CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

Show All
Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17713 Risk Factor Questionnaire (RFQ) - age started regularly taking other CCB medication period 1 value

Age when the participant started regularly taking other CCB medication period 1 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09077 Risk Factor Questionnaire (RFQ-U) - other agricultural application work 46 55 age indicator

The indicator whether participant/subject worked in agricultural applications other than farming or ranching from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09812 Food Frequency Questionnaire - (FFQ)-liquor indicator

Average total amount of liquor the subject drank this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08822 Risk Factor Questionnaire (RFQ) - weight age 25 value

Patient's weight at age 25 as part of the Risk Factor Questionnaire (RFQ) - Height and Weight

 Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight True Huntington's Disease Huntington's Disease
C08912 Risk Factor Questionnaire (RFQ-U) - other pesticide exposure work birth 25 age indicator

The indicator whether participant/subject worked some other field with pesticide exposure from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14943 Family history relative deceased indicator

Indicator of whether family member is deceased

 Supplemental Family History False Huntington's Disease Huntington's Disease
C08552 Risk Factor Questionnaire (RFQ) - year not regularly taking anti-inflammatory medications indicator

Periods of a year or more when the participant did NOT regularly take anti-inflammatory medications as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C18055 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - specify other chemical fume text

Text specifying the other chemicals or fumes that the participant/subject has worked with for more than 6 months

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C09772 Food Frequency Questionnaire - (FFQ)-regular hamburger indicator

Average total amount of regular hamburger the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16630 Risk Factor Questionnaire (RFQ) - female health history-pregnancy number

If yes, how many pregnancies as part of the risk factor questionnaire female health history

 Supplemental Risk Factor Questionnaire (RFQ) - Female Health History True Huntington's Disease Huntington's Disease
C08644 Risk Factor Questionnaire (RFQ) - age 18 25 moderate physical activity indicator

Hours spent doing moderate physical activities by the subject in a week between the ages of 18 and 25, as part of the Risk Factor Questionnaire (RFQ)

 Supplemental Risk Factor Questionnaire (RFQ) - All True Huntington's Disease Huntington's Disease
C08511 36-item Short Form Health Survey (SF-36) - Health limited walking one block score

Score of surveyee-reported limited walking one block due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C10235 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - age forty one sixty state province location

Location of the state/province that the participant/subject spent the majority of his or her time from 41-60 years, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C16680 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - refreshed upon awaking from nap indicator

The yes/no indicator for feeling refreshed upon awakening from the nap from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C09732 Food Frequency Questionnaire - (FFQ)-tomatoes indicator

Average total amount of tomatoes the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C15029 Brain atrophy cortical neuronal nuclear inclusions indicator

Indicator of the presence of cortical neuronal nuclear inclusions (dystrophic neurites)

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17210 Problem Behaviours Assessment - Short Form (PBA-S) - perseverative thinking behaviour worst score

The worst score for Perseverative Thinking or Behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08876 Risk Factor Questionnaire (RFQ-U) - fungicide exposure 66 plus age frequency

The frequency of exposure to fungicides from age 66 onward in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09313 Apathy Scale (AS) - Neutral mood scale

The scale related to subject's self reflection on their own mood and attitude towards the life that surrounds them, as part of the Apathy Scale (AS) form

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C09125 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure 56 65 age indicator

The indicator whether there was work exposure to pesticides from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08171 Diffuse plaques density category

Density of diffuse plaques (plaques with non-compact amyloid and no apparent dystrophic neurites)

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08960 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure crops 26 35 age text

The description of any pesticides used on crops while working in farming or ranching from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09250 Risk Factor Questionnaire (RFQ-U) - work cartridge respirator or gas mask use indicator

The indicator of whether the participant/subject wore a cartridge respirator or gas mask more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08738 Risk Factor Questionnaire (RFQ) - age stopped regularly using adhesives period 2 value

Age when the participant stopped regularly using adhesives period 2 as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09085 Risk Factor Questionnaire (RFQ-U) - number years pesticide exposure work 46 55 age count

The total number of years during which participant/subject held a job with pesticide exposure from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
Displaying 51 - 75 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.