CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 76 - 100 of 409
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C08117 Meningitis or encephalitis episode hospitalization indicator

Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C14948 Family history relative type no biological sample in repository count

The number of family members that do not have samples in a repository

Supplemental Family History Huntington's Disease Huntington's Disease
C17766 Striatum atrophy hydrocephalus third ventricle severity result

Quantitative result of the severity of hydrocephalus located in the third ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15088 Ischemic or hemorrhagic changes description text

The text description of the ischemic or hemorrhagic changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C04802 Death date and time

Date (and time, if known) of participant's/subject's death

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17684 Non-prescribed controlled psychoactive drug substance stimulant cocaine text

The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C02495 Imaging scanner strength value type

Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C08076 Breastfed indicator

Indicator of whether the participant/subject was breastfed by his/her mother

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C15096 Hemorrhages single or multiple vascular territories name

Name of the vascular territories where hemorrhages occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08153 Brain tissue formalin-fixed indicator

Indicator of whether formalin-fixed brain tissue is accessible

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20356 Pittsburgh Sleep Quality Index (PSQI) - Fall asleep past month minute scale

The scaled duration of time (in minutes) it takes the subject to fall asleep the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C15023 Brain atrophy striatum brainstem status

Status of brainstem atrophy in the striatum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08163 CERAD neuropathological criteria scale

CERAD neuropathological criteria used to determine the probability of the participant/subject having Alzheimer's disease

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C53898 Stroop Color and Word Test (SCW) - Word residual score

Score (Residual) of the word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C20364 Pittsburgh Sleep Quality Index (PSQI) - Bad dream past month scale

The scale to which the subject had bad dreams during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C15031 Brain atrophy hippocampal formation neuronal loss indicator

Indicator of neuronal loss in the hippocampal formation

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08175 Cortical microinfarct indicator

Indicator of the presence of one or more infarcts that are detected microscopically (including "granular atrophy") and may not be grossly visible, or may appear to the naked eye as cortical granularity

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C53906 Stroop Color and Word Test (SCW) - Color word residual score

Score (residual) of the color-word test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C20372 Pittsburgh Sleep Quality Index (PSQI) - Sleep quality past month scale

Rating of overall sleep quality past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C15039 Brain atrophy fibrillary astrocytosis nucleus accumbens severity result

Quantitative result of the severity of firbrillary astrocytosis in the nucleus accumbens

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14971 Macroscopical examination fresh brain source

The part(s) of the fresh brain used for macroscopical examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C20380 Pittsburgh Sleep Quality Index (PSQI) - Bed partner roommate present scale

The scale that reflects the presence of a bed partner or roommate, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C15047 Brain atrophy subthalamic nucleus neuronal loss indicator

Indicator of neuronal loss in the subthalamic nucleus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14979 Brain atrophy coronal sections cerebral white matter status

Status of cerebral white matter atrophy of the coronal section upon gross examination

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C14711 Godin Leisure-Time Exercise Questionnaire - exercise per week scale

The value on a scale describing how often during a typical 7-day week that a participant/subject reports engaging in regular leisure time activity long enough to make the heart beat rapidly

Supplemental Godin Leisure-Time Exercise Questionnaire Huntington's Disease Huntington's Disease
Displaying 76 - 100 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.