CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Displaying 1 - 25 of 1756
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17398 Specimen other postmortem text

Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17400 Other pathology ischemic vascular disease text

Text field to describe the presence of another ischemic or vascular disease not specifically mentioned previously

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14708 Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C14710 Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking).

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly.

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C16660 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - stiff limbs wake up early morning Indicator

The yes/no indicator for waking early in morning with stiff and painful arms or legs from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Huntington's Disease Huntington's Disease
C14981 Brain atrophy coronal sections hippocampal formation status

Status of hippocampal formation atrophy of the coronal sections upon gross examination.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17190 Problem Behaviours Assessment - Short Form (PBA-S) - depressed mood severity score

The score for severity of average depressed mood change over past four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S).

Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) Huntington's Disease Huntington's Disease
C18992 Macroscopical examination fresh brain other text

The free-text field related to 'Macroscopical examination fresh brain source' specifying other text. The part(s) of the fresh brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C16621 Risk Factor Questionnaire (RFQ) - significant injury treatment immobilized cast indicator

The indicator of whether any body part(s) were immobilized or needed a cast as a result of the injury as part of the risk factor questionnaire (RFQ).

Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia Huntington's Disease Huntington's Disease
C16668 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - fidget in bed indicator

The yes/no indicator for fidgeting a lot in bed from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Huntington's Disease Huntington's Disease
C14989 Brain atrophy striatum globus pallidus external segment severity result

Quantitative result of the severity of atrophy located in the globus pallidus, external segment.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17198 Problem Behaviours Assessment - Short Form (PBA-S) - anxiety worst score

The worst score for anxiety since patient was last seen as part of the Problem Behaviours Assessment - Short Form (PBA-S).

Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) Huntington's Disease Huntington's Disease
C16676 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - not rested night sleep indicator

The yes/no indicator for not being rested by night's sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Huntington's Disease Huntington's Disease
C15025 Brain atrophy striatum cerebellum status

Status of cerebellum atrophy in the striatum.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17206 Problem Behaviours Assessment - Short Form (PBA-S) - lack initiative apathy frequency score

The frequency score for lack of initiative (apathy) as part of the Problem Behaviours Assessment - Short Form (PBA-S).

Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) Huntington's Disease Huntington's Disease
C14947 Family history relative type biological sample in repository count

The number of family members that have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C16634 Risk Factor Questionnaire (RFQ) - female health history-age year menstrual period stopped natural value

The age (or year) the participant's/subject's periods stopped naturally or by menopause as part of the Risk factor questionnaire Female Health History.

Supplemental Risk Factor Questionnaire (RFQ) - Female Health History Huntington's Disease Huntington's Disease
C16684 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - treatment medical indicator

The yes/no indicator for taking treatment for a medical condition from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Huntington's Disease Huntington's Disease
C15033 Brain atrophy amygdala neuronal loss indicator

Indicator of neuronal loss in the amygdala.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17214 Problem Behaviours Assessment - Short Form (PBA-S) - delusions paranoid thinking severity score

Scores for severities of Delusions/Paranoid Thinking as part of the Problem Behaviours Assessment - Short Form (PBA-S).

Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) Huntington's Disease Huntington's Disease
C16642 Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy stop age or year value

Age (or year) participant/subject stopped taking hormone replacement therapy as part of the risk factor questionnaire female health history.

Supplemental Risk Factor Questionnaire (RFQ) - Female Health History Huntington's Disease Huntington's Disease
C17222 Problem Behaviours Assessment - Short Form (PBA-S) - disoriented behaviours frequency score

The severity score disoriented behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S).

Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) Huntington's Disease Huntington's Disease
Displaying 1 - 25 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.