CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1756
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17195 Problem Behaviours Assessment - Short Form (PBA-S) - suicidal ideation worst score

The worst score for suicidal ideation since patient was last seen as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C18062 Ohio State TBI Method Short Form (OSUTBIMS) - Loss of consciousness knocked out youngest age count

Number of times subject has lost consciousness. Number of times subject has been knocked out. Number of times subject has been knocked out for 30 or over minutes and the youngest age this has occurred as part of Ohio State TBI Method Short Form (OSUTBIMS)

 Supplemental Ohio State University TBI Identification Method Short Form True Huntington's Disease Huntington's Disease
C08861 Risk Factor Questionnaire (RFQ-U) - insecticide exposure 46 55 age indicator

The indicator whether there was exposure to insecticides from ages 46 to 55 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C18997 Clinicopathology diagnosis final other text

the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09110 Risk Factor Questionnaire (RFQ-U) - work oil use 46 55 age indicator

The indicator whether participant/subject used oil at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08152 Brain tissue frozen indicator

Indicator of whether banked frozen brain tissue is accessible

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08678 Risk Factor Questionnaire (RFQ) - age 18 25 residential history residence near farm field indicator

Indicator as to whether the participant's/subject's residence from 18-25 years of age was located near farm fields (within 1/4mile)

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08945 Risk Factor Questionnaire (RFQ-U) - work rodenticide use birth 25 age indicator

The indicator whether participant/subject used rodenticides at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09235 Risk Factor Questionnaire (RFQ-U) - work other fumigant use 66 onward age indicator

The indicator whether participant/subject used other fumigants at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08111 Preschool hour per week value

Approximate hours per week the participant/subject attended preschool as a child

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C10463 Risk Factor Questionnaire (RFQ) - currently taking aspirin indicator

Indicator whther the participant currently takes aspirin as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09070 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure other 46 55 age indicator

The indicator whether work exposure to pesticides from age 46 to 55 was other than through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09805 Food Frequency Questionnaire - (FFQ)-carbonated beverage caffeine sugar indicator

Average total amount of carbonated beverage with caffeine and sugar the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08905 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure animals birth 25 age text

The description of any pesticides used on livestock/farm animals while working in farming or ranching from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C11139 Country of origin maternal ISO code

The ISO 3166-1 alpha-2 code for the participant's mother's country of origin

 Supplemental Demographics False Huntington's Disease Huntington's Disease
C08545 Risk Factor Questionnaire (RFQ) - age year stop taking aspirin value

Age/year the participant stopped regularly taking aspirin as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09765 Food Frequency Questionnaire - (FFQ)-other chicken turkey skin indicator

Average total amount of other chicken or turkey, with skin the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C14709 Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency

Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)

 Supplemental Godin Leisure-Time Exercise Questionnaire False Huntington's Disease Huntington's Disease
C10255 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - smoke year duration

Duration for how many years the participant/subject smoked cigarettes regularly, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C16673 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - sleep type

Pre-specified type of your sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C15022 Brain atrophy nucleus coeruleus appearance grade

Grade of pigmentation of the nucleus coeruleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17203 Problem Behaviours Assessment - Short Form (PBA-S) - angry aggressive behaviour frequency score

The frequency score for angry or aggressive behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C18070 Ohio State TBI Method Short Form (OSUTBIMS) - Loss of consciousness count

Number of injuries the subject incurred with loss of consciousness as part of Ohio State TBI Method Short Form (OSUTBIMS)

 Supplemental Ohio State University TBI Identification Method Short Form True Huntington's Disease Huntington's Disease
C08869 Risk Factor Questionnaire (RFQ-U) - fungicide exposure 56 65 age indicator

The indicator whether there was exposure to fungicides from ages 56 to 65 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09306 Apathy Scale (AS) - Effort scale

The scale related to subject's desire to put effort into things, as part of the Apathy Scale (AS) form

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
Displaying 51 - 75 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.