CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15091	C15091	Cortical infarcts single or multiple description text	The text description of the cortical microinfarcts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C10685	C10685	Imaging slice orientation type	The slice orientation used in imaging acquisition	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15051	C15051	Brain atrophy cerebral white matter myelin loss indicator	Indicator of myelin loss in the cerebral white matter	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17742	C17742	Physician specialty type	The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1213-C08232	C08232	Drug or substance illicit use ever indicator	Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1209-C17681	C17681	Family history collection source	The source of collected family history data	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15099	C15099	Cortical laminar necrosis single or multiple vascular territories name	Name of the vascular territories where cortical laminar necrosis occurs	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14966	C14966	Imaging artifact type	The artifacts present on the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15059	C15059	Brain atrophy nucleus coeruleus neuronal loss indicator	Indicator of neuronal loss in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C17687	C17687	Non-prescribed controlled psychoactive drug substance sedative barbiturate text	The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F2370-C53901	C53901	Stroop Color and Word Test (SCW) - Color age educate predict score	Score (Age/Ed. Predict) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1269-C20367	C20367	Pittsburgh Sleep Quality Index (PSQI) - Partner report loud snore past month scale	The scale to which the subject's partner reported loud snoring during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1237-C15045	C15045	Brain atrophy thalamus neuronal loss nuclei name	Name of the nuclei in the thalamus involved in the neuronal loss	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14977	C14977	Brain atrophy coronal sections cerebral cortex status	Status of cerebral cortex atrophy of the coronal sections upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20375	C20375	Pittsburgh Sleep Quality Index (PSQI) - Total score	The total score, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1237-C14985	C14985	Brain atrophy striatum status	Status of striatum (caudate nucleus [CN], putamen, globus pallidus, and nucleus accumbens) atrophy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08151	C08151	Diagnosis final clinical death date	Date of participant's/subject's final clinical diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20384	C20384	Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale	The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1237-C15021	C15021	Brain atrophy substantia nigra appearance grade	Grade of pigmentation of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08160	C08160	Brain tissue weigh type	Type of brain tissue weighed	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18996	C18996	Silver staining methods other text	The free-text field related to 'Silver staining methods type' specifying other text. Silver staining methods used for identifying Alzheimer disease type changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15029	C15029	Brain atrophy cortical neuronal nuclear inclusions indicator	Indicator of the presence of cortical neuronal nuclear inclusions (dystrophic neurites)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08171	C08171	Diffuse plaques density category	Density of diffuse plaques (plaques with non-compact amyloid and no apparent dystrophic neurites)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F2370-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1269-C20359	C20359	Pittsburgh Sleep Quality Index (PSQI) - Feel cold past month scale	The scale to which the subject felt too cold during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.