CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C20355 Pittsburgh Sleep Quality Index (PSQI) - Feel hot past month scale

The scale to which the subject felt too hot during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C15104 Amyloid angiopathy stain type

Type of stain used to identify cerebral amyloid angiopathy

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C12026 Written Verbal Fluency Test (WVFT) - write four letter C word four minute count

Count of legitimate words exactly 4 letters long and beginning with the letter C that the participant/subject was able to write in 4 minutes

 Supplemental Written Verbal Fluency Test True Huntington's Disease Huntington's Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C21022 Frontal Systems Behavior Scale (FrSBE) - Swearing frequency scale

Frequency of swearing as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C09200 Risk Factor Questionnaire (RFQ-U) - days year work pesticide exposure 66 onward age frequency

The number of days with pesticide exposure during years with job with pesticide exposure from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C15064 Brain atrophy nucleus coeruleus globosum neuronal tangles (GNT) severity result

Quantitative result of the severity of GNT in the nucleus coeruleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09035 Risk Factor Questionnaire (RFQ-U) - work trifluralin use 36 45 age indicator

The indicator whether participant/subject used trifluralin at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C17736 Symptoms first appeared informant status

The status whether the first motor symptom(s) were noted by the person completing the form

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C08815 Risk Factor Questionnaire (RFQ) - worked around other chemicals or fumes indicator

Has the participant ever worked around any other chemicals or fumes not discussed as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09160 Risk Factor Questionnaire (RFQ-U) - work other fungicide use 56 65 age text

The description of any other fungicides used at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08728 Risk Factor Questionnaire (RFQ) - age 66 and over residential history residence near farm fields indicator

Indicator as to whether the participant's/subject's residence from 66+ years of age was located near farm fields (within 1/4mile)

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08995 Risk Factor Questionnaire (RFQ-U) - work lindane product use 26 35 age indicator

The indicator whether participant/subject used lindane products at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08605 Risk Factor Questionnaire (RFQ) - current job second duty text

Text describing the second of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C08773 Risk Factor Questionnaire (RFQ) - ever brazed indicator

Has the participant ever brazed as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09730 Food Frequency Questionnaire - (FFQ)-peaches plums indicator

Average total amount of peaches or plums the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09855 Food Frequency Questionnaire - (FFQ)-garlic indicator

Average total amount of garlic the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08688 Risk Factor Questionnaire (RFQ) - age 26 35 residential history residence near farm field indicator

Indicator as to whether the participant's/subject's residence from 26-35 years of age was located near farm fields (within 1/4mile)

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08115 Meningitis or encephalitis diagnosed type

Type of meningitis/encephalitis that participant/subject was diagnosed with

 Supplemental Infection History False Huntington's Disease Huntington's Disease
C09690 Food Frequency Questionnaire - (FFQ)-current supplement indicator

Other supplements subject is currently taking on a regular basis, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C20363 Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale

The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C09815 Food Frequency Questionnaire - (FFQ)-tea caffeine green tea indicator

Average total amount of tea with caffeine, including green tea the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C17398 Specimen other postmortem text

Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C53897 Stroop Color and Word Test (SCW) - Word age educate predict score

Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C14961 Imaging excitation number

Number of times each line of k-space data is acquired during the scan

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
Displaying 151 - 175 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.