CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 26 - 50 of 394
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15084 Brain atrophy Braak and Braak neurofibrillary stage indicator

Indicator of whether neuronal tangles are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15044 Brain atrophy thalamus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14976 Brain atrophy surface severity result

Quantitative result of the severity of cerebral atrophy on external brain surface

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14959 Diagnosis physician year date

The year the physician diagnosed the participant/ subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14964 Sedation used indicator

Whether the participant/subject was administered any sedation

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C14948 Family history relative type no biological sample in repository count

The number of family members that do not have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C14977 Brain atrophy coronal sections cerebral cortex status

Status of cerebral cortex atrophy of the coronal sections upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15093 Lacunes singe or multiple vascular territories name

Name of the vascular territories where lacunes occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15053 Brain atrophy substantia nigra pars compacta neuronal loss indicator

Indicator of neuronal loss in the pars compacta of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18995 Brain atrophy thalamus neuronal loss nuclei other text

The free-text field related to 'Brain atrophy thalamus neuronal loss nuclei name' specifying other text. Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14985 Brain atrophy striatum status

Status of striatum (caudate nucleus [CN], putamen, globus pallidus, and nucleus accumbens) atrophy

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15101 Atherosclerotic vascular pathology indicator

Indicator of atherosclerotic, either non-stenotic or stenotic vascular changes (of the circle of Willis)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15061 Brain atrophy nucleus coeruleus Lewy body containing neurons Lewy neurites status

Status of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15021 Brain atrophy substantia nigra appearance grade

Grade of pigmentation of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15109 Abnormality no diagnosis type

The diagnosis if there is no abnormality recognized

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15069 Brain atrophy medulla oblongata dorsal nucleus vagus reticular formation status

Status of dorsal nucleus of vagus reticular formation: Lewy body containing neurons (LBCN) and Lewy neurites (LN) in the medulla oblongata

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15029 Brain atrophy cortical neuronal nuclear inclusions indicator

Indicator of the presence of cortical neuronal nuclear inclusions (dystrophic neurites)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15077 Brain atrophy cerebellum cortical neuronal loss in effective layer indicator

Indicator of cortical neuronal loss in the effective layer (Purkinje cells) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15037 Brain atrophy neuronal loss and fibrillary astrocytosis putamen anatomic site

Anatomic site in the putamen where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14969 Cytosine adenine guanine repeat expansion result

Size of expansion of HD-IT 15 cytosine adenine guanine (CAG) repeats

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15085 Silver staining methods type

Silver staining methods used for identifying Alzheimer disease type changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15045 Brain atrophy thalamus neuronal loss nuclei name

Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14960 Diagnosis based abnormality type

What kind of abnormalities was the diagnosis based on?

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14965 Imaging artifacts indicator

Indicator of any obvious artifacts in the image

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C14949 Family history relative type unknown biological sample in repository count

The number of family members who are unsure if they have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
Displaying 26 - 50 of 394

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.