CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 51 - 75 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15073 Brain atrophy cerebellum cortical neuronal loss in associative layer indicator

Indicator of cortical neuronal loss in the associative layer (molecular) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18990 Huntingtons Disease motor symptom first appeared informant other text

The free-text field related to 'Huntingtons Disease motor symptom first appeared informant type' specifying other text. The type of initial motor symptoms of Huntington disease (HD) described by the informant

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15081 Brain atrophy cerebellum myelin loss in cerebellar white matter severity result

Quantitative result of the severity of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14937 Cytosine adenine guanine repeats smaller allele number

The number of cytosine adenine guanine (CAG) repeats on the smaller allele

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C15089 Cortical infarcts single or multiple event category

Category of the cortical microinfarcts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14939 Huntingtons disease risk grade

Participant's/subject's risk for HD based on number of CAG repeats

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14951 Motor symptom first appeared self report date and time

Date of the first motor symptom(s) as noted by the participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14983 Brain atrophy coronal sections amygdala status

Status of amygdala atrophy of the coronal sections upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18994 Microscopical examination blocks other text

The free-text field related to 'Microscopical examination blocks source' specifying other text. The source of blockage based on microscopical examination of brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14991 Brain atrophy striatum status cribrosus lacunaris status

Status of atrophy in the status cribrosus or lacunaris

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15027 Brain atrophy cortex neuronal loss indicator

Indicator of neuronal loss in the cerebral cortex

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14943 Family history relative deceased indicator

Indicator of whether family member is deceased

Supplemental Family History Huntington's Disease Huntington's Disease
C15035 Brain atrophy neuronal loss fibrillary astrocytosis caudate nucleus anatomic site

Anatomic site in the caudate nucleus (CN) where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15043 Brain atrophy thalamus neuronal loss indicator

Indicator of neuronal loss in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14975 Brain lobe examination anatomic site

Anatomic site examined in the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15098 Cortical laminar necrosis single or multiple event category

Category of the cortical laminar necrosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15058 Brain atrophy substantia nigra Lewy body containing neurons and Lewy neurites severity result

Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the substantia nigra.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14958 Diagnosis physician indicator

Has diagnosis been made by a physician?

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15106 Clinicopathology diagnosis final type

The participant/subject's final clinicopathological diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15066 Brain atrophy pons neuronal loss severity result

Quantitative result of the severity of neuronal loss in the pons

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14963 Imaging field maps acquisition indicator

Indicator of whether field maps were acquired during the acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15074 Brain atrophy cerebellum cortical neuronal loss in associative layer severity result

Quantitative result of the severity of cortical neuronal loss in the associative layer of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18991 Huntingtons Disease developing motor symptom other text

The free-text field related to 'Huntingtons Disease developing motor symptom type' specifying other text. Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15082 Brain atrophy cerebellum dentate nucleus neuronal loss indicator

Indicator of neuronal loss in the dentate nucleus of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14938 Cytosine adenine guanine repeat test indicator

Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
Displaying 51 - 75 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.