CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 151 - 175 of 427

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1807-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1207-C11139	C11139	Country of origin maternal ISO code	The ISO 3166-1 alpha-2 code for the participant's mother's country of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1208-C00012	C00012	Education level USA type	Highest grade or level of school participant/subject has completed or the highest degree received	Supplemental	Social Status	False	Huntington's Disease	Huntington's Disease
F1207-C00007	C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Huntington's Disease	Huntington's Disease
F1807-C00030	C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C08236	C08236	Imaging scanner software name	Name of the scanner software that runs the imaging camera	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-c10568	C10568	Imaging radio frequency coil channel count	Number of the coil channels in the radio frequency (RF) coil used for the imaging scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C04802	C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1207-C00031	C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Supplemental-Highly Recommended	Demographics	False	Huntington's Disease	Huntington's Disease
F1807-C00015	C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C08153	C08153	Brain tissue formalin-fixed indicator	Indicator of whether formalin-fixed brain tissue is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08096	C08096	Influenza vaccine history indicator	Indicator of whether the participant/subject has ever received an influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08163	C08163	CERAD neuropathological criteria scale	CERAD neuropathological criteria used to determine the probability of the participant/subject having Alzheimer's disease	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08116	C08116	Meningitis or encephalitis episode age value	Participant's/subject's age at the time of the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08175	C08175	Cortical microinfarct indicator	Indicator of the presence of one or more infarcts that are detected microscopically (including "granular atrophy") and may not be grossly visible, or may appear to the naked eye as cortical granularity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08083	C08083	Sibling name	Name of the sibling	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08106	C08106	Day care end date	Date participant/subject ended day care outside of home	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F3143-C09600	C09600	Brief Psychiatric Rating Scale (BPRS) - suspiciousness score	The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	False	Huntington's Disease	Huntington's Disease
F3143-C09592	C09592	Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score	The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.	Exploratory	Brief Psychiatric Rating Scale (BPRS)	False	Huntington's Disease	Huntington's Disease
F1237-C08154	C08154	Brain tissue paraffin-embedded indicator	Indicator of whether paraffin-embedded blocks of brain tissue are accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08097	C08097	Influenza vaccine first receive age value	Age participant/subject received his/her first influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08166	C08166	Brain atrophy Braak and Braak neurofibrillary stage	Stages I and II correspond to NFT limited to the transentorhinal/entorhinal region; Stages III and IV to limbic stages; and Stages V and VI to neocortical stages. Stage VI implies involvement of primary cortices	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 151 - 175 of 427

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.