CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 51 - 75 of 1756
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08162 National Institute on Aging (NIA) or Reagan Institute neuropathological criteria scale

National Institute on Aging (NIA)/Reagan Institute neuropathological criteria used to determine the likelihood of dementia being due to Alzheimer's disease.

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08953 Risk Factor Questionnaire (RFQ-U) - work other pesticide birth 25 age text

The description of any other pesticides used at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09243 Risk Factor Questionnaire (RFQ-U) - work personal gloves usual indicator

The indicator of whether the participant/subject wore gloves more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C17714 Risk Factor Questionnaire (RFQ) - age started regularly taking other CCB medication period 2 value

Age when the participant started regularly taking other CCB medication period 2 as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09078 Risk Factor Questionnaire (RFQ-U) - forestry work 46 55 age indicator

The indicator whether participant/subject worked in forestry from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08823 Risk Factor Questionnaire (RFQ) - height and weight age 40 body type

Patient's body type at age 40 according to the pictogram as defined by the Risk Factor Questionnaire (RFQ) - Height and Weight

 Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight True Huntington's Disease Huntington's Disease
C08913 Risk Factor Questionnaire (RFQ-U) - other pesticide exposure work birth 25 age text

The description of work in some other field with pesticide exposure from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14944 Family history relative age value

Value for participant's/subject's family member's current age

 Supplemental Family History False Huntington's Disease Huntington's Disease
C08553 Risk Factor Questionnaire (RFQ) - year not regularly taking anti-inflammatory medications value

Years in total that the participant did NOT regularly take anti-inflammatory medications as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09773 Food Frequency Questionnaire - (FFQ)-beef pork lamb sandwich mixed dish indicator

Average total amount of beef, pork, or lamb as a sandwich or mixed dish the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16631 Risk Factor Questionnaire (RFQ) - female health history-live birth number

If yes, how many live births as part of the risk factor questionnaire female health history

 Supplemental Risk Factor Questionnaire (RFQ) - Female Health History True Huntington's Disease Huntington's Disease
C08645 Risk Factor Questionnaire (RFQ) - age 18 25 sleep duration indicator

Hours of sleep the subject got in a week between the ages of 18 and 25, as part of the Risk Factor Questionnaire (RFQ)

 Supplemental Risk Factor Questionnaire (RFQ) - All True Huntington's Disease Huntington's Disease
C08512 36-item Short Form Health Survey (SF-36) - Health limited bathing dressing score

Score of surveyee-reported limited bathing or dressing due to physical health as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C16681 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - nap days weekly count

Count days per week individual naps on average from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C09733 Food Frequency Questionnaire - (FFQ)-tomato V8 juice indicator

Average total amount of tomato or V8 juice the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C15030 Brain atrophy cortical neuronal nuclear inclusions severity result

Quantitative result of the severity of cortical neuronal nuclear inclusions

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17211 Problem Behaviours Assessment - Short Form (PBA-S) - obsessive compulsive behavior severity score

The severity score for Obsessive-Compulsive Behaviours as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08877 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 66 plus age indicator

The indicator whether there was exposure to herbicides from age 66 onward in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09314 Apathy Scale (AS) - Apathetic scale

The scale related to subject's self reflection on personal apathetic state, as part of the Apathy Scale (AS) form

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C09126 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure mixed applied 56 65 age indicator

The indicator whether work exposure to pesticides from age 56 to 65 was through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08173 Ischemic hemorrhagic or vascular pathology indicator

Indicator of the presence of ischemic, hemorrhagic, or vascular pathology

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08961 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure animals 26 35 age indicator

The indicator whether participant/subject exposed to pesticides used on livestock/farm animals while working in farming or ranching from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09251 Risk Factor Questionnaire (RFQ-U) - work goggles use indicator

The indicator of whether the participant/subject wore goggles more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08739 Risk Factor Questionnaire (RFQ) - age stopped regularly using adhesives period 3 value

Age when the participant stopped regularly using adhesives period 3 as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09086 Risk Factor Questionnaire (RFQ-U) - days year work pesticide exposure 46 55 age frequency

The number of days with pesticide exposure during years with job with pesticide exposure from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
Displaying 51 - 75 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.