CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Displaying 1 - 25 of 1756
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C14938 Cytosine adenine guanine repeat test indicator

Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C14940 Cytosine adenine guanine repeat known indicator

Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C17747 Cytosine Adenine Guanine repeat results provider type

the type of provider who repeated the Cytosine Adenine Guanine (CAG) results.

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C17745 Cytosine adenine guanine repeats information source type

The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C19062 Cytosine Adenine Guanine repeat results provider other text

The free-text field related to 'Cytosine Adenine Guanine repeat results provider type' specifying other text. The type of provider who repeated the Cytosine Adenine Guanine (CAG) results.

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C17746 Molecular study lab name

The name of the laboratory that completed the molecular study to determine number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C14936 Cytosine adenine guanine repeats larger allele number

The number of cytosine adenine guanine (CAG) repeats on the larger allele.

Supplemental-Highly Recommended DNA Elements - Information from the Laboratory Huntington's Disease Huntington's Disease
C19061 Cytosine Adenine Guanine repeats information source other text

The free-text field related to 'Cytosine adenine guanine repeats information source type' specifying other text. The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C14937 Cytosine adenine guanine repeats smaller allele number

The number of cytosine adenine guanine (CAG) repeats on the smaller allele.

Supplemental-Highly Recommended DNA Elements - Information from the Laboratory Huntington's Disease Huntington's Disease
C14936 Cytosine adenine guanine repeats larger allele number

The number of cytosine adenine guanine (CAG) repeats on the larger allele.

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14937 Cytosine adenine guanine repeats smaller allele number

The number of cytosine adenine guanine (CAG) repeats on the smaller allele.

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Supplemental-Highly Recommended Demographics Huntington's Disease Huntington's Disease
C00015 Education year count

Number of years of education completed (age 5 and beyond)

Supplemental-Highly Recommended General Core Huntington's Disease Huntington's Disease
C14936 Cytosine adenine guanine repeats larger allele number

The number of cytosine adenine guanine (CAG) repeats on the larger allele.

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C14938 Cytosine adenine guanine repeat test indicator

Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C14937 Cytosine adenine guanine repeats smaller allele number

The number of cytosine adenine guanine (CAG) repeats on the smaller allele.

Supplemental-Highly Recommended DNA Elements - Information from the Study Investigator Huntington's Disease Huntington's Disease
C14939 Huntingtons disease risk grade

Participant's/subject's risk for HD based on number of CAG repeats

Supplemental-Highly Recommended DNA Elements - Participant/Subject Information Huntington's Disease Huntington's Disease
C09754 Food Frequency Questionnaire - (FFQ)-Iceberg head lettuce indicator

Average total amount of iceberg or head lettuce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C10222 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - age zero ten city location

Location of the city that the participant/subject spent the majority of his or her time from 0-10 years, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) Huntington's Disease Huntington's Disease
C10406 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night lying-awake past month scale

Pre-specified scales for lying awake at night in the past month

Supplemental Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep) Huntington's Disease Huntington's Disease
C09671 Food Frequency Questionnaire - (FFQ)-vitamin E type

Vitamin E type, as part of Food Frequency Questionnaire -(FFQ)

Supplemental Food Frequency Questionnaire (FFQ) Huntington's Disease Huntington's Disease
C16662 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - agitated night indicator

The yes/no indicator for getting very agitated at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire Huntington's Disease Huntington's Disease
C14983 Brain atrophy coronal sections amygdala status

Status of amygdala atrophy of the coronal sections upon gross examination.

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17192 Problem Behaviours Assessment - Short Form (PBA-S) - depressed mood worst rating score

The worst score for severity of Depressive Mood as part of the Problem Behaviours Assessment - Short Form (PBA-S).

Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) Huntington's Disease Huntington's Disease
C08858 Risk Factor Questionnaire (RFQ-U) - fungicide exposure 36 45 age frequency

The frequency of exposure to fungicides from ages 36 to 45 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) Huntington's Disease Huntington's Disease
Displaying 1 - 25 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.