CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 126 - 150 of 394
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08156 Specimen other postmortem indicator

Indicator whether other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18989 Huntingtons Disease motor symptom first appeared self report other text

The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C08097 Influenza vaccine first receive age value

Age participant/subject received his/her first influenza vaccination

Supplemental Infection History Huntington's Disease Huntington's Disease
C08000 Family history relative type total membercount

Count of total family members and ancestors for the specified relative type

Supplemental Family History Huntington's Disease Huntington's Disease
C15026 Brain atrophy cerebellum severity result

Quantitative result of the severity of cerebellum atrophy located in the striatum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17749 Imaging neurologic other data collected type

Other types of neuroimaging data that may have been collected during this scan visit

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C08168 Immunohistochemistry stain method name

Name of staining method used for immunohistochemistry

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08117 Meningitis or encephalitis episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C14948 Family history relative type no biological sample in repository count

The number of family members that do not have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C15034 Brain atrophy amygdala neuronal loss severity result

Quantitative result of the severity of neuronal loss in the amygdala

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C19063 Imaging neurologic other data collected other text

The free-text field related to 'Imaging neurologic other data collected type' specifying other text. Other types of neuroimaging data that may have been collected during this scan visit

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C08179 Cortical laminar necrosis indicator

Indicator of the presence of selective cortical necrosis of middle and lower cortical lamina most often associated with cerebral hypoperfusion and concentrated in border zones between major cerebral arteries

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17684 Non-prescribed controlled psychoactive drug substance stimulant cocaine text

The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C08076 Breastfed indicator

Indicator of whether the participant/subject was breastfed by his/her mother

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C15042 Brain atrophy fibrillary astrocytosis severity result

Quantitative result of the severity of fibrillary astrocytosis in each location of the caudate nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14974 Brain atrophy surface status

Status of cerebral atrophy on external surface of the brain upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C02499 Imaging pulse sequence type

Type of imaging pulse sequence used

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C18670 Subscribed drug or substance illicitly used category other text

The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C14956 Huntingtons Disease motor symptom first appeared informant type

The type of initial motor symptoms of Huntington disease (HD) described by the informant

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C08084 Sibling gender type

Reported gender of the sibling. Gender is the socially constructed identity of sex

Supplemental History of Early Exposure to Huntington's disease Huntington's Disease Huntington's Disease
C15050 Brain atrophy red nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the red nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14982 Brain atrophy coronal sections hippocampal formation severity result

Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08244 Imaging slice thickness value

Value of the thickness of the slice measured in millimeters (mm)

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C08147 Data source

Source of the data provided on the case report form

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17736 Symptoms first appeared informant status

The status whether the first motor symptom(s) were noted by the person completing the form

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
Displaying 126 - 150 of 394

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.