CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1756
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17398 Specimen other postmortem text

Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17400 Other pathology ischemic vascular disease text

Text field to describe the presence of another ischemic or vascular disease not specifically mentioned previously

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14710 Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14708 Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C15045 Brain atrophy thalamus neuronal loss nuclei name

Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15093 Lacunes singe or multiple vascular territories name

Name of the vascular territories where lacunes occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15053 Brain atrophy substantia nigra pars compacta neuronal loss indicator

Indicator of neuronal loss in the pars compacta of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14953 Chorea anatomic site

Anatomic site of the participant's/subject's body affected by chorea

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15101 Atherosclerotic vascular pathology indicator

Indicator of atherosclerotic, either non-stenotic or stenotic vascular changes (of the circle of Willis)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15061 Brain atrophy nucleus coeruleus Lewy body containing neurons Lewy neurites status

Status of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15109 Abnormality no diagnosis type

The diagnosis if there is no abnormality recognized

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15069 Brain atrophy medulla oblongata dorsal nucleus vagus reticular formation status

Status of dorsal nucleus of vagus reticular formation: Lewy body containing neurons (LBCN) and Lewy neurites (LN) in the medulla oblongata

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14966 Imaging artifact type

The artifacts present on the scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15077 Brain atrophy cerebellum cortical neuronal loss in effective layer indicator

Indicator of cortical neuronal loss in the effective layer (Purkinje cells) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14936 Cytosine adenine guanine repeats larger allele number

The number of cytosine adenine guanine (CAG) repeats on the larger allele

Supplemental-Highly Recommended DNA Elements - Information from the Laboratory Huntington's Disease Huntington's Disease
C15085 Silver staining methods type

Silver staining methods used for identifying Alzheimer disease type changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C16658 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - jerking twitching limbs sleep indicator

The yes/no indicator for repeated jerking or twitching of arms or legs during sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Huntington's Disease Huntington's Disease
C14979 Brain atrophy coronal sections cerebral white matter status

Status of cerebral white matter atrophy of the coronal section upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C16619 Risk Factor Questionnaire (RFQ) - significant injury treatment administered text

The free text field to specify the treatment administered for any significant injury as part of the risk factor questionnaire (RFQ)

Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia Huntington's Disease Huntington's Disease
C16666 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - stop breath asleep indicator

The yes/no indicator for stopping breathing sometimes when asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Huntington's Disease Huntington's Disease
C14987 Brain atrophy striatum body of caudate nucleus (CN) severity result

Quantitative result of the severity of atrophy located in the body of the caudate nucleus (CN) (at the coronal section passing through the lateral geniculate body).

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17196 Problem Behaviours Assessment - Short Form (PBA-S) - anxiety severity score

The severity score for anxiety as part of the Problem Behaviours Assessment - Short Form (PBA-S)

Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) Huntington's Disease Huntington's Disease
Displaying 1 - 25 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.