CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 176 - 200 of 1756
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C21097 Frontal Systems Behavior Scale (FrSBE) - Missing answer D count

Count of unanswered or missing questions for Disinhibition subscale as part of Frontal Systems Behavior Scale (FrSBE) form

Supplemental Frontal Systems Behavioral Scale (FrSBe) Huntington's Disease Huntington's Disease
C15096 Hemorrhages single or multiple vascular territories name

Name of the vascular territories where hemorrhages occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C21007 Frontal Systems Behavior Scale (FrSBE) - Forgetful until prompt frequency scale

Frequency of forgetting to do things but then remembering when prompted or when it is too late as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

Supplemental Frontal Systems Behavioral Scale (FrSBe) Huntington's Disease Huntington's Disease
C09192 Risk Factor Questionnaire (RFQ-U) - forestry work 66 onward age indicator

The indicator whether participant/subject worked in forestry from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C15056 Brain atrophy substantia nigra pars reticulata neuronal loss severity result

Quantitative result of the severity of neuronal loss in the pars reticulata

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08542 Risk Factor Questionnaire (RFQ) - ibuprofen based medication pills per week value

Pills per week that the participant took during the time they were regularly taking ibuprofen-based medications as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) Huntington's Disease Huntington's Disease
C09027 Risk Factor Questionnaire (RFQ-U) - other pesticide exposure work 36 45 age text

The description of work in some other field with pesticide exposure from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C14956 Huntingtons Disease motor symptom first appeared informant type

The type of initial motor symptoms of Huntington disease (HD) described by the informant

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C08637 Risk Factor Questionnaire (RFQ) - longest occupation over 65 year second duty text

Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Huntington's Disease Huntington's Disease
C08805 Risk Factor Questionnaire (RFQ) - worked around metal dust or fumes 100 days indicator

Has the participant ever worked around metal dust or metal fumes for at least 100 days at work or home as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Huntington's Disease Huntington's Disease
C09152 Risk Factor Questionnaire (RFQ-U) - work fungicide use 56 65 age indicator

The indicator whether participant/subject used fungicides at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C08500 36-item Short Form Health Survey (SF-36) - General health score

Score of surveyee-reported general health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

Supplemental Short Form 36-Item Health Survey (SF-36) Huntington's Disease Huntington's Disease
C08720 Risk Factor Questionnaire (RFQ) - age 56 65 residential history residence pesticide use frequency

Frequency of pesticide spraying near the participant's/subject's residence from 56-65 years of age during the span of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Huntington's Disease Huntington's Disease
C08987 Risk Factor Questionnaire (RFQ-U) - work ziram product use 26 35 age indicator

The indicator whether participant/subject used ziram products at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) Huntington's Disease Huntington's Disease
C08597 Risk Factor Questionnaire (RFQ) - military service prisoner of war indicator

Indicator as to whether the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation

Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status Huntington's Disease Huntington's Disease
C08765 Risk Factor Questionnaire (RFQ) - use n-hexane indicator

Ever use n-hexane as part of the Risk Factor Questionnaire for Toxicants

Supplemental Risk Factor Questionnaire (RFQ) - Toxicants Huntington's Disease Huntington's Disease
C09722 Food Frequency Questionnaire - (FFQ)-oranges indicator

Average total amount of oranges the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C09847 Food Frequency Questionnaire - (FFQ)-other bran added food indicator

Average total amount of other bran (wheat, etc.) the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C08680 Risk Factor Questionnaire (RFQ) - age 18 25 residential history residence pesticide use frequency

Frequency of pesticide spraying near the participant's/subject's residence from 18-25 years of age during the span of residence

Supplemental Risk Factor Questionnaire (RFQ) - Residential History Huntington's Disease Huntington's Disease
C09682 Food Frequency Questionnaire - (FFQ)-calcium dolomite daily dose

Dose per day of Calcium or Dolomite, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C20355 Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale

The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C15104 Amyloid angiopathy stain type

Type of stain used to identify cerebral amyloid angiopathy

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C12026 Written Verbal Fluency Test (WVFT) - write four letter C word four minute count

Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes

Supplemental Written Verbal Fluency Test Huntington's Disease Huntington's Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
Displaying 176 - 200 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.