CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08562 Risk Factor Questionnaire (RFQ) - taken Nicardipine Cardene Carden SR indicator

Taken Nicardipine or Cardene, Carden SR as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09782 Food Frequency Questionnaire - (FFQ)-other fish indicator

Average total amount of other fish e.g., cod, haddock, halibut the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16640 Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy start age year value

Age or year participant/subject started taking hormone replacement therapy as part of the risk factor questionnaire female health history.

 Supplemental Risk Factor Questionnaire (RFQ) - Female Health History True Huntington's Disease Huntington's Disease
C08521 36-item Short Form Health Survey (SF-36) - Bodily pain score

Score of bodily pain during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C10245 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - occupation duration

Duration of how long the participant/subject held his or her longest occupation before being diagnosed with Parkinson's Disease, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C09742 Food Frequency Questionnaire - (FFQ)-raw carrots indicator

Average total amount of raw carrots the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C15039 Brain atrophy fibrillary astrocytosis nucleus accumbens severity result

Quantitative result of the severity of firbrillary astrocytosis in the nucleus accumbens

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17220 Problem Behaviours Assessment - Short Form (PBA-S) - hallucinations modality type

The modality type of hallucinations as part of the Problem Behaviours Assessment - Short Form (PBA-S).

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08886 Risk Factor Questionnaire (RFQ-U) - home protective equipment usual indicator

The indicator of whether the participant/subject wore protective equipment other than gloves more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C18060 Ohio State TBI Method Short Form (OSUTBIMS) - longest knock out time

Longest amount of time that the subject was knocked out for as part of Ohio State TBI Method Short Form (OSUTBIMS).

 Supplemental Ohio State University TBI Identification Method Short Form True Huntington's Disease Huntington's Disease
C16650 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - awaken times night count

The number of times awakening on a typical night sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C09135 Risk Factor Questionnaire (RFQ-U) - forestry work 56 65 age indicator

The indicator whether participant/subject worked in forestry from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14971 Macroscopical examination fresh brain source

The part(s) of the fresh brain used for macroscopical examination

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C20375 Pittsburgh Sleep Quality Index (PSQI) - Total score

The total score, as part of the Pittsburgh Sleep Quality Index (PSQI).

 Supplemental Pittsburgh Sleep Quality Index (PSQI) False Huntington's Disease Huntington's Disease
C08970 Risk Factor Questionnaire (RFQ-U) - other pesticide exposure work 26 35 age text

The description of work in some other field with pesticide exposure from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08846 Risk Factor Questionnaire (RFQ-U) - fungicide exposure birth 25 age frequency

The frequency of exposure to fungicides during the first 25 years of a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C17762 Striatum atrophy subthalamic nucleus atrophy severity result

Quantitative result of the severity of atrophy located in the subthalamic nucleus.

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08748 Risk Factor Questionnaire (RFQ) - started using solvents or degreasers value

Age/year the participant started using solvents or degreasers as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09095 Risk Factor Questionnaire (RFQ-U) - work fungicide use 46 55 age indicator

The indicator whether participant/subject used fungicides at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08663 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence state text

Text specifying the participant's/subject's first state of residence

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08930 Risk Factor Questionnaire (RFQ-U) - work ziram product use birth 25 age indicator

The indicator whether participant/subject used ziram products at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08081 Twin sibling type

Type of twin the participant/subject has

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C08570 Risk Factor Questionnaire (RFQ) - year not regularly taking CCB medication indicator

Periods of a year or more when the participant did NOT regularly take CCB medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09790 Food Frequency Questionnaire - (FFQ)-bagels English muffins rolls indicator

Average total amount of bagels, english muffins, or rolls the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16611 Risk Factor Questionnaire (RFQ) - significant injury treatment indicator

The indicator whether a participant has had any significant injury to cause him/her to seek treatment as part of the risk factor questionnaire (RFQ).

 Supplemental Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
Displaying 151 - 175 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.