CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 409

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1225-C17742	C17742	Physician specialty type	The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17755	C17755	Striatum atrophy claustrum atrophy status	Status of atrophy in the claustrum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C17691	C17691	Non-prescribed controlled psychoactive drug substance other text	The text specifying the drugs within the 'Others: (non-perscribed, non-over-the-counter)' categoryas an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C17764	C17764	Striatum atrophy red nucleus atrophy severity result	Quantitative result of the severity of atrophy located in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17734	C17734	Person completing the form title text	Title/Credentials/Training of the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17743	C17743	Physician confidence level basis type	What the physician confidence level is primarily based on	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17756	C17756	Striatum atrophy claustrum atrophy severity result	Quantitative result of the severity of atrophy located in the claustrum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17765	C17765	Striatum atrophy hydrocephalus lateral ventricle severity result	Quantitative result of the severity of hydrocephalus located in the lateral ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17735	C17735	Motor symptom first appeared self report status	The status of the first motor symptom(s) as noted by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17757	C17757	Striatum atrophy hypothalamus atrophy status	Status of atrophy in the hypothalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C17748	C17748	Imaging neurologic other data collected indicator	The indicator whether other types of neuroimaging data were collected during this scan visit	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1228-C17744	C17744	Molecular study laboratory name	Name of laboratory that performed the molecular study	Supplemental	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
F1236-c18691	C18691	Imaging artifact other text	The free-text field related to 'Imaging artifact type' specifying other text. The artifacts present on the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18669	C18669	Diagnosis final clinical death other text	The free-text field related to 'Diagnosis final clinical death type' specifying other text. Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C18717	C18717	Imaging scanner model other text	The free-text field related to 'Imaging scanner model name' specifying other text. Name of model of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C18741	C18741	Other pathology ischemic vascular disease specify text	The free-text field related to 'Other pathology ischemic vascular disease indicator'. Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20379	C20379	Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text	The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20355	C20355	Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale	The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20363	C20363	Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale	The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20371	C20371	Pittsburgh Sleep Quality Index (PSQI) - Partner report leg twitch jerk past month scale	The scale to which the subject's partner reported leg twitching or jerking during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20380	C20380	Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale	The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20356	C20356	Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute scale	The scaled duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20364	C20364	Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale	The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20372	C20372	Pittsburgh Sleep Quality Index (PSQI) - Sleep quality past month scale	Rating of overall sleep quality past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease

Displaying 301 - 325 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.