CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17209 Problem Behaviours Assessment - Short Form (PBA-S) - perseverative thinking behavior frequency score

The frequency score for Perseverative Thinking or Behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08875 Risk Factor Questionnaire (RFQ-U) - fungicide exposure 66 plus age indicator

The indicator whether there was exposure to fungicides from age 66 onward a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09312 Apathy Scale (AS) - Start task ability no prompt scale

The scale related to subject's ability to start tasks without prompting, as part of the Apathy Scale (AS) form

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C09124 Risk Factor Questionnaire (RFQ-U) - work other pesticide 46 55 age text

The description of any other pesticides used at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08170 Neuritic plaque density category

Density of neuritic plaques (plaques with argyrophilic dystrophic neurites with or without dense amyloid cores)

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09777 Food Frequency Questionnaire - (FFQ)-liver chicken turkey indicator

Average total amount of liver: chicken or turkey the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08959 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure crops 26 35 age indicator

The indicator whether participant/subject exposed to pesticides on crops while working in farming or ranching from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09249 Risk Factor Questionnaire (RFQ-U) - work disposable coverall use indicator

The indicator of whether the participant/subject wore disposable coveralls more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08737 Risk Factor Questionnaire (RFQ) - age stopped regularly using adhesives period 1 value

Age when the participant stopped regularly using adhesives period 1 as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09084 Risk Factor Questionnaire (RFQ-U) - other pesticide exposure work 46 55 age text

The description of work in some other field with pesticide exposure from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09737 Food Frequency Questionnaire - (FFQ)-string beans indicator

Average total amount of string beans the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08839 Risk Factor Questionnaire (RFQ) - additional body measurements triceps skinfold thickness value

Triceps skinfold thickness in centimeters (cm) as part of the Risk Factor Questionnaire (RFQ) - Height and Weight

 Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight True Huntington's Disease Huntington's Disease
C10250 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - heavy metal work over six months indicator

Indicator for whether the participant/subject has ever worked with heavy metals for more than 6 months, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C08919 Risk Factor Questionnaire (RFQ-U) - work metolachlor alachlor acetochlor product use birth 25 age indicator

The indicator whether participant/subject used metolachlor, alachlor, or acetochlor products at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14950 Family history relative order number

A numerical number assigned to each relative, if more than one

 Supplemental Family History False Huntington's Disease Huntington's Disease
C08559 Risk Factor Questionnaire (RFQ) - taken Felodipine Plendil reason

Reason took Felodipine or Plendil as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09857 Food Frequency Questionnaire - (FFQ)-regular mayonnaise indicator

Average total amount of regular mayonnaise the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16637 Risk Factor Questionnaire (RFQ) - female health history-age year surgery stop menstrual value

The age (or year) of the participant/subject in relation to current menstrual status as part of the risk factor questionnaire female health history

 Supplemental Risk Factor Questionnaire (RFQ) - Female Health History True Huntington's Disease Huntington's Disease
C18065 Ohio State TBI Method Short Form (OSUTBIMS) - less than 30 minutes result

Whether the subject was unconscious for less than 30 minutes as part of Ohio State TBI Method Short Form (OSUTBIMS)

 Supplemental Ohio State University TBI Identification Method Short Form True Huntington's Disease Huntington's Disease
C08518 36-item Short Form Health Survey (SF-36) - Less accomplished emotional problems indicator

Indicator for surveyee-reported less accomplishment as a result of emotional problems during past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C09817 Food Frequency Questionnaire - (FFQ)-coffee caffeine indicator

Average total amount of coffee with caffeine the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16687 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - alcohol sleep indicator

The yes/no indicator for drinking alcohol to help sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C15036 Brain atrophy neuronal loss and fibrillary astrocytosis pontes griseum or gray matter caudo-lenticular bridges anatomic site

Anatomic site in the pontes griseum or gray matter caudo-lenticular bridges where neuronal loss and/or fibrillary astrocytosis is/are present

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17217 Problem Behaviours Assessment - Short Form (PBA-S) - hallucinations severity score

The severity score for Hallucinations as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08883 Risk Factor Questionnaire (RFQ-U) - home personal gloves usual indicator

The indicator of whether the participant/subject wore gloves more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.