular pathology indicator

Indicator of the presence of ischemic, hemorrhagic, or vascular pathology

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08097 Influenza vaccine first receive age value

Age participant/subject received his/her first influenza vaccination

Supplemental Infection History Huntington's Disease Huntington's Disease
C08117 Meningitis or encephalitis episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C08076 Breastfed indicator

Indicator of whether the participant/subject was breastfed by his/her mother

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C08152 Brain tissue frozen indicator

Indicator of whether banked frozen brain tissue is accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08085 Sibling alive indicator

Indicator of whether the participant's/subject's sibling is still living

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
Displaying 176 - 200 of 394

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.