CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 226 - 250 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C15108 Diagnoses final clinicopathological severity scale

Scale of the severity or intensity of the diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10576 Imaging in plane resolution axis 1 measurement

Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15068 Brain atrophy pontine nuclei globosum neuronal tangles (GNT) severity result

Quantitative result of the severity of globosum neuronal tangles in the pontine nuclei

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17740 Chorea anatomic site physician developing type

Anatomic site of the participant's/subject's body affected by chorea as noted by a physician as a developing issues from disease

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17754 Microscopic examination brain text

Note regarding microscopic examination of blockage source

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14965 Imaging artifacts indicator

Indicator of any obvious artifacts in the image

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15076 Brain atrophy cerebellum cortical neuronal loss in receptive layer severity result

Quantitative result of the severity of cortical neuronal loss in the receptive layer of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C19060 Physician specialty other text

The free-text field related to 'Physician specialty type' specifying other text. The specialty of the physician who made the diagnosis

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15038 Brain atrophy neuronal loss nucleus accumbens severity result

Quantitative result of the severity of neuronal loss in the nucleus accumbens

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20376 Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time

The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14970 Brain harvesting date and time

Date and time, if known the brain was harvested

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant

Supplemental Family History Huntington's Disease Huntington's Disease
C15046 Brain atrophy thalamus neuronal loss nuclei severity result

Quantitative result of the severity of neuronal loss in thalamic nuclei

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C17690 Non-prescribed controlled psychoactive drug substance hallucinogen text

The text specifying the drugs within the 'Hallucinogens: ecstasy/MDMA, LSD, mescaline/peyote, psilocybin/mushrooms, PCP/phencylidine/angel dust, MDA/STP/DOM,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14978 Brain atrophy coronal sections cerebral cortex severity result

Quantitative result of the severity of cerebral cortex atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08082 Sibling rank type

Sibling rank order to identify who is the eldest sibling and the second eldest sibling

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C14986 Brain atrophy striatum head of caudate nucleus severity result

Quantitative result of the severity of atrophy located in the head of the caudate nucleus (CN) (at the level where the anterior limb of the internal capsule [ALIC] joins with the basal white matter).

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18997 Clinicopathology diagnosis final other text

the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08105 Day care start date

Date participant/subject first started day care outside of home

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08152 Brain tissue frozen indicator

Indicator of whether banked frozen brain tissue is accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17733 Person completing form name

Name of person completing the form

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15022 Brain atrophy nucleus coeruleus appearance grade

Grade of pigmentation of the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20360 Pittsburgh Sleep Quality Index (PSQI) - Pain past month scale

The scale to which the subject had pain during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
Displaying 226 - 250 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.