CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 394

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1211-C08109	C08109	Preschool start date	Date participant/subject first started preschool	Supplemental	History of Early Exposure to Huntington's disease	False	Huntington's Disease	Huntington's Disease
F1237-C15041	C15041	Brain atrophy neuronal loss severity result	Quantitative result of the severity of neuronal loss in each location of the caudate nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1207-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1237-C18994	C18994	Microscopical examination blocks other text	The free-text field related to 'Microscopical examination blocks source' specifying other text. The source of blockage based on microscopical examination of brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14973	C14973	Microscopical examination blocks source	The source of blockage based on microscopical examination of brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08099	C08099	Pneumonia history indicator	Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1807-C58780	C58780	Birth sex assigned type other text	The free-text field related to 'Birth sex assigned type', specifying other text	Supplemental	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C15049	C15049	Brain atrophy red nucleus neuronal loss indicator	Indicator of neuronal loss in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C10813	C10813	Adopted indicator	Whether the subject/participant was adopted	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1269-C20357	C20357	Pittsburgh Sleep Quality Index (PSQI) - Sleep efficiency scale	The sleep efficiency scale calculated, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1237-C14981	C14981	Brain atrophy coronal sections hippocampal formation status	Status of hippocampal formation atrophy of the coronal sections upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C00716	C00716	Drug or substance illicit use duration	Duration, in years, the participant/subject has used unprescribed, controlled psychoactive drugs or substances	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F2370-C53899	C53899	Stroop Color and Word Test (SCW) - Word T score	Score (T) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1209-C14950	C14950	Family history relative order number	A numerical number assigned to each relative, if more than one	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1269-C20365	C20365	Pittsburgh Sleep Quality Index (PSQI) - Cough snore loudly past month scale	The scale to which the subject coughed or snored loudly during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1237-C14989	C14989	Brain atrophy striatum globus pallidus external segment severity result	Quantitative result of the severity of atrophy located in the globus pallidus, external segment	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08155	C08155	CSF postmortem indicator	Indicator of whether banked postmortem cerebrospinal fluid (CSF) is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15074	C15074	Brain atrophy cerebellum cortical neuronal loss in associative layer severity result	Quantitative result of the severity of cortical neuronal loss in the associative layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C08244	C08244	Imaging slice thickness value	Value of the thickness of the slice measured in millimeters (mm)	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1225-C17736	C17736	Symptoms first appeared informant status	The status whether the first motor symptom(s) were noted by the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C17760	C17760	Striatum atrophy thalamus atrophy severity result	Quantitative result of the severity of atrophy located in the thalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15082	C15082	Brain atrophy cerebellum dentate nucleus neuronal loss indicator	Indicator of neuronal loss in the dentate nucleus of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14961	C14961	Imaging excitation number	Number of times each line of k-space data is acquired during the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1225-C18989	C18989	Huntingtons Disease motor symptom first appeared self report other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 251 - 275 of 394

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.