CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 176 - 200 of 394
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08105 Day care start date

Date participant/subject first started day care outside of home

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C17765 Striatum atrophy hydrocephalus lateral ventricle severity result

Quantitative result of the severity of hydrocephalus located in the lateral ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18718 Imaging scanner strength value other text

The free-text field related to 'Imaging scanner strength value', specifying other text. Value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15087 Ischemic or hemorrhagic vascular territories name

Name of the vascular territories where ischemic or hemorrhagic changes occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08113 Born prematurely indicator

Indicator of whether the participant/subject was informed by a physician or family member that he/she was born prematurely

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C00720 Family history medical condition type

Type of medical condition or health related event for which the family history is taken

Supplemental Family History Huntington's Disease Huntington's Disease
C15095 Hemorrhages single or multiple event category

Category of the hemorrhages

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C02497 Imaging scanner model name

Name of model of imaging scanner

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15055 Brain atrophy substantia nigra pars reticulata neuronal loss indicator

Indicator of neuronal loss in the pars reticulata of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08115 Meningitis or encephalitis diagnosed type

Type of meningitis/encephalitis that participant/subject was diagnosed with

Supplemental Infection History Huntington's Disease Huntington's Disease
C14955 Motor symptom first appeared informant date

Date the first motor symptom(s) were noted by the person completing the form

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14946 Family history medical condition relative count

Number of family members with medical condition

Supplemental Family History Huntington's Disease Huntington's Disease
C15103 Amyloid angiopathy indicator

Indicator of presence of cerebral amyloid angiopathy

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08243 Imaging matrix size value

Value representing the imaging matrix size in millimeters

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15063 Brain atrophy nucleus coeruleus globosum neuronal tangles status

Status of globosum neuronal tangles (GNT) in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08235 Drug or substance illicit use frequency

The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C17735 Motor symptom first appeared self report status

The status of the first motor symptom(s) as noted by the participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C18679 Family history medical condition relative type other text

The free-text field related to 'Family history medical condition relative type' specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant/subject

Supplemental Family History Huntington's Disease Huntington's Disease
C15111 Arteriosclerosis severity score

Severity score for arteriosclerosis (small parenchymal arteriolar disease)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10927 Imaging inversion time

The time period between the 180° inversion pulse and the 90° excitation pulse in an Inversion Recovery pulse sequence

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15071 Brain atrophy medulla oblongata inferior olivary nucleus indicator

Indicator of neuronal loss of the inferior olivary nucleus in the medulla oblongata

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17690 Non-prescribed controlled psychoactive drug substance hallucinogen text

The text specifying the drugs within the 'Hallucinogens: ecstasy/MDMA, LSD, mescaline/peyote, psilocybin/mushrooms, PCP/phencylidine/angel dust, MDA/STP/DOM,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C08082 Sibling rank type

Sibling rank order to identify who is the eldest sibling and the second eldest sibling

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C17757 Striatum atrophy hypothalamus atrophy status

Status of atrophy in the hypothalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 176 - 200 of 394

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.