CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C14940	Cytosine adenine guanine repeat known indicator	Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Huntington's Disease	Huntington's Disease
C17745	Cytosine adenine guanine repeats information source type	The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C17747	Cytosine Adenine Guanine repeat results provider type	The type of provider who repeated the Cytosine Adenine Guanine (CAG) results	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C17746	Molecular study lab name	The name of the laboratory that completed the molecular study to determine number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C19062	Cytosine Adenine Guanine repeat results provider other text	The free-text field related to 'Cytosine Adenine Guanine repeat results provider type' specifying other text. The type of provider who repeated the Cytosine Adenine Guanine (CAG) results	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
C19061	Cytosine Adenine Guanine repeats information source other text	The free-text field related to 'Cytosine adenine guanine repeats information source type' specifying other text. The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Supplemental-Highly Recommended	Demographics	False	Huntington's Disease	Huntington's Disease
C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C14939	Huntingtons disease risk grade	Participant's/subject's risk for HD based on number of CAG repeats	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C08087	Sibling death age value	Age of sibling when he/she died	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
C53899	Stroop Color and Word Test (SCW) - Word T score	Score (T) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
C15027	Brain atrophy cortex neuronal loss indicator	Indicator of neuronal loss in the cerebral cortex	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C20365	Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale	The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
C08169	Antibody stain method name	Name of staining method used for antibodies	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C08110	Preschool end date	Date participant/subject ended preschool	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
C11138	Country of origin paternal ISO code	The ISO 3166-1 alpha-2 code for the participant's father's country of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
C53951	Stroop Color and Word Test (SCW) - Color word T score	Score (T) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.