CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17690 Non-prescribed controlled psychoactive drug substance hallucinogen text

The text specifying the drugs within the 'Hallucinogens: ecstasy/MDMA, LSD, mescaline/peyote, psilocybin/mushrooms, PCP/phencylidine/angel dust, MDA/STP/DOM,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Huntington's Disease Huntington's Disease
C09706 Food Frequency Questionnaire - (FFQ)-cheese type indicator

Type of cheese the subject usually eats, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09831 Food Frequency Questionnaire - (FFQ)-brownies indicator

Average total amount of brownies the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C20533 European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L) - Anxiety depression category

Category determining the extent to which the participant has problems with anxiety or depression category, as part of the European Quality of Life Five Dimension Five Level Scale (EQ-5D-5L)

 Supplemental EuroQoL-5 Dimension Questionnaire (EQ-5D) True Huntington's Disease Huntington's Disease
C09666 Food Frequency Questionnaire - (FFQ)-vitamin D daily dose

Dose per day of Vitamin D, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C21076 Frontal Systems Behavior Scale (FrSBE) - Total raw score

Total raw score as part of Frontal Systems Behavior Scale (FrSBE)

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C15088 Ischemic or hemorrhagic changes description text

The text description of the ischemic or hemorrhagic changes

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C52957 Hopkins Verbal Learning Test Revised (HVLT-R) - Delayed recall raw score

The raw score for Delayed Recall, as part of the Hopkins Verbal Learning Test Revised (HVLT-R)

 Supplemental Hopkins Verbal Learning Test - Revised (HVLT-R) True Huntington's Disease Huntington's Disease
C09059 Risk Factor Questionnaire (RFQ-U) - work rodenticide use 36 45 age indicator

The indicator whether participant/subject used rodenticides at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C20982 Frontal Systems Behavior Scale (FrSBE) - Interrupt conversation frequency scale

Frequency of talking out of turn, interrupts others in conversations as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C17731 Risk Factor Questionnaire (RFQ) - age stopped regularly working around metal dust or metal fumes period 3 value

Age when the participant stopped regularly working around metal dust or metal fumes period 3 as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09184 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure other 66 onward age indicator

The indicator whether work exposure to pesticides from age 66 onward was other than through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C15048 Brain atrophy subthalamic nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the subthalamic nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C10473 Risk Factor Questionnaire (RFQ) - currently smoking status

Smoking status of the participant/subject to determine if they are currently smoking as part of the Risk Assessment Questionnaire (RFQ) Smoking and Tobacco

 Supplemental Risk Factor Questionnaire (RFQ-U) - Smoking and Tobacco True Huntington's Disease Huntington's Disease
C09019 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure animals 36 45 age text

The description of any pesticides used on livestock/farm animals while working in farming or ranching from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08895 Risk Factor Questionnaire (RFQ-U) - home sought medical care indicator

The indicator of seeking medical attention after exposure to pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C08629 Risk Factor Questionnaire (RFQ) - longest occupation 46 55 year fourth duty text

Text describing the participant's/subject's fourth of four major tasks or duties at the longest held occupation from the age of 46-55 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C08797 Risk Factor Questionnaire (RFQ) - year not regularly solder indicator

Periods of a year or more when the participant did not regularly solder as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09144 Risk Factor Questionnaire (RFQ-U) - work herbicide use 56 65 age indicator

The indicator whether participant/subject used herbicides at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09879 Food Frequency Questionnaire - (FFQ)-red meat use ten years indicator

Indicator of how the subjects use of red meat changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08712 Risk Factor Questionnaire (RFQ) - age 56 65 residential history residence city text

Text specifying the participant's/subject's city or town of residence from 56-65 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08589 Risk Factor Questionnaire (RFQ) - military service branch type

The type of branch the participant/subject was in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C09714 Food Frequency Questionnaire - (FFQ)-prunes dried plums indicator

Average total amount of prunes or dried plums the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09839 Food Frequency Questionnaire - (FFQ)-sweet roll coffee cake other pastry home baked indicator

Average total amount of home baked sweet roll, coffee or other pastry the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09674 Food Frequency Questionnaire - (FFQ)-selenium duration

Duration of selenium intake, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
Displaying 151 - 175 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.