CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17753 Macroscopic examination brain text

Note regarding macroscopic examination of fresh or fixed brain parts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C19059 Informant participant relationship other text

The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17761 Striatum atrophy subthalamic nucleus atrophy status

Status of atrophy in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17746 Molecular study lab name

The name of the laboratory that completed the molecular study to determine number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C19062 Cytosine Adenine Guanine repeat results provider other text

The free-text field related to 'Cytosine Adenine Guanine repeat results provider type' specifying other text. The type of provider who repeated the Cytosine Adenine Guanine (CAG) results

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C17740 Chorea anatomic site physician developing type

Anatomic site of the participant's/subject's body affected by chorea as noted by a physician as a developing issues from disease

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17754 Microscopic examination brain text

Note regarding microscopic examination of blockage source

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C19060 Physician specialty other text

The free-text field related to 'Physician specialty type' specifying other text. The specialty of the physician who made the diagnosis

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17762 Striatum atrophy subthalamic nucleus atrophy severity result

Quantitative result of the severity of atrophy located in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17733 Person completing form name

Name of person completing the form

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C19061 Cytosine Adenine Guanine repeats information source other text

The free-text field related to 'Cytosine adenine guanine repeats information source type' specifying other text. The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C17733 Person completing form name

Name of person completing the form

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17742 Physician specialty type

The specialty of the physician who made the diagnosis

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17755 Striatum atrophy claustrum atrophy status

Status of atrophy in the claustrum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17763 Striatum atrophy red nucleus atrophy status

Status of atrophy in the red nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17691 Non-prescribed controlled psychoactive drug substance other text

The text specifying the drugs within the 'Others: (non-perscribed, non-over-the-counter)' categoryas an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C17764 Striatum atrophy red nucleus atrophy severity result

Quantitative result of the severity of atrophy located in the red nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17734 Person completing the form title text

Title/Credentials/Training of the person completing the form

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17743 Physician confidence level basis type

What the physician confidence level is primarily based on

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17756 Striatum atrophy claustrum atrophy severity result

Quantitative result of the severity of atrophy located in the claustrum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17765 Striatum atrophy hydrocephalus lateral ventricle severity result

Quantitative result of the severity of hydrocephalus located in the lateral ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17735 Motor symptom first appeared self report status

The status of the first motor symptom(s) as noted by the participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17757 Striatum atrophy hypothalamus atrophy status

Status of atrophy in the hypothalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17748 Imaging neurologic other data collected indicator

The indicator whether other types of neuroimaging data were collected during this scan visit

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C17744 Molecular study laboratory name

Name of laboratory that performed the molecular study

Supplemental DNA Elements - Information from the Laboratory Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.