CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 176 - 200 of 1756
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08859 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 36 45 age indicator

The indicator whether there was exposure to herbicides from ages 36 to 45 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C18995 Brain atrophy thalamus neuronal loss nuclei other text

The free-text field related to 'Brain atrophy thalamus neuronal loss nuclei name' specifying other text. Name of the nuclei in the thalamus involved in the neuronal loss

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09716 Food Frequency Questionnaire - (FFQ)-bananas indicator

Average total amount of bananas the subject has had over the past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08761 Risk Factor Questionnaire (RFQ) - use freon indicator

Ever use avgas or jet fuel as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09108 Risk Factor Questionnaire (RFQ-U) - work dieldrin product use 46 55 age indicator

The indicator whether participant/subject used dieldrin products at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09841 Food Frequency Questionnaire - (FFQ)-walnuts indicator

Average total amount of walnuts the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08149 Diagnosis final clinical death type

Physician's final clinical diagnosis for the participant/subject

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08676 Risk Factor Questionnaire (RFQ) - age 18 25 residential history residence location type

Type describing the participant's/subject's location of residence from 18-25 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08943 Risk Factor Questionnaire (RFQ-U) - work other insecticide use birth 25 age indicator

The indicator whether participant/subject used other insecticides at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09233 Risk Factor Questionnaire (RFQ-U) - work fumigant use 66 onward age indicator

The indicator whether participant/subject used fumigants at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08109 Preschool start date

Date participant/subject first started preschool

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C09676 Food Frequency Questionnaire - (FFQ)-iron daily dose

Dose per day of Iron, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08583 Risk Factor Questionnaire (RFQ) - age stopped regularly taking other CCB medication period 3 value

Age when the participant stopped regularly taking other CCB medication period 3 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09068 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure 46 55 age indicator

The indicator whether there was work exposure to pesticides from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08903 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure crops birth 25 age text

The description of any pesticides used on crops while working in farming or ranching from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C11136 Country of origin paternal name

Father's country or countries of origin

 Supplemental Demographics False Huntington's Disease Huntington's Disease
C08543 Risk Factor Questionnaire (RFQ) - regularly taken aspirin 6 months indicator

Has the participant regularly taken aspirin medications, at least two pills per week for 6 months or longer? as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C10415 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep asleep day problem past month frequency

Pre-specified frequencies for falling asleep during the day as a problem in the past month

 Supplemental Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep) True Huntington's Disease Huntington's Disease
C16671 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - act out dreams asleep indicator

The yes/no indicator for acting out dreams e.g. punch or shout while asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C08503 36-item Short Form Health Survey (SF-36) - Health limited vigorous activities score

Score of surveyee-reported limited vigorous activities due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C14992 Brain atrophy striatum status cribrosus or lacunaris severity result

Quantitative result of the severity of atrophy located in the status cribrosus or lacunaris, or both.

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17201 Problem Behaviours Assessment - Short Form (PBA-S) - irritability worst score

The worst score for irritability over the last four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S).

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08867 Risk Factor Questionnaire (RFQ-U) - insecticide exposure 56 65 age indicator

The indicator whether there was exposure to insecticides from ages 56 to 65 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09304 Apathy Scale (AS) - Condition concern scale

The scale related to subject's concern for ones own condition, as part of the Apathy Scale (AS) form.

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C09724 Food Frequency Questionnaire - (FFQ)-regular orange juice indicator

Average total amount or orange juice regular (not calcium fortified) the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
Displaying 176 - 200 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.