CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 101 - 125 of 1756
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08666 Risk Factor Questionnaire (RFQ) - birth age 17 residential history first residence location type

Type describing the participant's/subject's first location of residence

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08933 Risk Factor Questionnaire (RFQ-U) - work insecticide use birth 25 age indicator

The indicator whether participant/subject used insecticides at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08084 Sibling gender type

Reported gender of the sibling. Gender is the socially constructed identity of sex

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C08573 Risk Factor Questionnaire (RFQ) - age stopped regularly taking CCB medication period 3 value

Age when the participant stopped regularly taking CCB medication period 3 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09793 Food Frequency Questionnaire - (FFQ)-white rice indicator

Average total amount of white rice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16614 Risk Factor Questionnaire (RFQ) - significant injury age value

Age in years of the participant/subject at the time of the injury as part of the risk factor questionnaire (RFQ)

 Supplemental Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C08532 36-item Short Form Health Survey (SF-36) - Times interfered social physical or emotional score

Score of times physical health or emotional problems interfered with social activities (like visiting with friends, relatives, etc) during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C10256 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - smoke cigarette per day number

Number of cigarettes the participant/subject smoked per day when her or she smoked regularly, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C09753 Food Frequency Questionnaire - (FFQ)-kale mustard chard greens indicator

Average total amount of kale, mustard. Or chard greens the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C10405 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep night woken past month scale

Pre-specified scales for having woken at night in the past month

 Supplemental Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep) True Huntington's Disease Huntington's Disease
C18071 Ohio State TBI Method Short Form (OSUTBIMS) - loss of consciousness greater than 30 number

Number of injuries the subject incurred with a loss of consciousness for greater than 30 minutes as part of Ohio State TBI Method Short Form (OSUTBIMS).

 Supplemental Ohio State University TBI Identification Method Short Form True Huntington's Disease Huntington's Disease
C16661 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - wander night indicator

The yes/no indicator for wandering about at night from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C14982 Brain atrophy coronal sections hippocampal formation severity result

Quantitative result of the severity of hippocampal formation atrophy in the coronal sections of the brain

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17191 Problem Behaviours Assessment - Short Form (PBA-S) - depressed mood frequency score

The score for frequency of average depressed mood change over past four weeks as part of the Problem Behaviours Assessment - Short Form (PBA-S).

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08857 Risk Factor Questionnaire (RFQ-U) - fungicide exposure 36 45 age indicator

The indicator whether there was exposure to fungicides from ages 36 to 45 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C18993 Macroscopical examination fixed brain other text

The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08759 Risk Factor Questionnaire (RFQ) - use acids alkalis or alcohols indicator

Ever use acids, alkalis or alcohols as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09106 Risk Factor Questionnaire (RFQ-U) - work chlorpyrifos terbufos use 46 55 age indicator

The indicator whether participant/subject used chlorpyrifos or terbufos at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08147 Data source

Source of the data provided on the case report form

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08674 Risk Factor Questionnaire (RFQ) - age 18 25 residential history residence zip code number

Number specifying the participant's/subject's zip code of residence from 18-25 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08941 Risk Factor Questionnaire (RFQ-U) - work permethrin other pyrethroid product use birth 25 age indicator

The indicator whether participant/subject used permethrin or other pyrethroid products at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09231 Risk Factor Questionnaire (RFQ-U) - work other rodenticide use 66 onward age indicator

The indicator whether participant/subject used other rodenticides at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08107 Day care hours per week value

Approximate hours per week the participant/subject attended day care as a child

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C08581 Risk Factor Questionnaire (RFQ) - age stopped regularly taking other CCB medication period 1 value

Age when the participant stopped regularly taking other CCB medication period 1 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09066 Risk Factor Questionnaire (RFQ-U) - work other pesticide use 36 45 age indicator

The indicator whether participant/subject used another type of pesticide at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
Displaying 101 - 125 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.