CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 101 - 125 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18678 Family history medical condition type other text

The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken

Supplemental Family History Huntington's Disease Huntington's Disease
C15090 Cortical infarcts single or multiple vascular territories name

Name of the vascular territories where cortical microinfarcts occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08242 Imaging acquisition duration

Duration of the imaging scan in minutes

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C17734 Person completing the form title text

Title/Credentials/Training of the person completing the form

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C08166 Brain atrophy Braak and Braak neurofibrillary stage

Stages I and II correspond to NFT limited to the transentorhinal/entorhinal region; Stages III and IV to limbic stages; and Stages V and VI to neocortical stages. Stage VI implies involvement of primary cortices

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18995 Brain atrophy thalamus neuronal loss nuclei other text

The free-text field related to 'Brain atrophy thalamus neuronal loss nuclei name' specifying other text. Name of the nuclei in the thalamus involved in the neuronal loss

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15032 Brain atrophy hippocampal formation neuronal loss severity result

Quantitative result of the severity of neuronal loss in the hippocampal formation

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C58781 Gender identity type other text

The free-text field related to 'Gender identity type', specifying other text

Supplemental General Core Huntington's Disease Huntington's Disease
C08176 Lacunes single or multiple indicator

Indicator of the presence of one or more cystic/old infarcts or hemorrhages 1-cm or less in diameter that are usually grossly identified and in the distribution of small parenchymal vessels, most often in basal ganglia, thalamus, pons, cerebellum and cerebral white matter

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20358 Pittsburgh Sleep Quality Index (PSQI) - Awaken bathroom use past month scale

The scale to which the subject had to get up to use the bathroom during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C15040 Brain atrophy neuronal loss and fibrillary astrocytosis globus pallidus anatomic site

Anatomic site in the globus pallidus where neuronal loss and/or fibrillary astrocytosis is/are present

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C53900 Stroop Color and Word Test (SCW) - Color raw score

Score (raw) of the color test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C14972 Macroscopical examination fixed brain source

The part(s) of the fixed brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20366 Pittsburgh Sleep Quality Index (PSQI) - Trouble stay awake past month scale

The scale to which the subject had trouble staying awake while driving, eating meals, or engaging in social activity past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C15048 Brain atrophy subthalamic nucleus neuronal loss severity result

Quantitative result of the severity of neuronal loss in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C53952 Stroop Color and Word Test (SCW) - Interference T score

Score ( Interference T) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C14980 Brain atrophy coronal sections cerebral white matter severity result

Quantitative result of the severity of cerebral white matter atrophy in the coronal sections of the brain

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20374 Pittsburgh Sleep Quality Index (PSQI) - Other reason past month other text

The free-text entry for other reason(s) the subject reported having trouble sleeping in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C14988 Brain atrophy striatum putamen severity result

Quantitative result of the severity of atrophy located in the putamen

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20382 Pittsburgh Sleep Quality Index (PSQI) - Sleep disturbance scale

The scale to which sleep disturbance was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08154 Brain tissue paraffin-embedded indicator

Indicator of whether paraffin-embedded blocks of brain tissue are accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15024 Brain atrophy striatum brainstem severity result

Quantitative result of the severity of brainstem atrophy located in the striatum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17690 Non-prescribed controlled psychoactive drug substance hallucinogen text

The text specifying the drugs within the 'Hallucinogens: ecstasy/MDMA, LSD, mescaline/peyote, psilocybin/mushrooms, PCP/phencylidine/angel dust, MDA/STP/DOM,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C08082 Sibling rank type

Sibling rank order to identify who is the eldest sibling and the second eldest sibling

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.