CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15094	C15094	Lacunes single or multiple description text	The text description of the lacunes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C02496	C02496	Imaging scanner manufacturer name	Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15054	C15054	Brain atrophy substantia nirgra pars compacta neuronal loss severity result	Quantitative result of the severity of neuronal loss in the pars compacta	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14954	C14954	Motor symptom improvement since diagnosis indicator	the indicator whether motor symptoms have improved since the first diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15102	C15102	Arteriosclerosis indicator	Indicator of arteriosclerosis (small parenchymal arteriolar disease)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C08242	C08242	Imaging acquisition duration	Duration of the imaging scan in minutes	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15062	C15062	Brain atrophy nucleus coeruleus Lewy body containing neurons and Lewy neurites severity result	Quantitative result of the severity of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17734	C17734	Person completing the form title text	Title/Credentials/Training of the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1209-C08000	C08000	Family history relative type total membercount	Count of total family members and ancestors for the specified relative type	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F2370-C53904	C53904	Stroop Color and Word Test (SCW) - Color word raw score	Score (raw) of the color-word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1237-C15032	C15032	Brain atrophy hippocampal formation neuronal loss severity result	Quantitative result of the severity of neuronal loss in the hippocampal formation	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20370	C20370	Pittsburgh Sleep Quality Index (PSQI) - Sleep medication past month scale	The scale of medication use to help sleep (prescribed or 'over the counter') past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1212-C08117	C08117	Meningitis or encephalitis episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08176	C08176	Lacunes single or multiple indicator	Indicator of the presence of one or more cystic/old infarcts or hemorrhages 1-cm or less in diameter that are usually grossly identified and in the distribution of small parenchymal vessels, most often in basal ganglia, thalamus, pons, cerebellum and cerebral white matter	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14948	C14948	Family history relative type no biological sample in repository count	The number of family members that do not have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15040	C15040	Brain atrophy neuronal loss and fibrillary astrocytosis globus pallidus anatomic site	Anatomic site in the globus pallidus where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20378	C20378	Pittsburgh Sleep Quality Index (PSQI) - Actual sleep past month hour scale	The scaled duration (in hours) of actual sleep per night in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1213-C17684	C17684	Non-prescribed controlled psychoactive drug substance stimulant cocaine text	The text specifying the drugs within the Stimulants: cocaine/crack category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14972	C14972	Macroscopical examination fixed brain source	The part(s) of the fixed brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08076	C08076	Breastfed indicator	Indicator of whether the participant/subject was breastfed by his/her mother	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15048	C15048	Brain atrophy subthalamic nucleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1278-C14709	C14709	Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
F1213-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14980	C14980	Brain atrophy coronal sections cerebral white matter severity result	Quantitative result of the severity of cerebral white matter atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18741	C18741	Other pathology ischemic vascular disease specify text	The free-text field related to 'Other pathology ischemic vascular disease indicator'. Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.