CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 301 - 325 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14984 Brain atrophy coronal sections amygdala severity result

Quantitative result of the severity of amygdala atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18995 Brain atrophy thalamus neuronal loss nuclei other text

The free-text field related to 'Brain atrophy thalamus neuronal loss nuclei name' specifying other text. Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14958 Diagnosis physician indicator

Has diagnosis been made by a physician?

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14992 Brain atrophy striatum status cribrosus or lacunaris severity result

Quantitative result of the severity of atrophy located in the status cribrosus or lacunaris, or both

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15028 Brain atrophy cerebral cortex neuronal loss severity result

Quantitative result of the severity of neuronal loss located in the cerebral cortex

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14949 Family history relative type unknown biological sample in repository count

The number of family members who are unsure if they have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C14963 Imaging field maps acquisition indicator

Indicator of whether field maps were acquired during the acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C18991 Huntingtons Disease developing motor symptom other text

The free-text field related to 'Huntingtons Disease developing motor symptom type' specifying other text. Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15036 Brain atrophy neuronal loss and fibrillary astrocytosis pontes griseum or gray matter caudo-lenticular bridges anatomic site

Anatomic site in the pontes griseum or gray matter caudo-lenticular bridges where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15083 Brain atrophy cerebellum dentate nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the dentate nucleus of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15091 Cortical infarcts single or multiple description text

The text description of the cortical microinfarcts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15051 Brain atrophy cerebral white matter myelin loss indicator

Indicator of myelin loss in the cerebral white matter

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15099 Cortical laminar necrosis single or multiple vascular territories name

Name of the vascular territories where cortical laminar necrosis occurs

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15059 Brain atrophy nucleus coeruleus neuronal loss indicator

Indicator of neuronal loss in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15107 Huntingtons Disease diagnosis grade

The grade of severity of HD or amyloid angiopathy severity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15067 Brain atrophy pontine nuclei globosum neuronal tangles status

Status of globosum neuronal tangles (GNT) in the pontine nuclei

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15075 Brain atrophy cerebellum cortical neuronal loss in receptive layer indicator

Indicator of cortical neuronal loss in the receptive layer (granular) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15045 Brain atrophy thalamus neuronal loss nuclei name

Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14941 Diagnosis certainty percentage range type

Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14977 Brain atrophy coronal sections cerebral cortex status

Status of cerebral cortex atrophy of the coronal sections upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14985 Brain atrophy striatum status

Status of striatum (caudate nucleus [CN], putamen, globus pallidus, and nucleus accumbens) atrophy

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18996 Silver staining methods other text

The free-text field related to 'Silver staining methods type' specifying other text. Silver staining methods used for identifying Alzheimer disease type changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14959 Diagnosis physician year date

The year the physician diagnosed the participant/ subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15021 Brain atrophy substantia nigra appearance grade

Grade of pigmentation of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15029 Brain atrophy cortical neuronal nuclear inclusions indicator

Indicator of the presence of cortical neuronal nuclear inclusions (dystrophic neurites)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 301 - 325 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.