CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport-Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 201 - 225 of 394
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C14943 Family history relative deceased indicator

Indicator of whether family member is deceased

 Supplemental Family History False Huntington's Disease Huntington's Disease
C17755 Striatum atrophy claustrum atrophy status

Status of atrophy in the claustrum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15077 Brain atrophy cerebellum cortical neuronal loss in effective layer indicator

Indicator of cortical neuronal loss in the effective layer (Purkinje cells) of the cerebellum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

 Supplemental Non-prescribed Drug Use Questionnaire False Huntington's Disease Huntington's Disease
C17681 Family history collection source

The source of collected family history data

 Supplemental Family History False Huntington's Disease Huntington's Disease
C17763 Striatum atrophy red nucleus atrophy status

Status of atrophy in the red nucleus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15085 Silver staining methods type

Silver staining methods used for identifying Alzheimer disease type changes

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17687 Non-prescribed controlled psychoactive drug substance sedative barbiturate text

The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

 Supplemental Non-prescribed Drug Use Questionnaire False Huntington's Disease Huntington's Disease
C08079 Full biological brothers count

Count of full biological brothers the participant/subject has

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C15093 Lacunes singe or multiple vascular territories name

Name of the vascular territories where lacunes occur

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15053 Brain atrophy substantia nigra pars compacta neuronal loss indicator

Indicator of neuronal loss in the pars compacta of the substantia nigra

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14951 Motor symptom first appeared self report date and time

Date of the first motor symptom(s) as noted by the participant/subject

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C08087 Sibling death age value

Age of sibling when he/she died

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

 Supplemental Godin Leisure-Time Exercise Questionnaire False Huntington's Disease Huntington's Disease
C18993 Macroscopical examination fixed brain other text

The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C15035 Brain atrophy neuronal loss fibrillary astrocytosis caudate nucleus anatomic site

Anatomic site in the caudate nucleus (CN) where neuronal loss and/or fibrillary astrocytosis is/are present

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08181 Other pathology ischemic vascular disease indicator

Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C20356 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute scale

The scaled duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C15043 Brain atrophy thalamus neuronal loss indicator

Indicator of neuronal loss in the thalamus

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C14975 Brain lobe examination anatomic site

Anatomic site examined in the brain

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C53898 Stroop Color and Word Test (SCW) - Word residual score

Score (Residual) of the word test, as part of the Stroop Color and Word Test (SCW)

 Supplemental Stroop Test True Huntington's Disease Huntington's Disease
C20364 Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale

The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C08240 Imaging flip angle measurement

Measurement of the angle, in degrees, over which the radio frequency changes proton spin angle

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
Displaying 201 - 225 of 394

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.