CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 276 - 300 of 427
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17760 Striatum atrophy thalamus atrophy severity result

Quantitative result of the severity of atrophy located in the thalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08151 Diagnosis final clinical death date

Date of participant's/subject's final clinical diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15082 Brain atrophy cerebellum dentate nucleus neuronal loss indicator

Indicator of neuronal loss in the dentate nucleus of the cerebellum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18708 Imaging pulse sequence type other text

The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C15021 Brain atrophy substantia nigra appearance grade

Grade of pigmentation of the substantia nigra

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18153 Data unknown text

The free-text field to Mark an "X" in to record if data are unknown or not available

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08160 Brain tissue weigh type

Type of brain tissue weighed

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15090 Cortical infarcts single or multiple vascular territories name

Name of the vascular territories where cortical microinfarcts occur

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C02411 Laterality type

Laterality type relative to the anatomic site of the body examined or affected

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17687 Non-prescribed controlled psychoactive drug substance sedative barbiturate text

The text specifying the drugs within the 'Sedatives-barbiturates and others: phenobarbital, Seconol, Nembutal, Dorieden, Quaalude, Amytal, Fiorinal, downers,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
C18997 Clinicopathology diagnosis final other text

the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08079 Full biological brothers count

Count of full biological brothers the participant/subject has

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C17733 Person completing form name

Name of person completing the form

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C14951 Motor symptom first appeared self report date and time

Date of the first motor symptom(s) as noted by the participant/subject

Supplemental Medical History of Huntington's Disease Huntington's Disease Huntington's Disease
C20360 Pittsburgh Sleep Quality Index (PSQI) - Pain past month scale

The scale to which the subject had pain during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08087 Sibling death age value

Age of sibling when he/she died

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C53902 Stroop Color and Word Test (SCW) - Color residual score

Score (residual) of the color test, as part of the Stroop Color and Word Test (SCW)

Supplemental Stroop Test Huntington's Disease Huntington's Disease
C20368 Pittsburgh Sleep Quality Index (PSQI) - Partner report disorientation past month scale

The scale to which the subject's partner reported disorientation or confusion during sleep past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08110 Preschool end date

Date participant/subject ended preschool

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C11138 Country of origin paternal ISO code

The ISO 3166-1 alpha-2 code for the participant's father's country of origin

Supplemental Demographics Huntington's Disease Huntington's Disease
C20376 Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time

The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08100 Pneumonia episode age value

Participant's/subject's age at the time of the pneumonia episode

Supplemental Infection History Huntington's Disease Huntington's Disease
C14943 Family history relative deceased indicator

Indicator of whether family member is deceased

Supplemental Family History Huntington's Disease Huntington's Disease
C20385 Pittsburgh Sleep Quality Index (PSQI) - Day dysfunction due to sleepiness scale

The scale to which day dysfunction due to sleepiness was calculated, as part of the Pittsburgh Sleep quality Index (PSQI)

Supplemental Pittsburgh Sleep Quality Index (PSQI) Huntington's Disease Huntington's Disease
C08232 Drug or substance illicit use ever indicator

Indicator of participant's/subject's use of illegal drugs, prescription or over-the-counter drugs at any point in his/her lifetime for purposes other than those for which they are meant to be used, or in large amounts

Supplemental Non-prescribed Drug Use Questionnaire Huntington's Disease Huntington's Disease
Displaying 276 - 300 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.