CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 427
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14946 Family history medical condition relative count

Number of family members with medical condition

 Supplemental Family History False Huntington's Disease Huntington's Disease
C15038 Brain atrophy neuronal loss nucleus accumbens severity result

Quantitative result of the severity of neuronal loss in the nucleus accumbens

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14970 Brain harvesting date and time

Date and time, if known the brain was harvested

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15046 Brain atrophy thalamus neuronal loss nuclei severity result

Quantitative result of the severity of neuronal loss in thalamic nuclei

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14978 Brain atrophy coronal sections cerebral cortex severity result

Quantitative result of the severity of cerebral cortex atrophy in the coronal sections of the brain

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C18027 Comment text

Provide any additional information that pertains to the question

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C15572 Imaging diffusion direction count

Count of diffusion directions in the associated diffusion imaging study

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15910 Assessment date and time

The date of participant's injury

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08147 Data source

Source of the data provided on the case report form

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08158 Brain weight measurement

Weight of the participant's/subject's brain in grams

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09591 Brief Psychiatric Rating Scale (BPRS) - anxiety score

The score of the participant's/subject's anxiety, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Exploratory Brief Psychiatric Rating Scale (BPRS) 0 Huntington's Disease Huntington's Disease
C09599 Brief Psychiatric Rating Scale (BPRS) - hostility score

The score of the participant's/subject's hostility, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Exploratory Brief Psychiatric Rating Scale (BPRS) 0 Huntington's Disease Huntington's Disease
C09607 Brief Psychiatric Rating Scale (BPRS) - disorientation score

The score of the participant's/subject's disorientation, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Exploratory Brief Psychiatric Rating Scale (BPRS) 0 Huntington's Disease Huntington's Disease
C08083 Sibling name

Name of the sibling

 Supplemental History of Early Exposure to Huntington's Disease False Huntington's Disease Huntington's Disease
C08106 Day care end date

Date participant/subject ended day care outside of home

 Supplemental History of Early Exposure to Huntington's Disease False Huntington's Disease Huntington's Disease
C08153 Brain tissue formalin-fixed indicator

Indicator of whether formalin-fixed brain tissue is accessible

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08096 Influenza vaccine history indicator

Indicator of whether the participant/subject has ever received an influenza vaccination

 Supplemental Infection History False Huntington's Disease Huntington's Disease
C08163 CERAD neuropathological criteria scale

CERAD neuropathological criteria used to determine the probability of the participant/subject having Alzheimer's disease

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08116 Meningitis or encephalitis episode age value

Participant's/subject's age at the time of the meningitis or encephalitis episode

 Supplemental Infection History False Huntington's Disease Huntington's Disease
C08175 Cortical microinfarct indicator

Indicator of the presence of one or more infarcts that are detected microscopically (including "granular atrophy") and may not be grossly visible, or may appear to the naked eye as cortical granularity

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09592 Brief Psychiatric Rating Scale (BPRS) - emotional withdrawal score

The score of the participant's/subject's emotional withdrawal, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Exploratory Brief Psychiatric Rating Scale (BPRS) 0 Huntington's Disease Huntington's Disease
C09600 Brief Psychiatric Rating Scale (BPRS) - suspiciousness score

The score of the participant's/subject's suspiciousness, as part of the Brief Psychiatric Rating Scale (BPRS) form.

 Exploratory Brief Psychiatric Rating Scale (BPRS) 0 Huntington's Disease Huntington's Disease
C08084 Sibling gender type

Reported gender of the sibling. Gender is the socially constructed identity of sex

 Supplemental History of Early Exposure to Huntington's Disease False Huntington's Disease Huntington's Disease
Displaying 176 - 200 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.