CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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CRF Name

Displaying 26 - 50 of 1756

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C09207	Risk Factor Questionnaire (RFQ-U) - work other herbicide use 66 onward age indicator	The indicator whether participant/subject used other herbicides at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Huntington's Disease	Huntington's Disease
C17221	Problem Behaviours Assessment - Short Form (PBA-S) - disoriented behaviour severity score	The severity score for disoriented behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)	Supplemental	Problem Behaviours Assessment HD - Short Version (PBA-s)	True	Huntington's Disease	Huntington's Disease
C09673	Food Frequency Questionnaire - (FFQ)-selenium daily dose	Dose per day of Selenium, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Huntington's Disease	Huntington's Disease
C09042	Risk Factor Questionnaire (RFQ-U) - work maneb mancozeb product use 36 45 age indicator	The indicator whether participant/subject used maneb or mancozeb products at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Huntington's Disease	Huntington's Disease
C16651	Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - sleep amount change measurement	The measurement of the change of amount of sleep needed over the last 5 years from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)	Supplemental	Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire	True	Huntington's Disease	Huntington's Disease
C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
C10471	Risk Factor Questionnaire (RFQ) - currently soldering indicator	Currently soldering as part of the Risk Factor Questionnaire for Toxicants	Supplemental	Risk Factor Questionnaire (RFQ) - Toxicants	True	Huntington's Disease	Huntington's Disease
C09167	Risk Factor Questionnaire (RFQ-U) - work oil use 56 65 age indicator	The indicator whether participant/subject used oil at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Huntington's Disease	Huntington's Disease
C20376	Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time	The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
C17705	Risk Factor Questionnaire (RFQ) - age 26 35 residential history residence street address text	Text specifying the partitipant's/subject's street address of residence from 26-35 years of age	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	True	Huntington's Disease	Huntington's Disease
C09002	Risk Factor Questionnaire (RFQ-U) - work rodenticide use 26 35 age indicator	The indicator whether participant/subject used rodenticides at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Huntington's Disease	Huntington's Disease
C17763	Striatum atrophy red nucleus atrophy status	Status of atrophy in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08612	Risk Factor Questionnaire (RFQ) - longest occupation 25 year second duty text	Text describing the participant's/subject's second of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation	Supplemental	Risk Factor Questionnaire (RFQ) - Occupation and Employment Status	True	Huntington's Disease	Huntington's Disease
C08780	Risk Factor Questionnaire (RFQ) - age stopped regularly weld braze or flame cut metals period 3 value	Age when the participant stopped regularly weld, braze, or flame cut metals period 3 as part of the Risk Factor Questionnaire for Toxicants	Supplemental	Risk Factor Questionnaire (RFQ) - Toxicants	True	Huntington's Disease	Huntington's Disease
C09862	Food Frequency Questionnaire - (FFQ)-baking sauteing fat indicator	Kind of fat the subject usually uses for baking and sautÉing at home this past year, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Huntington's Disease	Huntington's Disease
C08695	Risk Factor Questionnaire (RFQ) - age 36 45 residential history residence country text	Text specifying the participant's/subject's country of residence from 36-45 years of age	Supplemental	Risk Factor Questionnaire (RFQ) - Residential History	True	Huntington's Disease	Huntington's Disease
C08234	Drug or substance last illicit use date and time	Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
C09822	Food Frequency Questionnaire - (FFQ)-candy without chocolate indicator	Average total amount of candy without chocolate the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Huntington's Disease	Huntington's Disease
C09721	Food Frequency Questionnaire - (FFQ)-apple juice indicator	Average total amount of apple juice or cider the subject has had this past year, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Huntington's Disease	Huntington's Disease
C17748	Imaging neurologic other data collected indicator	The indicator whether other types of neuroimaging data were collected during this scan visit	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
C09215	Risk Factor Questionnaire (RFQ-U) - work ziram product use 66 onward age indicator	The indicator whether participant/subject used ziram products at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Huntington's Disease	Huntington's Disease
C10403	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep tablets past month per tablet dose	Per tablet dose of sleeping tablets used in the last month	Supplemental	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep)	True	Huntington's Disease	Huntington's Disease
C09681	Food Frequency Questionnaire - (FFQ)-calcium dolomite tums indicator	Calcium or Dolomite (including Tums) indicator, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Huntington's Disease	Huntington's Disease
C09050	Risk Factor Questionnaire (RFQ-U) - work DDT use 36 45 age indicator	The indicator whether participant/subject used DDT at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Huntington's Disease	Huntington's Disease
C16659	Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - night cramp limbs wake up indicator	The yes/no indicator for painful muscle cramps in arms or legs that wake you up at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)	Supplemental	Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire	True	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.