CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 226 - 250 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C15072 Brain atrophy medulla oblongata inferior olivary nucleus severity result

Quantitative result of the severity of neuronal loss in the inferior olivary nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09043 Risk Factor Questionnaire (RFQ-U) - work S compound use 36 45 age indicator

The indicator whether participant/subject used sulfur compounds at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C18989 Huntingtons Disease motor symptom first appeared self report other text

The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C10472 Risk Factor Questionnaire (RFQ) - currently working around metal dust fumes indicator

Currently working around metal dust or fumes as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09168 Risk Factor Questionnaire (RFQ-U) - work parathion product use 56 65 age indicator

The indicator whether participant/subject used parathion products at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C17706 Risk Factor Questionnaire (RFQ) - age 36 45 residential history residence street address text

Text specifying the partitipant's/subject's street address of residence from 36-45 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C09003 Risk Factor Questionnaire (RFQ-U) - work other rodenticide use 26 35 age indicator

The indicator whether participant/subject used other rodenticides at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08613 Risk Factor Questionnaire (RFQ) - longest occupation 25 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C08781 Risk Factor Questionnaire (RFQ) - ever weld cut braze stainless steel indicator

Has the participant ever weld, cut, braze stainless steel as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09863 Food Frequency Questionnaire - (FFQ)-fried stir-fried oil sauteed home indicator

Frequency with which the subject ears food fried, stir-friend in oil, or sautÉed at home this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08696 Risk Factor Questionnaire (RFQ) - age 36 45 residential history residence location type

Type describing the participant's/subject's location of residence from 36-45 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C09130 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure crops 56 65 age indicator

The indicator whether participant/subject exposed to pesticides on crops while working in farming or ranching from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08179 Cortical laminar necrosis indicator

Indicator of the presence of selective cortical necrosis of middle and lower cortical lamina most often associated with cerebral hypoperfusion and concentrated in border zones between major cerebral arteries

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C20370 Pittsburgh Sleep Quality Index (PSQI) - Sleep medication past month scale

The scale of medication use to help sleep (prescribed or 'over the counter') past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C08965 Risk Factor Questionnaire (RFQ-U) - landscaping work 26 35 age indicator

The indicator whether participant/subject worked in landscaping/gardening/groundskeeping from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09255 Risk Factor Questionnaire (RFQ-U) - work sought medical care indicator

The indicator of seeking medical attention after exposure to pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08743 Risk Factor Questionnaire (RFQ) - use superglue indicator

Ever use Superglue as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09090 Risk Factor Questionnaire (RFQ-U) - work metolachlor alachlor acetochlor product use 46 55 age indicator

The indicator whether participant/subject used metolachlor, alachlor, or acetochlor products at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C17700 Risk Factor Questionnaire (RFQ) - weight age 40 unit of measure

Unit of measure used to record weight at age 40 as part of the Risk Factor Questionnaire (RFQ) - Height and Weight

 Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight True Huntington's Disease Huntington's Disease
C08925 Risk Factor Questionnaire (RFQ-U) - work benomyl product use birth 25 age indicator

The indicator whether participant/subject used benomyl products at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08076 Breastfed indicator

Indicator of whether the participant/subject was breastfed by his/her mother

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C08565 Risk Factor Questionnaire (RFQ) - taken Isradipine Dynacirc reason

Reason took Isradipine or Dynacirc as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09785 Food Frequency Questionnaire - (FFQ)-other cooked breakfast cereal indicator

Average total amount of other cooked breakfast cereal the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16643 Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy stop age year indicator

If the participant/subject currently takes or does not know when she stopped taking hormone replacement therapy, indicate as Currently Take or Don't Know as part of the risk factor questionnaire female health history

 Supplemental Risk Factor Questionnaire (RFQ) - Female Health History True Huntington's Disease Huntington's Disease
C08524 36-item Short Form Health Survey (SF-36) - Times nervous score

Score of times being a very nervous person during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
Displaying 226 - 250 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.