CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 201 - 225 of 427

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15062	C15062	Brain atrophy nucleus coeruleus Lewy body containing neurons and Lewy neurites severity result	Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08149	C08149	Diagnosis final clinical death type	Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15110	C15110	Atherosclerotic luminal stenosis percentage range	Range for the estimated luminal stenosis percentage if stenotic vascular changes (of the circle of Willis)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14992	C14992	Brain atrophy striatum status cribrosus or lacunaris severity result	Quantitative result of the severity of atrophy located in the status cribrosus or lacunaris, or both	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15070	C15070	Brain atrophy medulla oblongata dorsal nucleus of vagus reticular formation severity result	Quantitative result of the severity of dorsal nucleus of vagus reticular formation: LBCN and LN in the medulla oblongata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08158	C08158	Brain weight measurement	Weight of the participant's/subject's brain in grams	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17756	C17756	Striatum atrophy claustrum atrophy severity result	Quantitative result of the severity of atrophy located in the claustrum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18741	C18741	Other pathology ischemic vascular disease specify text	The free-text field related to 'Other pathology ischemic vascular disease indicator'. Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17757	C17757	Striatum atrophy hypothalamus atrophy status	Status of atrophy in the hypothalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15029	C15029	Brain atrophy cortical neuronal nuclear inclusions indicator	Indicator of the presence of cortical neuronal nuclear inclusions (dystrophic neurites)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15079	C15079	Brain atrophy cerebellum cortical neuronal loss in bergman gliosis status	Status of cortical neuronal loss in the Bergman gliosis (BG) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08171	C08171	Diffuse plaques density category	Density of diffuse plaques (plaques with non-compact amyloid and no apparent dystrophic neurites)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17765	C17765	Striatum atrophy hydrocephalus lateral ventricle severity result	Quantitative result of the severity of hydrocephalus located in the lateral ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15037	C15037	Brain atrophy neuronal loss and fibrillary astrocytosis putamen anatomic site	Anatomic site in the putamen where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15087	C15087	Ischemic or hemorrhagic vascular territories name	Name of the vascular territories where ischemic or hemorrhagic changes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14969	C14969	Cytosine adenine guanine repeat expansion result	Size of expansion of HD-IT 15 cytosine adenine guanine (CAG) repeats	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15045	C15045	Brain atrophy thalamus neuronal loss nuclei name	Name of the nuclei in the thalamus involved in the neuronal loss	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15095	C15095	Hemorrhages single or multiple event category	Category of the hemorrhages	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14977	C14977	Brain atrophy coronal sections cerebral cortex status	Status of cerebral cortex atrophy of the coronal sections upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15055	C15055	Brain atrophy substantia nigra pars reticulata neuronal loss indicator	Indicator of neuronal loss in the pars reticulata of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15103	C15103	Amyloid angiopathy indicator	Indicator of presence of cerebral amyloid angiopathy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14985	C14985	Brain atrophy striatum status	Status of striatum (caudate nucleus [CN], putamen, globus pallidus, and nucleus accumbens) atrophy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15063	C15063	Brain atrophy nucleus coeruleus globosum neuronal tangles status	Status of globosum neuronal tangles (GNT) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08151	C08151	Diagnosis final clinical death date	Date of participant's/subject's final clinical diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.