CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 1 - 25 of 1756

1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C17398	Specimen other postmortem text	Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C17400	Other pathology ischemic vascular disease text	Text field to describe the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C10506	Genetic diagnosis established indicator	Whether a genetic diagnosis for the disease/disorder was established	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
C14708	Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C14709	Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C14710	Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking).	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C14711	Godin Leisure-Time Exercise Questionnaire - exercise per week scale	The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly.	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C16660	Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - stiff limbs wake up early morning Indicator	The yes/no indicator for waking early in morning with stiff and painful arms or legs from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).	Supplemental	Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire	True	Huntington's Disease	Huntington's Disease
C14981	Brain atrophy coronal sections hippocampal formation status	Status of hippocampal formation atrophy of the coronal sections upon gross examination.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C17190	Problem Behaviours Assessment - Short Form (PBA-S) - depressed mood severity score	The score for severity of average depressed mood change over past four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S).	Supplemental	Problem Behaviours Assessment HD - Short Version (PBA-s)	True	Huntington's Disease	Huntington's Disease
C18992	Macroscopical examination fresh brain other text	The free-text field related to 'Macroscopical examination fresh brain source' specifying other text. The part(s) of the fresh brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C16621	Risk Factor Questionnaire (RFQ) - significant injury treatment immobilized cast indicator	The indicator of whether any body part(s) were immobilized or needed a cast as a result of the injury as part of the risk factor questionnaire (RFQ).	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C16668	Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - fidget in bed indicator	The yes/no indicator for fidgeting a lot in bed from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).	Supplemental	Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire	True	Huntington's Disease	Huntington's Disease
C14989	Brain atrophy striatum globus pallidus external segment severity result	Quantitative result of the severity of atrophy located in the globus pallidus, external segment.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C17198	Problem Behaviours Assessment - Short Form (PBA-S) - anxiety worst score	The worst score for anxiety since patient was last seen as part of the Problem Behaviours Assessment - Short Form (PBA-S).	Supplemental	Problem Behaviours Assessment HD - Short Version (PBA-s)	True	Huntington's Disease	Huntington's Disease
C16676	Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - not rested night sleep indicator	The yes/no indicator for not being rested by night's sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).	Supplemental	Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire	True	Huntington's Disease	Huntington's Disease
C15025	Brain atrophy striatum cerebellum status	Status of cerebellum atrophy in the striatum.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C17206	Problem Behaviours Assessment - Short Form (PBA-S) - lack initiative apathy frequency score	The frequency score for lack of initiative (apathy) as part of the Problem Behaviours Assessment - Short Form (PBA-S).	Supplemental	Problem Behaviours Assessment HD - Short Version (PBA-s)	True	Huntington's Disease	Huntington's Disease
C14947	Family history relative type biological sample in repository count	The number of family members that have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
C16634	Risk Factor Questionnaire (RFQ) - female health history-age year menstrual period stopped natural value	The age (or year) the participant's/subject's periods stopped naturally or by menopause as part of the Risk factor questionnaire Female Health History.	Supplemental	Risk Factor Questionnaire (RFQ) - Female Health History	True	Huntington's Disease	Huntington's Disease
C16684	Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - treatment medical indicator	The yes/no indicator for taking treatment for a medical condition from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).	Supplemental	Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire	True	Huntington's Disease	Huntington's Disease
C15033	Brain atrophy amygdala neuronal loss indicator	Indicator of neuronal loss in the amygdala.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C17214	Problem Behaviours Assessment - Short Form (PBA-S) - delusions paranoid thinking severity score	Scores for severities of Delusions/Paranoid Thinking as part of the Problem Behaviours Assessment - Short Form (PBA-S).	Supplemental	Problem Behaviours Assessment HD - Short Version (PBA-s)	True	Huntington's Disease	Huntington's Disease
C16642	Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy stop age or year value	Age (or year) participant/subject stopped taking hormone replacement therapy as part of the risk factor questionnaire female health history.	Supplemental	Risk Factor Questionnaire (RFQ) - Female Health History	True	Huntington's Disease	Huntington's Disease
C17222	Problem Behaviours Assessment - Short Form (PBA-S) - disoriented behaviours frequency score	The severity score disoriented behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S).	Supplemental	Problem Behaviours Assessment HD - Short Version (PBA-s)	True	Huntington's Disease	Huntington's Disease

Displaying 1 - 25 of 1756

1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.