CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 351 - 375 of 394

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1269-C20377	C20377	Pittsburgh Sleep Quality Index (PSQI) - Past month bed time	The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20353	C20353	Pittsburgh Sleep Quality Index (PSQI) - trouble sleep 30 minutes past month scale	The scale to which the participant had trouble getting to sleep within 30 minutes during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1209-C22864	C22864	Diagnosis Huntingtons Disease parent suspect indicator	Indicate whether there is a possibility of an HD diagnosis for a parent	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F2370-C53896	C53896	Stroop Color and Word Test (SCW) - Word raw score	Score (raw) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53904	C53904	Stroop Color and Word Test (SCW) - Color word raw score	Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53897	C53897	Stroop Color and Word Test (SCW) - Word age educate predict score	Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53905	C53905	Stroop Color and Word Test (SCW) - Color word age educate predict score	Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53898	C53898	Stroop Color and Word Test (SCW) - Word residual score	Score (Residual) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53906	C53906	Stroop Color and Word Test (SCW) - Color word residual score	Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53899	C53899	Stroop Color and Word Test (SCW) - Word T score	Score (T) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53951	C53951	Stroop Color and Word Test (SCW) - Color word T score	Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53900	C53900	Stroop Color and Word Test (SCW) - Color raw score	Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53952	C53952	Stroop Color and Word Test (SCW) - Interference T score	Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53901	C53901	Stroop Color and Word Test (SCW) - Color age educate predict score	Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53902	C53902	Stroop Color and Word Test (SCW) - Color residual score	Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F2370-C53903	C53903	Stroop Color and Word Test (SCW) - Color T score	Score (T) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1807-C58676	C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1807-C58677	C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Huntington's Disease	Huntington's Disease
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Huntington's Disease	Huntington's Disease
F1213-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1213-C17683	C17683	Non-prescribed controlled psychoactive drug substance marijuana text	The text specifying the drugs within the Marijuana: hash, THC category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1213-C17684	C17684	Non-prescribed controlled psychoactive drug substance stimulant cocaine text	The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1213-C17685	C17685	Non-prescribed controlled psychoactive drug substance stimulant amphetamine text	The text specifying the drugs within the 'Stimulants: amphetamine, Benzedrine, Methedrine, Dexedrine, Preludin, Ritalin, uppers, speed,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1213-C17686	C17686	Non-prescribed controlled psychoactive drug substance sedative tranquilizer text	The text specifying the drugs within the 'Sedatives/minor tranquilizers/muscle relaxants-benzodiazepines and others: Valium/diazepam, Librium, Halcion, Xanax, Dalmane, Flexeril,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease

Displaying 351 - 375 of 394

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.