CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1756
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09188 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure crops 66 onward age text

The description of any pesticides used on crops while working in farming or ranching from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C15052 Brain atrophy cerebral white matter myelin loss severity result

Quantitative result of the cerebral white matter myelin loss

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08538 Risk Factor Questionnaire (RFQ) - age year started ibuprofen based medication value

Age/year the participant started regularly taking an ibuprofen-based medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09023 Risk Factor Questionnaire (RFQ-U) - greenhouse work 36 45 age indicator

The indicator whether participant/subject worked in a nursery/greenhouse from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14952 Huntingtons Disease motor symptom first appeared self report type

The type of first motor symptoms described by the participant/subject

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C08633 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C08801 Risk Factor Questionnaire (RFQ) - ever used tin-lead indicator

Has the participant ever used tin-lead as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09148 Risk Factor Questionnaire (RFQ-U) - work paraquat diquat product use 56 65 age indicator

The indicator whether participant/subject used paraquat or diquat products at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09883 Food Frequency Questionnaire - (FFQ)-whole grain use ten years indicator

Indicator of how the subjects use of whole grains changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08716 Risk Factor Questionnaire (RFQ) - age 56 65 residential history residence location type

Type describing the participant's/subject's location of residence from 56-65 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08983 Risk Factor Questionnaire (RFQ-U) - work chlorathalonil use 26 35 age indicator

The indicator whether participant/subject used chlorathalonil at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08593 Risk Factor Questionnaire (RFQ) - military service combat indicator

The indicator as to whether the participant/subject was ever in combat as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C09718 Food Frequency Questionnaire - (FFQ)-avocado indicator

Average total amount of avocado the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09843 Food Frequency Questionnaire - (FFQ)-breakfast bars indicator

Average total amount of breakfast bars the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09678 Food Frequency Questionnaire - (FFQ)-zinc indicator

Zinc indicator, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C21104 Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale invalid score indicator

Indicator if Executive Dysfunction subscale is invalid (has more than 3 questions missing) as part of Frontal Systems Behavior Scale (FrSBE)

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C15100 Cortical laminar necrosis single or multiple text

The text description of the cortical laminar necrosis

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C21015 Frontal Systems Behavior Scale (FrSBE) - Inactive lack energy frequency scale

Frequency of being slow moving, lacking energy, inactive as part of Frontal Systems Behavior Scale (FrSBE) - Apathy subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C09196 Risk Factor Questionnaire (RFQ-U) - building maintenance work 66 onward age indicator

The indicator whether participant/subject worked in building maintenance or as a janitor from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C15060 Brain atrophy nucleus coeruleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the nucleus coeruleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09031 Risk Factor Questionnaire (RFQ-U) - broadleaf herbicide exposure 36 45 age indicator

The indicator whether participant/subject used broadleaf herbicide products containing 2,4-Dichlorophenoxyacetic acid (2,4-D) at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09765 Food Frequency Questionnaire - (FFQ)-other chicken turkey skin indicator

Average total amount of other chicken or turkey, with skin the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

 Supplemental Godin Leisure-Time Exercise Questionnaire False Huntington's Disease Huntington's Disease
C10228 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - age eleven twenty zip code

Zip code for the location that the participant/subject spent the majority of his or her time from 11-20 years, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.