CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08077 Full birth sibling indicator

Indicator of whether the participant/subject has any full birth brothers and/or sisters. Full brothers and/or sisters are defined as those with whom a birth mother and father is shared

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C14710 Godin Leisure-Time Exercise Questionnaire - mild exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing mild exercise (e.g., yoga, archery, fishing from river bank, bowling, horseshoes, golf, snow-mobiling, easy walking)

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C15033 Brain atrophy amygdala neuronal loss indicator

Indicator of neuronal loss in the amygdala

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10506 Genetic diagnosis established indicator

Whether a genetic diagnosis for the disease/disorder was established

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17758 Striatum atrophy hypothalamus atrophy severity result

Quantitative result of the severity of atrophy located in the hypothalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15080 Brain atrophy cerebellum myelin loss in cerebellar white matter indicator

Indicator of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C17766 Striatum atrophy hydrocephalus third ventricle severity result

Quantitative result of the severity of hydrocephalus located in the third ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14960 Diagnosis based abnormality type

What kind of abnormalities was the diagnosis based on?

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15088 Ischemic or hemorrhagic changes description text

The text description of the ischemic or hemorrhagic changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10576 Imaging in plane resolution axis 1 measurement

Measurement of axis 1 of in-plane spatial resolution used in imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C17740 Chorea anatomic site physician developing type

Anatomic site of the participant's/subject's body affected by chorea as noted by a physician as a developing issues from disease

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15096 Hemorrhages single or multiple vascular territories name

Name of the vascular territories where hemorrhages occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15056 Brain atrophy substantia nigra pars reticulata neuronal loss severity result

Quantitative result of the severity of neuronal loss in the pars reticulata

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14965 Imaging artifacts indicator

Indicator of any obvious artifacts in the image

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C19060 Physician specialty other text

The free-text field related to 'Physician specialty type' specifying other text. The specialty of the physician who made the diagnosis

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15104 Amyloid angiopathy stain type

Type of stain used to identify cerebral amyloid angiopathy

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15064 Brain atrophy nucleus coeruleus globosum neuronal tangles (GNT) severity result

Quantitative result of the severity of GNT in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C17398 Specimen other postmortem text

Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15072 Brain atrophy medulla oblongata inferior olivary nucleus severity result

Quantitative result of the severity of neuronal loss in the inferior olivary nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C15034 Brain atrophy amygdala neuronal loss severity result

Quantitative result of the severity of neuronal loss in the amygdala

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14941 Diagnosis certainty percentage range type

Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.