CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

Displaying 1 - 25 of 1756

1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C14940	Cytosine adenine guanine repeat known indicator	Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C17747	Cytosine Adenine Guanine repeat results provider type	the type of provider who repeated the Cytosine Adenine Guanine (CAG) results.	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C17745	Cytosine adenine guanine repeats information source type	The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C19062	Cytosine Adenine Guanine repeat results provider other text	The free-text field related to 'Cytosine Adenine Guanine repeat results provider type' specifying other text. The type of provider who repeated the Cytosine Adenine Guanine (CAG) results.	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C17746	Molecular study lab name	The name of the laboratory that completed the molecular study to determine number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele.	Supplemental-Highly Recommended	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
C19061	Cytosine Adenine Guanine repeats information source other text	The free-text field related to 'Cytosine adenine guanine repeats information source type' specifying other text. The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele.	Supplemental-Highly Recommended	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele.	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele.	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C00031	Race expanded category	Category of race(s) or region(s) the participant/subject most closely identifies with	Supplemental-Highly Recommended	Demographics	False	Huntington's Disease	Huntington's Disease
C00015	Education year count	Number of years of education completed (age 5 and beyond)	Supplemental-Highly Recommended	General Core	False	Huntington's Disease	Huntington's Disease
C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele.	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele.	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
C14939	Huntingtons disease risk grade	Participant's/subject's risk for HD based on number of CAG repeats	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
C09754	Food Frequency Questionnaire - (FFQ)-Iceberg head lettuce indicator	Average total amount of iceberg or head lettuce the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Huntington's Disease	Huntington's Disease
C10222	Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - age zero ten city location	Location of the city that the participant/subject spent the majority of his or her time from 0-10 years, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)	Supplemental	PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B)	True	Huntington's Disease	Huntington's Disease
C10406	Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night lying-awake past month scale	Pre-specified scales for lying awake at night in the past month	Supplemental	Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep)	True	Huntington's Disease	Huntington's Disease
C09671	Food Frequency Questionnaire - (FFQ)-vitamin E type	Vitamin E type, as part of Food Frequency Questionnaire -(FFQ)	Supplemental	Food Frequency Questionnaire (FFQ)	True	Huntington's Disease	Huntington's Disease
C16662	Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - agitated night indicator	The yes/no indicator for getting very agitated at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).	Supplemental	Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire	True	Huntington's Disease	Huntington's Disease
C14983	Brain atrophy coronal sections amygdala status	Status of amygdala atrophy of the coronal sections upon gross examination.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C17192	Problem Behaviours Assessment - Short Form (PBA-S) - depressed mood worst rating score	The worst score for severity of Depressive Mood as part of the Problem Behaviours Assessment - Short Form (PBA-S).	Supplemental	Problem Behaviours Assessment HD - Short Version (PBA-s)	True	Huntington's Disease	Huntington's Disease
C08858	Risk Factor Questionnaire (RFQ-U) - fungicide exposure 36 45 age frequency	The frequency of exposure to fungicides from ages 36 to 45 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Home)	True	Huntington's Disease	Huntington's Disease

Displaying 1 - 25 of 1756

1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.