CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15103	C15103	Amyloid angiopathy indicator	Indicator of presence of cerebral amyloid angiopathy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14983	C14983	Brain atrophy coronal sections amygdala status	Status of amygdala atrophy of the coronal sections upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15063	C15063	Brain atrophy nucleus coeruleus globosum neuronal tangles status	Status of globosum neuronal tangles (GNT) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14962	C14962	Imaging acquisition entire brain coverage indicator	Indicator of whether the imaging acquisition covered the entire brain	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15111	C15111	Arteriosclerosis severity score	Severity score for arteriosclerosis (small parenchymal arteriolar disease)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C18990	C18990	Huntingtons Disease motor symptom first appeared informant other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared informant type' specifying other text. The type of initial motor symptoms of Huntington disease (HD) described by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C14991	C14991	Brain atrophy striatum status cribrosus lacunaris status	Status of atrophy in the status cribrosus or lacunaris	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15071	C15071	Brain atrophy medulla oblongata inferior olivary nucleus indicator	Indicator of neuronal loss of the inferior olivary nucleus in the medulla oblongata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14943	C14943	Family history relative deceased indicator	Indicator of whether family member is deceased	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C18992	C18992	Macroscopical examination fresh brain other text	The free-text field related to 'Macroscopical examination fresh brain source' specifying other text. The part(s) of the fresh brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14944	C14944	Family history relative age value	Value for participant's/subject's family member's current age	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1229-C14938	C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1237-C15028	C15028	Brain atrophy cerebral cortex neuronal loss severity result	Quantitative result of the severity of neuronal loss located in the cerebral cortex	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15080	C15080	Brain atrophy cerebellum myelin loss in cerebellar white matter indicator	Indicator of myelin loss in the cerebellar white matter of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1230-C14940	C14940	Cytosine adenine guanine repeat known indicator	Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1237-C15036	C15036	Brain atrophy neuronal loss and fibrillary astrocytosis pontes griseum or gray matter caudo-lenticular bridges anatomic site	Anatomic site in the pontes griseum or gray matter caudo-lenticular bridges where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15088	C15088	Ischemic or hemorrhagic changes description text	The text description of the ischemic or hemorrhagic changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15044	C15044	Brain atrophy thalamus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15096	C15096	Hemorrhages single or multiple vascular territories name	Name of the vascular territories where hemorrhages occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14958	C14958	Diagnosis physician indicator	Has diagnosis been made by a physician?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C14976	C14976	Brain atrophy surface severity result	Quantitative result of the severity of cerebral atrophy on external brain surface	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14952	C14952	Huntingtons Disease motor symptom first appeared self report type	The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15056	C15056	Brain atrophy substantia nigra pars reticulata neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pars reticulata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15104	C15104	Amyloid angiopathy stain type	Type of stain used to identify cerebral amyloid angiopathy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14984	C14984	Brain atrophy coronal sections amygdala severity result	Quantitative result of the severity of amygdala atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.