CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08111 Preschool hour per week value

Approximate hours per week the participant/subject attended preschool as a child

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08158 Brain weight measurement

Weight of the participant's/subject's brain in grams

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C11139 Country of origin maternal ISO code

The ISO 3166-1 alpha-2 code for the participant's mother's country of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C53900 Stroop Color and Word Test (SCW) - Color raw score

Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15028 Brain atrophy cerebral cortex neuronal loss severity result

Quantitative result of the severity of neuronal loss located in the cerebral cortex

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20366 Pittsburgh Sleep Quality Index (PSQI) - Trouble stay awake past month scale

The scale to which the subject had trouble staying awake while driving, eating meals, or engaging in social activity past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08101 Pneumonia episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the pneumonia episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C08170 Neuritic plaque density category

Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores)

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14944 Family history relative age value

Value for participant's/subject's family member's current age

Supplemental Family History Huntington's Disease Huntington's Disease
C53952 Stroop Color and Word Test (SCW) - Interference T score

Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C15036 Brain atrophy neuronal loss and fibrillary astrocytosis pontes griseum or gray matter caudo-lenticular bridges anatomic site

Anatomic site in the pontes griseum or gray matter caudo-lenticular bridges where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20374 Pittsburgh Sleep Quality Index (PSQI) - Other reason past month other text

The free-text entry for other reason(s) the subject reported having trouble sleeping in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08233 Drug or substance first illicit use date and time

Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C08185 Amyloid angiopathy severity scale

Whether or not amyloid deposits are present in the walls of the blood vessels of the central nervous system and if so, their severity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17682 Family history collection source informant specify type

The type of informant the family history data was collected from

Supplemental Family History Huntington's Disease Huntington's Disease
C15083 Brain atrophy cerebellum dentate nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the dentate nucleus of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18667 Data source other text

The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15091 Cortical infarcts single or multiple description text

The text description of the cortical microinfarcts

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15051 Brain atrophy cerebral white matter myelin loss indicator

Indicator of myelin loss in the cerebral white matter

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15099 Cortical laminar necrosis single or multiple vascular territories name

Name of the vascular territories where cortical laminar necrosis occurs

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08239 Imaging echo duration

Duration between the application of the 90 degree pulse and the peak of the echo signal, in milliseconds, during the spin echo and inversion recovery pulse sequences in imaging acquisition

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15059 Brain atrophy nucleus coeruleus neuronal loss indicator

Indicator of neuronal loss in the nucleus coeruleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14959 Diagnosis physician year date

The year the physician diagnosed the participant/ subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C15107 Huntingtons Disease diagnosis grade

The grade of severity of HD or amyloid angiopathy severity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C10570 Imaging contrast agent used indicator

Indicator of whether an imaging contrast agent was used for the scan

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
Displaying 276 - 300 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.