CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C09833 Food Frequency Questionnaire - (FFQ)-home baked cake indicator

Average total amount of home baked cake the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09668 Food Frequency Questionnaire - (FFQ)-vitamin E indicator

Vitamin E indicator, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C21080 Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale T score

T score for Disinhibition subscale as part of Frontal Systems Behavior Scale (FrSBE)

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C15090 Cortical infarcts single or multiple vascular territories name

Name of the vascular territories where cortical microinfarcts occur

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C52959 Hopkins Verbal Learning Test Revised (HVLT-R) - Retention raw percentage value

The percentage value for retention, as part of the Hopkins Verbal Learning Test Revised (HVLT-R)

 Supplemental Hopkins Verbal Learning Test - Revised (HVLT-R) True Huntington's Disease Huntington's Disease
C09061 Risk Factor Questionnaire (RFQ-U) - work other rodenticide use 36 45 age text

The description of any other rodenticides used at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C20991 Frontal Systems Behavior Scale (FrSBE) - Anger easily frequency scale

Frequency of being easily angered or irritated, having emotional outbursts without good reason as part of Frontal Systems Behavior Scale (FrSBE) - Disinhibition subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C08896 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure lifetime indicator

The indicator of whether there was exposure to pesticides at work over the course of a participant's/subject's lifetime as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09186 Risk Factor Questionnaire (RFQ-U) - farm ranch work 66 onward age indicator

The indicator whether participant/subject worked in farming or ranching from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C15050 Brain atrophy red nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the red nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C10475 Risk Factor Questionnaire (RFQ) - currently use smokeless tobacco status

Smokeless tobacco use status of the participant/subject to determine if they are currently using smokeless tobacco or snuff as part of the Risk Assessment Questionnaire (RFQ) Smoking and Tobacco

 Supplemental Risk Factor Questionnaire (RFQ-U) - Smoking and Tobacco True Huntington's Disease Huntington's Disease
C09021 Risk Factor Questionnaire (RFQ-U) - forestry work 36 45 age indicator

The indicator whether participant/subject worked in forestry from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14941 Diagnosis certainty percentage range type

Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C08631 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year first duty text

Text describing the participant's/subject's first of four major tasks or duties at the longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C08799 Risk Factor Questionnaire (RFQ) - age stopped regularly soldering period 2 value

Age when the participant stopped regularly soldering period 2 as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09146 Risk Factor Questionnaire (RFQ-U) - work atrazine cyanazine product use 56 65 age indicator

The indicator whether participant/subject used atrazine or cyanazine products at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09881 Food Frequency Questionnaire - (FFQ)-vegetable use ten years indicator

Indicator of how the subjects use of vegetables changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08714 Risk Factor Questionnaire (RFQ) - age 56 65 residential history residence zip code number

Number specifying the participant's/subject's zip code of residence from 56-65 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08981 Risk Factor Questionnaire (RFQ-U) - work fungicide use 26 35 age indicator

The indicator whether participant/subject used fungicides at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08591 Risk Factor Questionnaire (RFQ) - military service state station longest text

The text describing the state the participant/subject was stationed in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C09716 Food Frequency Questionnaire - (FFQ)-bananas indicator

Average total amount of bananas the subject has had over the past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09841 Food Frequency Questionnaire - (FFQ)-walnuts indicator

Average total amount of walnuts the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09676 Food Frequency Questionnaire - (FFQ)-iron daily dose

Dose per day of Iron, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C21101 Frontal Systems Behavior Scale (FrSBE) - Apathy subscale invalid score indicator

Indicator if Apathy subscale is invalid (has more than 3 questions missing) as part of Frontal Systems Behavior Scale (FrSBE)

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C15098 Cortical laminar necrosis single or multiple event category

Category of the cortical laminar necrosis

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
Displaying 76 - 100 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.