CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C15027 Brain atrophy cortex neuronal loss indicator

Indicator of neuronal loss in the cerebral cortex

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17208 Problem Behaviours Assessment - Short Form (PBA-S) - perseverative thinking behavior severity score

The severity score for Perseverative Thinking or Behaviour as part of the Problem Behaviours Assessment - Short Form (PBA-S).

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08874 Risk Factor Questionnaire (RFQ-U) - insecticide exposure 66 plus age frequency

The frequency of exposure to insecticides from age 66 onward in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09311 Apathy Scale (AS) - Unconcern scale

The scale related to how concerned with the ongoings of life the subject is, as part of the Apathy Scale (AS) form.

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C09123 Risk Factor Questionnaire (RFQ-U) - work other pesticide use 46 55 age indicator

The indicator whether participant/subject used another type of pesticide at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08169 Antibody stain method name

Name of staining method used for antibodies

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09699 Food Frequency Questionnaire - (FFQ)-regular ice cream indicator

Average total amount of regular ice cream the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08958 Risk Factor Questionnaire (RFQ-U) - farm ranch work 26 35 age indicator

The indicator whether participant/subject worked in farming or ranching from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09248 Risk Factor Questionnaire (RFQ-U) - work protective apron use indicator

The indicator of whether the participant/subject wore a chemical resistant apron more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08736 Risk Factor Questionnaire (RFQ) - year not regularly using adhesives indicator

Periods of a year or more when the participant did not regularly use adhesives as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09083 Risk Factor Questionnaire (RFQ-U) - other pesticide exposure work 46 55 age indicator

The indicator whether participant/subject worked some other field with pesticide exposure from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09659 Food Frequency Questionnaire - (FFQ)-vitamin B6 indicator

Vitamin B6 indicator, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08828 Risk Factor Questionnaire (RFQ) - weight age 60 value

Patient's weight at age 60 as part of the Risk Factor Questionnaire (RFQ) - Height and Weight.

 Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight True Huntington's Disease Huntington's Disease
C08918 Risk Factor Questionnaire (RFQ-U) - work atrazine cyanazine product use birth 25 age indicator

The indicator whether participant/subject used atrazine or cyanazine products at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14949 Family history relative type unknown biological sample in repository count

The number of family members who are unsure if they have samples in a repository

 Supplemental Family History False Huntington's Disease Huntington's Disease
C08558 Risk Factor Questionnaire (RFQ) - taken Felodipine Plendil indicator

Taken Felodipine or Plendil as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09778 Food Frequency Questionnaire - (FFQ)-canned tuna indicator

Average total amount of canned tuna fish the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16636 Risk Factor Questionnaire (RFQ) - female health history-surgery stop menopause type

If periods stopped by surgery or surgical menopause, indicate type of surgery the participant/subject underwent as part of the risk factor questionnaire female health history.

 Supplemental Risk Factor Questionnaire (RFQ) - Female Health History True Huntington's Disease Huntington's Disease
C08517 36-item Short Form Health Survey (SF-36) - Cut time on work activities emotional problems indicator

Indicator for surveyee-reported cut down time on work or other activities as a result of emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C16686 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - tobacco indicator

The yes/no indicator for smoking tobacco from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C09738 Food Frequency Questionnaire - (FFQ)-broccoli indicator

Average total amount of broccoli the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C15035 Brain atrophy neuronal loss fibrillary astrocytosis caudate nucleus anatomic site

Anatomic site in the caudate nucleus (CN) where neuronal loss and/or fibrillary astrocytosis is/are present

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17216 Problem Behaviours Assessment - Short Form (PBA-S) - delusions paranoid thinking worst score

The worst score for Delusions/Paranoid Thinking as part of the Problem Behaviours Assessment - Short Form (PBA-S).

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08882 Risk Factor Questionnaire (RFQ-U) - home pesticide concentration wash indicator

The indicator of whether participant/subject stopped work and washed affected skin after contact with concentrated pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C16646 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - wake time

The time person normally wakes up from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep).

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
Displaying 51 - 75 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.