CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 101 - 125 of 427
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14974 Brain atrophy surface status

Status of cerebral atrophy on external surface of the brain upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08078 Full biological sisters count

Count of full biological sisters the participant/subject has

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C15050 Brain atrophy red nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the red nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
C14941 Diagnosis certainty percentage range type

Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C14982 Brain atrophy coronal sections hippocampal formation severity result

Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18993 Macroscopical examination fixed brain other text

The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15097 Single or multiple hemorrhages description text

The text description of the hemorrhages

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15057 Brain atrophy substantia nigra Lewy body containing neurons and Lewy neurites status

Status of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14957 Huntingtons Disease developing motor symptom type

Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15105 Diagnosis concomitant main indicator

Indicator of whether the participant/ subject been diagnosed with a concomitant disease

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08245 Imaging slice count

Count representing the total number of single image planes captured during imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15065 Brain atrophy pons neuronal loss indicator

Indicator of neuronal loss in the pons

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17737 Chorea anatomic site informant type

Anatomic site of the participant's/subject's body affected by chorea as noted by the informant

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17400 Other pathology ischemic vascular disease text

Text field to describe the presence of another ischemic or vascular disease not specifically mentioned previously

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14962 Imaging acquisition entire brain coverage indicator

Indicator of whether the imaging acquisition covered the entire brain

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15073 Brain atrophy cerebellum cortical neuronal loss in associative layer indicator

Indicator of cortical neuronal loss in the associative layer (molecular) of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18990 Huntingtons Disease motor symptom first appeared informant other text

The free-text field related to 'Huntingtons Disease motor symptom first appeared informant type' specifying other text. The type of initial motor symptoms of Huntington disease (HD) described by the informant

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C17759 Striatum atrophy thalamus atrophy status

Status of atrophy in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17750 Imaging functional magnetic resonance imaging task type

Tasks performed during a functional magnetic resonance imaging (fMRI) scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15081 Brain atrophy cerebellum myelin loss in cerebellar white matter severity result

Quantitative result of the severity of myelin loss in the cerebellar white matter of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17767 Striatum atrophy hydrocephalus fourth ventricle severity result

Quantitative result of the severity of hydrocephalus located in the fourth ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C19064 Imaging functional magnetic resonance imaging task other text

The free-text field related to 'Imaging functional magnetic resonance imaging task type' specifying other text. Tasks performed during a functional magnetic resonance imaging (fMRI) scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15089 Cortical infarcts single or multiple event category

Category of the cortical microinfarcts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.