CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Displaying 1 - 25 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14936 Cytosine adenine guanine repeats larger allele number

The number of cytosine adenine guanine (CAG) repeats on the larger allele

Supplemental-Highly Recommended DNA Elements - Information from the Laboratory Huntington's Disease Huntington's Disease
C19061 Cytosine Adenine Guanine repeats information source other text

The free-text field related to 'Cytosine adenine guanine repeats information source type' specifying other text. The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Supplemental-Highly Recommended Demographics Huntington's Disease Huntington's Disease
C14695 Berg Balance Scale (BBS) - unsupport sit scale

The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14703 Berg Balance Scale (BBS) - turn around scale

The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14937 Cytosine adenine guanine repeats smaller allele number

The number of cytosine adenine guanine (CAG) repeats on the smaller allele

Supplemental-Highly Recommended DNA Elements - Information from the Laboratory Huntington's Disease Huntington's Disease
C14936 Cytosine adenine guanine repeats larger allele number

The number of cytosine adenine guanine (CAG) repeats on the larger allele

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14696 Berg Balance Scale (BBS) - stand sit scale

The scale for assessment of standing to sitting based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14937 Cytosine adenine guanine repeats smaller allele number

The number of cytosine adenine guanine (CAG) repeats on the smaller allele

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14697 Berg Balance Scale (BBS) - transfer scale

The scale for assessment of transfers based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14936 Cytosine adenine guanine repeats larger allele number

The number of cytosine adenine guanine (CAG) repeats on the larger allele

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C14704 Berg Balance Scale (BBS) - alternate foot step up scale

The scale for assessment of placing alternate foot on step or stool while standing unsupported based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14938 Cytosine adenine guanine repeat test indicator

Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14698 Berg Balance Scale (BBS) - unsupport stand closed eyes scale

The scale for assessment of standing unsupported with eyes closed based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14937 Cytosine adenine guanine repeats smaller allele number

The number of cytosine adenine guanine (CAG) repeats on the smaller allele

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C14705 Berg Balance Scale (BBS) - unsupport stand front foot scale

The scale for assessment of standing unsupported one foot in front based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14939 Huntingtons disease risk grade

Participant's/subject's risk for HD based on number of CAG repeats

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14699 Berg Balance Scale (BBS) - unsupport feet together scale

The scale for assessment of standing unsupported with feet together based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14938 Cytosine adenine guanine repeat test indicator

Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C14706 Berg Balance Scale (BBS) - scale total score

The total score on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C14940 Cytosine adenine guanine repeat known indicator

Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14700 Berg Balance Scale (BBS) - reach forward scale

The scale for assessment of reaching forward with outstretched arm while standing based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Huntington's Disease Huntington's Disease
C17745 Cytosine adenine guanine repeats information source type

The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C17394 Berg Balance Scale (BBS) - stand one leg scale

The scale for assessment of standing on one leg based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities

Supplemental-Highly Recommended Berg Balance Scale (BBS) Huntington's Disease Huntington's Disease
Displaying 1 - 25 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.