CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15033	C15033	Brain atrophy amygdala neuronal loss indicator	Indicator of neuronal loss in the amygdala	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C00712	C00712	Subscribed drug or substance illicitly used category	Category of illegal drugs, prescription, or over-the-counter drugs subscribed by the participant/subject, and used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C08177	C08177	Hemorrhage indicator	Indicator of the presence of cerebral hemorrhages, regardless of size in any region of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17765	C17765	Striatum atrophy hydrocephalus lateral ventricle severity result	Quantitative result of the severity of hydrocephalus located in the lateral ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14949	C14949	Family history relative type unknown biological sample in repository count	The number of family members who are unsure if they have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15087	C15087	Ischemic or hemorrhagic vascular territories name	Name of the vascular territories where ischemic or hemorrhagic changes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15041	C15041	Brain atrophy neuronal loss severity result	Quantitative result of the severity of neuronal loss in each location of the caudate nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C17685	C17685	Non-prescribed controlled psychoactive drug substance stimulant amphetamine text	The text specifying the drugs within the 'Stimulants: amphetamine, Benzedrine, Methedrine, Dexedrine, Preludin, Ritalin, uppers, speed,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14973	C14973	Microscopical examination blocks source	The source of blockage based on microscopical examination of brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08077	C08077	Full birth sibling indicator	Indicator of whether the participant/subject has any full birth brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a birth mother and father is shared	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15095	C15095	Hemorrhages single or multiple event category	Category of the hemorrhages	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15055	C15055	Brain atrophy substantia nigra pars reticulata neuronal loss indicator	Indicator of neuronal loss in the pars reticulata of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15049	C15049	Brain atrophy red nucleus neuronal loss indicator	Indicator of neuronal loss in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20355	C20355	Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale	The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1236-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F2370-C53897	C53897	Stroop Color and Word Test (SCW) - Word age educate predict score	Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1225-C14956	C14956	Huntingtons Disease motor symptom first appeared informant type	The type of initial motor symptoms of Huntington disease (HD) described by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1269-C20363	C20363	Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale	The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1236-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F2370-C53905	C53905	Stroop Color and Word Test (SCW) - Color word age educate predict score	Score (Age/Ed Predict) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1225-C17736	C17736	Symptoms first appeared informant status	The status whether the first motor symptom(s) were noted by the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1269-C20371	C20371	Pittsburgh Sleep Quality Index (PSQI) - Partner report leg twitch jerk past month scale	The scale to which the subject's partner reported leg twitching or jerking during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1236-C14961	C14961	Imaging excitation number	Number of times each line of k-space data is acquired during the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1225-C18989	C18989	Huntingtons Disease motor symptom first appeared self report other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1269-C20379	C20379	Pittsburgh Sleep Quality Index (PSQI) - Partner report other sleep restlessness past month scale other text	The free-text entry for other reason(s) the subject's partner reported the subject having restlessness while they sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.