CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15082 Brain atrophy cerebellum dentate nucleus neuronal loss indicator

Indicator of neuronal loss in the dentate nucleus of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14955 Motor symptom first appeared informant date

Date the first motor symptom(s) were noted by the person completing the form

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14990 Brain atrophy striatum globus pallidus internal segment severity result

Quantitative result of the severity of atrophy located in the globus pallidus, internal segment.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15090 Cortical infarcts single or multiple vascular territories name

Name of the vascular territories where cortical microinfarcts occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14945 Family history relative death age value

Value for participant's/subject's family member's age at death, if deceased

Supplemental Family History Huntington's Disease Huntington's Disease
C18995 Brain atrophy thalamus neuronal loss nuclei other text

The free-text field related to 'Brain atrophy thalamus neuronal loss nuclei name' specifying other text. Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15027 Brain atrophy cortex neuronal loss indicator

Indicator of neuronal loss in the cerebral cortex

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15099 Cortical laminar necrosis single or multiple vascular territories name

Name of the vascular territories where cortical laminar necrosis occurs

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14961 Imaging excitation number

Number of times each line of k-space data is acquired during the scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15059 Brain atrophy nucleus coeruleus neuronal loss indicator

Indicator of neuronal loss in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18989 Huntingtons Disease motor symptom first appeared self report other text

The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15035 Brain atrophy neuronal loss fibrillary astrocytosis caudate nucleus anatomic site

Anatomic site in the caudate nucleus (CN) where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15107 Huntingtons Disease diagnosis grade

The grade of severity of HD or amyloid angiopathy severity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15067 Brain atrophy pontine nuclei globosum neuronal tangles status

Status of globosum neuronal tangles (GNT) in the pontine nuclei

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14936 Cytosine adenine guanine repeats larger allele number

The number of cytosine adenine guanine (CAG) repeats on the larger allele

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C15043 Brain atrophy thalamus neuronal loss indicator

Indicator of neuronal loss in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14975 Brain lobe examination anatomic site

Anatomic site examined in the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15075 Brain atrophy cerebellum cortical neuronal loss in receptive layer indicator

Indicator of cortical neuronal loss in the receptive layer (granular) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14938 Cytosine adenine guanine repeat test indicator

Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14983 Brain atrophy coronal sections amygdala status

Status of amygdala atrophy of the coronal sections upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15083 Brain atrophy cerebellum dentate nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the dentate nucleus of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14956 Huntingtons Disease motor symptom first appeared informant type

The type of initial motor symptoms of Huntington disease (HD) described by the informant

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14991 Brain atrophy striatum status cribrosus lacunaris status

Status of atrophy in the status cribrosus or lacunaris

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15091 Cortical infarcts single or multiple description text

The text description of the cortical microinfarcts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14946 Family history medical condition relative count

Number of family members with medical condition

Supplemental Family History Huntington's Disease Huntington's Disease
Displaying 76 - 100 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.