CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 151 - 175 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C15025 Brain atrophy striatum cerebellum status

Status of cerebellum atrophy in the striatum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17206 Problem Behaviours Assessment - Short Form (PBA-S) - lack initiative apathy frequency score

The frequency score for lack of initiative (apathy) as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08872 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 56 65 age frequency

The frequency of exposure to herbicides from ages 56 to 65 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09309 Apathy Scale (AS) - Motivation scale

The scale related to the subject's self motivation, as part of the Apathy Scale (SC) form

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C09121 Risk Factor Questionnaire (RFQ-U) - work other fumigant use 46 55 age indicator

The indicator whether participant/subject used other fumigants at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08167 Brain abnormality microscopic type

Type of microscopic brain abnormality identified through staining

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08956 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure other 26 35 age indicator

The indicator whether work exposure to pesticides from age 26 to 35 was other than through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09246 Risk Factor Questionnaire (RFQ-U) - work protective equipment usual indicator

The indicator of whether the participant/subject wore protective equipment other than gloves more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08734 Risk Factor Questionnaire (RFQ) - started using adhesives value

Age/year the participant started using adhesives as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09081 Risk Factor Questionnaire (RFQ-U) - pest control work 46 55 age indicator

The indicator whether participant/subject worked in pest control or as an exterminator from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08826 Risk Factor Questionnaire (RFQ) - height and weight age 60 body type code

Code for the patient's body type at age 60 according to the pictogram as defined by the Risk Factor Questionnaire (RFQ) - Height and Weight

 Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight True Huntington's Disease Huntington's Disease
C08916 Risk Factor Questionnaire (RFQ-U) - work herbicide exposure birth 25 age indicator

The indicator whether participant/subject was exposed to herbicides at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14947 Family history relative type biological sample in repository count

The number of family members that have samples in a repository

 Supplemental Family History False Huntington's Disease Huntington's Disease
C08556 Risk Factor Questionnaire (RFQ) - taken Amlodipine Norvasc indicator

Taken Amlodipine or Norvasc as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09776 Food Frequency Questionnaire - (FFQ)-liver beef calf pork indicator

Average total amount of liver: beef, calf or pork the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16634 Risk Factor Questionnaire (RFQ) - female health history-age year menstrual period stopped natural value

The age (or year) the participant's/subject's periods stopped naturally or by menopause as part of the Risk factor questionnaire Female Health History

 Supplemental Risk Factor Questionnaire (RFQ) - Female Health History True Huntington's Disease Huntington's Disease
C08648 Risk Factor Questionnaire (RFQ) - age 26 35 sleep duration indicator

Hours of sleep the subject got in a week between the ages of 26 and 35, as part of the Risk Factor Questionnaire (RFQ)

 Supplemental Risk Factor Questionnaire (RFQ) - All True Huntington's Disease Huntington's Disease
C08515 36-item Short Form Health Survey (SF-36) - Limited work activities physical health indicator

Indicator for surveyee-reported limited work or activities as a result of physical health during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C16684 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - treatment medical indicator

The yes/no indicator for taking treatment for a medical condition from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C10242 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - parkinson diagnosis indicator

Indicator for whether the participant/subject has ever been diagnosed with Parkinson's Disease, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C09736 Food Frequency Questionnaire - (FFQ)-tofu burgers soybeans other soy protein indicator

Average total amount of tofu, soy burgers, soybeans, miso, or other soy protein the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C15033 Brain atrophy amygdala neuronal loss indicator

Indicator of neuronal loss in the amygdala

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17214 Problem Behaviours Assessment - Short Form (PBA-S) - delusions paranoid thinking severity score

Scores for severities of Delusions/Paranoid Thinking as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08880 Risk Factor Questionnaire (RFQ-U) - pesticide exposure unusually high description text

The description of any exposure to an unusually high amount of pesticides in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C17769 Rater name

Name of rater

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
Displaying 151 - 175 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.