CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1269-C20368	C20368	Pittsburgh Sleep Quality Index (PSQI) - Partner report disorientation past month scale	The scale to which the subject's partner reported disorientation or confusion during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1236-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C14987	C14987	Brain atrophy striatum body of caudate nucleus (CN) severity result	Quantitative result of the severity of atrophy located in the body of the caudate nucleus (CN) (at the coronal section passing through the lateral geniculate body).	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17736	C17736	Symptoms first appeared informant status	The status whether the first motor symptom(s) were noted by the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08153	C08153	Brain tissue formalin-fixed indicator	Indicator of whether formalin-fixed brain tissue is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20376	C20376	Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time	The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1236-C14961	C14961	Imaging excitation number	Number of times each line of k-space data is acquired during the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15023	C15023	Brain atrophy striatum brainstem status	Status of brainstem atrophy in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C18989	C18989	Huntingtons Disease motor symptom first appeared self report other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08163	C08163	CERAD neuropathological criteria scale	CERAD neuropathological criteria used to determine the probability of the participant/subject having Alzheimer's disease	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20385	C20385	Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale	The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1237-C15058	C15058	Brain atrophy substantia nigra Lewy body containing neurons and Lewy neurites severity result	Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the substantia nigra.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08107	C08107	Day care hour per week value	Approximate hours per week the participant/subject attended day care as a child	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
F1237-C15106	C15106	Clinicopathology diagnosis final type	The participant/subject's final clinicopathological diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15066	C15066	Brain atrophy pons neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pons	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08097	C08097	Influenza vaccine first receive age value	Age participant/subject received his/her first influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1209-C08000	C08000	Family history relative type total membercount	Count of total family members and ancestors for the specified relative type	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C17752	C17752	Photographs macroscopic text	Description of available macroscopic photographs	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15074	C15074	Brain atrophy cerebellum cortical neuronal loss in associative layer severity result	Quantitative result of the severity of cortical neuronal loss in the associative layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08117	C08117	Meningitis or encephalitis episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1209-C14948	C14948	Family history relative type no biological sample in repository count	The number of family members that do not have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C17760	C17760	Striatum atrophy thalamus atrophy severity result	Quantitative result of the severity of atrophy located in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15082	C15082	Brain atrophy cerebellum dentate nucleus neuronal loss indicator	Indicator of neuronal loss in the dentate nucleus of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C17684	C17684	Non-prescribed controlled psychoactive drug substance stimulant cocaine text	The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1211-C08076	C08076	Breastfed indicator	Indicator of whether the participant/subject was breastfed by his/her mother	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.