CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 394

« first
‹ previous
…
4
5
6
7
8
9
10
11
12
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C08114	Meningitis or encephalitis history indicator	Indicator of whether the participant/subject has ever had meningitis or encephalitis (brain infection) diagnosed by a physician	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
C08157	Photograph macroscopic indicator	Indicator of whether macroscopic photographs were taken	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08234	Drug or substance last illicit use date and time	Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
C08169	Antibody stain method name	Name of staining method used for antibodies	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08081	Twin sibling type	Type of twin the participant/subject has	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
C08181	Other pathology ischemic vascular disease indicator	Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08104	Day care attendance indicator	Indicator of whether the participant/subject attended day care outside of the home as a child	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
C08149	Diagnosis final clinical death type	Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08115	Meningitis or encephalitis diagnosed type	Type of meningitis/encephalitis that participant/subject was diagnosed with	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
C08235	Drug or substance illicit use frequency	The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
C08170	Neuritic plaque density category	Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08082	Sibling rank type	Sibling rank order to identify who is the eldest sibling and the second eldest sibling	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
C08185	Amyloid angiopathy severity scale	Whether or not amyloid deposits are present in the walls of the blood vessels of the central nervous system and if so, their severity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08105	Day care start date	Date participant/subject first started day care outside of home	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
C08096	Influenza vaccine history indicator	Indicator of whether the participant/subject has ever received an influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
C08151	Diagnosis final clinical death date	Date of participant's/subject's final clinical diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08116	Meningitis or encephalitis episode age value	Participant's/subject's age at the time of the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
C08160	Brain tissue weigh type	Type of brain tissue weighed	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08171	Diffuse plaques density category	Density of diffuse plaques (plaques with non-compact amyloid and no apparent dystrophic neurites)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08083	Sibling name	Name of the sibling	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
C08106	Day care end date	Date participant/subject ended day care outside of home	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
C08097	Influenza vaccine first receive age value	Age participant/subject received his/her first influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
C08152	Brain tissue frozen indicator	Indicator of whether banked frozen brain tissue is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08117	Meningitis or encephalitis episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
C08162	National Institute on Aging (NIA) or Reagan Institute neuropathological criteria scale	National Institute on Aging (NIA)/Reagan Institute neuropathological criteria used to determine the likelihood of dementia being due to Alzheimer's disease.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 176 - 200 of 394

« first
‹ previous
…
4
5
6
7
8
9
10
11
12
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.