CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C17398	Specimen other postmortem text	Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C17400	Other pathology ischemic vascular disease text	Text field to describe the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14710	Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C14711	Godin Leisure-Time Exercise Questionnaire - exercise per week scale	The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C10506	Genetic diagnosis established indicator	Whether a genetic diagnosis for the disease/disorder was established	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
C14708	Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C14709	Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C15050	Brain atrophy red nucleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14982	Brain atrophy coronal sections hippocampal formation severity result	Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14944	Family history relative age value	Value for participant's/subject's family member's current age	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
C14990	Brain atrophy striatum globus pallidus internal segment severity result	Quantitative result of the severity of atrophy located in the globus pallidus, internal segment.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15026	Brain atrophy cerebellum severity result	Quantitative result of the severity of cerebellum atrophy located in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C18992	Macroscopical examination fresh brain other text	The free-text field related to 'Macroscopical examination fresh brain source' specifying other text. The part(s) of the fresh brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14952	Huntingtons Disease motor symptom first appeared self report type	The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
C15034	Brain atrophy amygdala neuronal loss severity result	Quantitative result of the severity of neuronal loss in the amygdala	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15042	Brain atrophy fibrillary astrocytosis severity result	Quantitative result of the severity of fibrillary astrocytosis in each location of the caudate nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14974	Brain atrophy surface status	Status of cerebral atrophy on external surface of the brain upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14965	Imaging artifacts indicator	Indicator of any obvious artifacts in the image	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
C15072	Brain atrophy medulla oblongata inferior olivary nucleus severity result	Quantitative result of the severity of neuronal loss in the inferior olivary nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15080	Brain atrophy cerebellum myelin loss in cerebellar white matter indicator	Indicator of myelin loss in the cerebellar white matter of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15088	Ischemic or hemorrhagic changes description text	The text description of the ischemic or hemorrhagic changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14960	Diagnosis based abnormality type	What kind of abnormalities was the diagnosis based on?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
C15096	Hemorrhages single or multiple vascular territories name	Name of the vascular territories where hemorrhages occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15056	Brain atrophy substantia nigra pars reticulata neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pars reticulata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15104	Amyloid angiopathy stain type	Type of stain used to identify cerebral amyloid angiopathy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.