CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 76 - 100 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08520 36-item Short Form Health Survey (SF-36) - Interfered social activities physical emotional problems score

Score of interfered normal social activities with family, friends, neighbors, or groups due to physical health or emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C10244 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - longest held occupation prePD text

Text describing the longest held occupation that the participant/subject had before being diagnosed with Parkinson's Disease, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C10414 Scale for Outcomes of Parkinsons disease (SCOPA) - sleep trouble awake day evening past month frequency

Pre-specified frequencies for trouble staying awake during the day or in the evening in the past month

 Supplemental Scale for Outcomes in Parkinson's Disease-Sleep (SCOPA-Sleep) True Huntington's Disease Huntington's Disease
C09741 Food Frequency Questionnaire - (FFQ)-Brussels sprouts indicator

Average total amount of brusselsprouts the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16670 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - frightening things night not exist indicator

The yes/no indicator for seeing or hearing frightening things at night that do not really exist from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C18059 Ohio State TBI Method Short Form (OSUTBIMS) - more injuries loss of consciousness number

Number of injuries past the amount that can be listed in the table that have to do with loss of consciousness as part of Ohio State TBI Method Short Form (OSUTBIMS)

 Supplemental Ohio State University TBI Identification Method Short Form True Huntington's Disease Huntington's Disease
C14991 Brain atrophy striatum status cribrosus lacunaris status

Status of atrophy in the status cribrosus or lacunaris

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17200 Problem Behaviours Assessment - Short Form (PBA-S) - irritability frequency score

The frequency score for irritability frequencies as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C09134 Risk Factor Questionnaire (RFQ-U) - other agricultural application work 56 65 age indicator

The indicator whether participant/subject worked in agricultural applications other than farming or ranching from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08866 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 46 55 age frequency

The frequency of exposure to herbicides from ages 46 to 55 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09303 Apathy Scale (AS) - Personal instruction indicator

The scale related to subject's ability to start new tasks without prodding, as part of the Apathy Scale (AS)

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C08969 Risk Factor Questionnaire (RFQ-U) - other pesticide exposure work 26 35 age indicator

The indicator whether participant/subject worked some other field with pesticide exposure from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08157 Photograph macroscopic indicator

Indicator of whether macroscopic photographs were taken

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08747 Risk Factor Questionnaire (RFQ) - used solvents or degreasers 100 days indicator

Has the participant ever used solvents or degreasers for at least 100 days at work or home as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09094 Risk Factor Questionnaire (RFQ-U) - work other herbicide use 46 55 age text

The description of any other herbicides used at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09240 Risk Factor Questionnaire (RFQ-U) - pesticide exposure unusually high text

The description of any exposure to an unusually high amount of pesticides in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08662 Risk Factor Questionnaire (RFQ) - residential history age 0 17 first residence city text

Text specifying the participant's/subject's first city or town of residence

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08929 Risk Factor Questionnaire (RFQ-U) - work S compound use birth 25 age indicator

The indicator whether participant/subject used sulfur compounds at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08080 Twin sibling indicator

Indicator of whether the participant/subject has a twin brother or sister

 Supplemental History of Early Exposure to Huntington's disease False Huntington's Disease Huntington's Disease
C08569 Risk Factor Questionnaire (RFQ) - age year stopped CCB medications value

Age/year the participant stopped regularly taking CCB medication as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09789 Food Frequency Questionnaire - (FFQ)-regular orange juice indicator-whole wheat oatmeal other whole grain bread indicator

Average total amount of whole wheat, oatmeal, or other whole grain bread the subject ate this past year , as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08032 Risk Factor Questionnaire (RFQ) - significant injury surgery anesthesia administered type

Type of anesthesia given to participant/subject as part of the Risk Factor Questionnaire (RFQ)

 Supplemental Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C08528 36-item Short Form Health Survey (SF-36) - Times downhearted blue score

Score of times feeling downhearted and blue during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C10252 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - caffeine intake preparkinson's disease number

Number of cups of caffeine-containing beverages the participant/subject drank each day, during the times that he or she was drinking caffeine-containing beverages, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C08642 Risk Factor Questionnaire (RFQ) - age 0 17 sleep duration indicator

Hours of sleep the subject got in a week between the ages of 0 and 17, as part of the Risk Factor Questionnaire (RFQ)

 Supplemental Risk Factor Questionnaire (RFQ) - All True Huntington's Disease Huntington's Disease
Displaying 76 - 100 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.