CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 427

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1225-C14959	C14959	Diagnosis physician year date	The year the physician diagnosed the participant/ subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14953	C14953	Chorea anatomic site	Anatomic site of the participant's/subject's body affected by chorea	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17739	C17739	Informant participant family member relationship text	The free-text field to specify the relationship of the informant to a family member of the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C19059	C19059	Informant participant relationship other text	The free-text field related to 'Informant participant relationship type' specifying other text. The relationship of the informant to participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14960	C14960	Diagnosis based abnormality type	What kind of abnormalities was the diagnosis based on?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17740	C17740	Chorea anatomic site physician developing type	Anatomic site of the participant's/subject's body affected by chorea as noted by a physician as a developing issues from disease	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C19060	C19060	Physician specialty other text	The free-text field related to 'Physician specialty type' specifying other text. The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17733	C17733	Person completing form name	Name of person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17742	C17742	Physician specialty type	The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14954	C14954	Motor symptom improvement since diagnosis indicator	the indicator whether motor symptoms have improved since the first diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17734	C17734	Person completing the form title text	Title/Credentials/Training of the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C17743	C17743	Physician confidence level basis type	What the physician confidence level is primarily based on	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18997	C18997	Clinicopathology diagnosis final other text	the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15025	C15025	Brain atrophy striatum cerebellum status	Status of cerebellum atrophy in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15077	C15077	Brain atrophy cerebellum cortical neuronal loss in effective layer indicator	Indicator of cortical neuronal loss in the effective layer (Purkinje cells) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08167	C08167	Brain abnormality microscopic type	Type of microscopic brain abnormality identified through staining	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17763	C17763	Striatum atrophy red nucleus atrophy status	Status of atrophy in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15033	C15033	Brain atrophy amygdala neuronal loss indicator	Indicator of neuronal loss in the amygdala	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15085	C15085	Silver staining methods type	Silver staining methods used for identifying Alzheimer disease type changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08177	C08177	Hemorrhage indicator	Indicator of the presence of cerebral hemorrhages, regardless of size in any region of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15041	C15041	Brain atrophy neuronal loss severity result	Quantitative result of the severity of neuronal loss in each location of the caudate nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15093	C15093	Lacunes singe or multiple vascular territories name	Name of the vascular territories where lacunes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14973	C14973	Microscopical examination blocks source	The source of blockage based on microscopical examination of brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15053	C15053	Brain atrophy substantia nigra pars compacta neuronal loss indicator	Indicator of neuronal loss in the pars compacta of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15049	C15049	Brain atrophy red nucleus neuronal loss indicator	Indicator of neuronal loss in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 176 - 200 of 427

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.