CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 394

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1225-C14959	C14959	Diagnosis physician year date	The year the physician diagnosed the participant/ subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15107	C15107	Huntingtons Disease diagnosis grade	The grade of severity of HD or amyloid angiopathy severity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C10570	C10570	Imaging contrast agent used indicator	Indicator as to whether or not an imaging contrast agent was used for the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15067	C15067	Brain atrophy pontine nuclei globosum neuronal tangles status	Status of globosum neuronal tangles (GNT) in the pontine nuclei	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17739	C17739	Informant participant family member relationship text	The free-text field to specify the relationship of the informant to a family member of the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17753	C17753	Macroscopic examination brain text	Note regarding macroscopic examination of fresh or fixed brain parts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14964	C14964	Sedation used indicator	Whether the participant/subject was administered any sedation	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15075	C15075	Brain atrophy cerebellum cortical neuronal loss in receptive layer indicator	Indicator of cortical neuronal loss in the receptive layer (granular) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15037	C15037	Brain atrophy neuronal loss and fibrillary astrocytosis putamen anatomic site	Anatomic site in the putamen where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20375	C20375	Pittsburgh Sleep Quality Index (PSQI) - Total score	The total score, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1213-C08234	C08234	Drug or substance last illicit use date and time	Date (and time if applicable and known) of the participant's/subject's last use of an unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14969	C14969	Cytosine adenine guanine repeat expansion result	Size of expansion of HD-IT 15 cytosine adenine guanine (CAG) repeats	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C18678	C18678	Family history medical condition other text	The free-text field related to 'Family history medical condition type' specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15045	C15045	Brain atrophy thalamus neuronal loss nuclei name	Name of the nuclei in the thalamus involved in the neuronal loss	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20384	C20384	Pittsburgh Sleep Quality Index (PSQI) - Sleep latency scale	The scale to which sleep latency was calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1213-C17689	C17689	Non-prescribed controlled psychoactive drug substance inhalant text	The text specifying the drugs within the 'Inhalants: glue, toluene, gasoline, aerosols, paint thinner, nitrous oxide, amyl nitrite,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14977	C14977	Brain atrophy coronal sections cerebral cortex status	Status of cerebral cortex atrophy of the coronal sections upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08081	C08081	Twin sibling type	Type of twin the participant/subject has	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
F1225-C14953	C14953	Chorea anatomic site	Anatomic site of the participant's/subject's body affected by chorea	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C14985	C14985	Brain atrophy striatum status	Status of striatum (caudate nucleus [CN], putamen, globus pallidus, and nucleus accumbens) atrophy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18996	C18996	Silver staining methods other text	The free-text field related to 'Silver staining methods type' specifying other text. Silver staining methods used for identifying Alzheimer disease type changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08104	C08104	Day care attendance indicator	Indicator of whether the participant/subject attended day care outside of the home as a child	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
F1237-C08151	C08151	Diagnosis final clinical death date	Date of participant's/subject's final clinical diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F2370-C15910	C15910	Assessment date and time	The date of participant's injury	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1237-C15021	C15021	Brain atrophy substantia nigra appearance grade	Grade of pigmentation of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.