CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 326 - 350 of 409

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15050	C15050	Brain atrophy red nucleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14982	C14982	Brain atrophy coronal sections hippocampal formation severity result	Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15089	C15089	Cortical infarcts single or multiple event category	Category of the cortical microinfarcts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14990	C14990	Brain atrophy striatum globus pallidus internal segment severity result	Quantitative result of the severity of atrophy located in the globus pallidus, internal segment.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15097	C15097	Single or multiple hemorrhages description text	The text description of the hemorrhages	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14944	C14944	Family history relative age value	Value for participant's/subject's family member's current age	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1225-C14960	C14960	Diagnosis based abnormality type	What kind of abnormalities was the diagnosis based on?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18993	C18993	Macroscopical examination fixed brain other text	The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14965	C14965	Imaging artifacts indicator	Indicator of any obvious artifacts in the image	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1225-C14952	C14952	Huntingtons Disease motor symptom first appeared self report type	The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15058	C15058	Brain atrophy substantia nigra Lewy body containing neurons and Lewy neurites severity result	Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the substantia nigra.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15027	C15027	Brain atrophy cortex neuronal loss indicator	Indicator of neuronal loss in the cerebral cortex	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15106	C15106	Clinicopathology diagnosis final type	The participant/subject's final clinicopathological diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15066	C15066	Brain atrophy pons neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pons	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15035	C15035	Brain atrophy neuronal loss fibrillary astrocytosis caudate nucleus anatomic site	Anatomic site in the caudate nucleus (CN) where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15074	C15074	Brain atrophy cerebellum cortical neuronal loss in associative layer severity result	Quantitative result of the severity of cortical neuronal loss in the associative layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15043	C15043	Brain atrophy thalamus neuronal loss indicator	Indicator of neuronal loss in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14975	C14975	Brain lobe examination anatomic site	Anatomic site examined in the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15082	C15082	Brain atrophy cerebellum dentate nucleus neuronal loss indicator	Indicator of neuronal loss in the dentate nucleus of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14983	C14983	Brain atrophy coronal sections amygdala status	Status of amygdala atrophy of the coronal sections upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15090	C15090	Cortical infarcts single or multiple vascular territories name	Name of the vascular territories where cortical microinfarcts occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14991	C14991	Brain atrophy striatum status cribrosus lacunaris status	Status of atrophy in the status cribrosus or lacunaris	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15098	C15098	Cortical laminar necrosis single or multiple event category	Category of the cortical laminar necrosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14945	C14945	Family history relative death age value	Value for participant's/subject's family member's age at death, if deceased	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C18994	C18994	Microscopical examination blocks other text	The free-text field related to 'Microscopical examination blocks source' specifying other text. The source of blockage based on microscopical examination of brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 326 - 350 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.