CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 427

Operations

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1269-C20363	C20363	Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale	The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1212-C08098	C08098	Influenza vaccine received frequency type	Type of frequency with which the participant/subject has received the influenza vaccine since initial vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08167	C08167	Brain abnormality microscopic type	Type of microscopic brain abnormality identified through staining	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C08001	C08001	Family history relative type biological sample in repository indicator	Indicator of whether the participant's family member has donated biological sample(s) to a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1236-C14961	C14961	Imaging excitation number	Number of times each line of k-space data is acquired during the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15072	C15072	Brain atrophy medulla oblongata inferior olivary nucleus severity result	Quantitative result of the severity of neuronal loss in the inferior olivary nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C18989	C18989	Huntingtons Disease motor symptom first appeared self report other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17758	C17758	Striatum atrophy hypothalamus atrophy severity result	Quantitative result of the severity of atrophy located in the hypothalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C17749	C17749	Imaging neurologic other data collected type	Other types of neuroimaging data that may have been collected during this scan visit	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15080	C15080	Brain atrophy cerebellum myelin loss in cerebellar white matter indicator	Indicator of myelin loss in the cerebellar white matter of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17766	C17766	Striatum atrophy hydrocephalus third ventricle severity result	Quantitative result of the severity of hydrocephalus located in the third ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C19063	C19063	Imaging neurologic other data collected other text	The free-text field related to 'Imaging neurologic other data collected type' specifying other text. Other types of neuroimaging data that may have been collected during this scan visit	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15088	C15088	Ischemic or hemorrhagic changes description text	The text description of the ischemic or hemorrhagic changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15096	C15096	Hemorrhages single or multiple vascular territories name	Name of the vascular territories where hemorrhages occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C02499	C02499	Imaging pulse sequence type	Type of imaging pulse sequence used	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15056	C15056	Brain atrophy substantia nigra pars reticulata neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pars reticulata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14956	C14956	Huntingtons Disease motor symptom first appeared informant type	The type of initial motor symptoms of Huntington disease (HD) described by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15104	C15104	Amyloid angiopathy stain type	Type of stain used to identify cerebral amyloid angiopathy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15064	C15064	Brain atrophy nucleus coeruleus globosum neuronal tangles (GNT) severity result	Quantitative result of the severity of GNT in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17736	C17736	Symptoms first appeared informant status	The status whether the first motor symptom(s) were noted by the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17398	C17398	Specimen other postmortem text	Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F2370-C53906	C53906	Stroop Color and Word Test (SCW) - Color word residual score	Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1237-C15034	C15034	Brain atrophy amygdala neuronal loss severity result	Quantitative result of the severity of neuronal loss in the amygdala	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20372	C20372	Pittsburgh Sleep Quality Index (PSQI) - Sleep quality past month scale	Rating of overall sleep quality past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease

Displaying 301 - 325 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.