CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 126 - 150 of 409

« first
‹ previous
…
2
3
4
5
6
7
8
9
10
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1211-C08106	C08106	Day care end date	Date participant/subject ended day care outside of home	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C14976	C14976	Brain atrophy surface severity result	Quantitative result of the severity of cerebral atrophy on external brain surface	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08096	C08096	Influenza vaccine history indicator	Indicator of whether the participant/subject has ever received an influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C14984	C14984	Brain atrophy coronal sections amygdala severity result	Quantitative result of the severity of amygdala atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18995	C18995	Brain atrophy thalamus neuronal loss nuclei other text	The free-text field related to 'Brain atrophy thalamus neuronal loss nuclei name' specifying other text. Name of the nuclei in the thalamus involved in the neuronal loss	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C00722	C00722	Family history medical condition relative type	Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C08149	C08149	Diagnosis final clinical death type	Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1807-C58781	C58781	Gender identity type other text	The free-text field related to 'Gender identity type', specifying other text	Supplemental	General Core	False	Huntington's Disease	Huntington's Disease
F1212-C08116	C08116	Meningitis or encephalitis episode age value	Participant's/subject's age at the time of the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C14992	C14992	Brain atrophy striatum status cribrosus or lacunaris severity result	Quantitative result of the severity of atrophy located in the status cribrosus or lacunaris, or both	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20358	C20358	Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale	The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1209-C14947	C14947	Family history relative type biological sample in repository count	The number of family members that have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C08158	C08158	Brain weight measurement	Weight of the participant's/subject's brain in grams	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F2370-C53900	C53900	Stroop Color and Word Test (SCW) - Color raw score	Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1213-C17683	C17683	Non-prescribed controlled psychoactive drug substance marijuana text	The text specifying the drugs within the Marijuana: hash, THC category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C15028	C15028	Brain atrophy cerebral cortex neuronal loss severity result	Quantitative result of the severity of neuronal loss located in the cerebral cortex	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20366	C20366	Pittsburgh Sleep Quality Index (PSQI) - Trouble stay awake past month scale	The scale to which the subject had trouble staying awake while driving, eating meals, or engaging in social activity past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1209-C22864	C22864	Diagnosis Huntingtons Disease parent suspect indicator	Indicate whether there is a possibility of an HD diagnosis for a parent	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C08170	C08170	Neuritic plaque density category	Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F2370-C53952	C53952	Stroop Color and Word Test (SCW) - Interference T score	Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1213-C17691	C17691	Non-prescribed controlled psychoactive drug substance other text	The text specifying the drugs within the 'Others: (non-perscribed, non-over-the-counter)' categoryas an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C15036	C15036	Brain atrophy neuronal loss and fibrillary astrocytosis pontes griseum or gray matter caudo-lenticular bridges anatomic site	Anatomic site in the pontes griseum or gray matter caudo-lenticular bridges where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20374	C20374	Pittsburgh Sleep Quality Index (PSQI) - Other reason past month other text	The free-text entry for other reason(s) the subject reported having trouble sleeping in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1211-C08083	C08083	Sibling name	Name of the sibling	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08185	C08185	Amyloid angiopathy severity scale	Whether or not amyloid deposits are present in the walls of the blood vessels of the central nervous system and if so, their severity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 126 - 150 of 409

« first
‹ previous
…
2
3
4
5
6
7
8
9
10
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.