CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15092	C15092	Lacunes single or multiple event category	Category of the lacunes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14986	C14986	Brain atrophy striatum head of caudate nucleus severity result	Quantitative result of the severity of atrophy located in the head of the caudate nucleus (CN) (at the level where the anterior limb of the internal capsule [ALIC] joins with the basal white matter).	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15052	C15052	Brain atrophy cerebral white matter myelin loss severity result	Quantitative result of the cerebral white matter myelin loss	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08105	C08105	Day care start date	Date participant/subject first started day care outside of home	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08152	C08152	Brain tissue frozen indicator	Indicator of whether banked frozen brain tissue is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15100	C15100	Cortical laminar necrosis single or multiple text	The text description of the cortical laminar necrosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15022	C15022	Brain atrophy nucleus coeruleus appearance grade	Grade of pigmentation of the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15060	C15060	Brain atrophy nucleus coeruleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08113	C08113	Born prematurely indicator	Indicator of whether the participant was informed by a physician or family member that they were born prematurely	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08162	C08162	National Institute on Aging (NIA) or Reagan Institute neuropathological criteria scale	National Institute on Aging (NIA)/Reagan Institute neuropathological criteria used to determine the likelihood of dementia being due to Alzheimer's disease.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C00720	C00720	Family history medical condition type	Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15108	C15108	Diagnoses final clinicopathological severity scale	Scale of the severity or intensity of the diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15030	C15030	Brain atrophy cortical neuronal nuclear inclusions severity result	Quantitative result of the severity of cortical neuronal nuclear inclusions	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15068	C15068	Brain atrophy pontine nuclei globosum neuronal tangles (GNT) severity result	Quantitative result of the severity of globosum neuronal tangles in the pontine nuclei	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08115	C08115	Meningitis or encephalitis diagnosed type	Type of meningitis/encephalitis that participant/subject was diagnosed with	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08173	C08173	Ischemic hemorrhagic or vascular pathology indicator	Indicator of the presence of ischemic, hemorrhagic, or vascular pathology	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14946	C14946	Family history medical condition relative count	Number of family members with medical condition	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C17754	C17754	Microscopic examination brain text	Note regarding microscopic examination of blockage source	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15038	C15038	Brain atrophy neuronal loss nucleus accumbens severity result	Quantitative result of the severity of neuronal loss in the nucleus accumbens	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15076	C15076	Brain atrophy cerebellum cortical neuronal loss in receptive layer severity result	Quantitative result of the severity of cortical neuronal loss in the receptive layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C08235	C08235	Drug or substance illicit use frequency	The subject's/participant's average or typical use frequency during the year of greatest use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14970	C14970	Brain harvesting date and time	Date and time, if known the brain was harvested	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C17762	C17762	Striatum atrophy subthalamic nucleus atrophy severity result	Quantitative result of the severity of atrophy located in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.