CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C17398	Specimen other postmortem text	Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C17400	Other pathology ischemic vascular disease text	Text field to describe the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14708	Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C14709	Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C14710	Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C14711	Godin Leisure-Time Exercise Questionnaire - exercise per week scale	The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
C10506	Genetic diagnosis established indicator	Whether a genetic diagnosis for the disease/disorder was established	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
C15107	Huntingtons Disease diagnosis grade	The grade of severity of HD or amyloid angiopathy severity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15067	Brain atrophy pontine nuclei globosum neuronal tangles status	Status of globosum neuronal tangles (GNT) in the pontine nuclei	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14964	Sedation used indicator	Whether the participant/subject was administered any sedation	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
C15075	Brain atrophy cerebellum cortical neuronal loss in receptive layer indicator	Indicator of cortical neuronal loss in the receptive layer (granular) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15083	Brain atrophy cerebellum dentate nucleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the dentate nucleus of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15043	Brain atrophy thalamus neuronal loss indicator	Indicator of neuronal loss in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15091	Cortical infarcts single or multiple description text	The text description of the cortical microinfarcts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15051	Brain atrophy cerebral white matter myelin loss indicator	Indicator of myelin loss in the cerebral white matter	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14951	Motor symptom first appeared self report date and time	Date of the first motor symptom(s) as noted by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
C15099	Cortical laminar necrosis single or multiple vascular territories name	Name of the vascular territories where cortical laminar necrosis occurs	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C15059	Brain atrophy nucleus coeruleus neuronal loss indicator	Indicator of neuronal loss in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C14959	Diagnosis physician year date	The year the physician diagnosed the participant/ subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
C15021	Brain atrophy substantia nigra appearance grade	Grade of pigmentation of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C17202	Problem Behaviours Assessment - Short Form (PBA-S) - angry aggressive behaviour severity score	The severity score for angry or aggressive behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)	Supplemental	Problem Behaviours Assessment HD - Short Version (PBA-s)	True	Huntington's Disease	Huntington's Disease
C14943	Family history relative deceased indicator	Indicator of whether family member is deceased	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
C16630	Risk Factor Questionnaire (RFQ) - female health history-pregnancy number	If yes, how many pregnancies as part of the risk factor questionnaire female health history	Supplemental	Risk Factor Questionnaire (RFQ) - Female Health History	True	Huntington's Disease	Huntington's Disease
C16680	Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - refreshed upon awaking from nap indicator	The yes/no indicator for feeling refreshed upon awakening from the nap from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)	Supplemental	Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire	True	Huntington's Disease	Huntington's Disease
C15029	Brain atrophy cortical neuronal nuclear inclusions indicator	Indicator of the presence of cortical neuronal nuclear inclusions (dystrophic neurites)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.