CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 251 - 275 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C17211 Problem Behaviours Assessment - Short Form (PBA-S) - obsessive compulsive behavior severity score

The severity score for Obsessive-Compulsive Behaviours as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08877 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 66 plus age indicator

The indicator whether there was exposure to herbicides from age 66 onward in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09314 Apathy Scale (AS) - Apathetic scale

The scale related to subject's self reflection on personal apathetic state, as part of the Apathy Scale (AS) form

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C09126 Risk Factor Questionnaire (RFQ-U) - work pesticide exposure mixed applied 56 65 age indicator

The indicator whether work exposure to pesticides from age 56 to 65 was through mixed or applied pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08173 Ischemic hemorrhagic or vascular pathology indicator

Indicator of the presence of ischemic, hemorrhagic, or vascular pathology

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08961 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure animals 26 35 age indicator

The indicator whether participant/subject exposed to pesticides used on livestock/farm animals while working in farming or ranching from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09251 Risk Factor Questionnaire (RFQ-U) - work goggles use indicator

The indicator of whether the participant/subject wore goggles more than half the time when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08739 Risk Factor Questionnaire (RFQ) - age stopped regularly using adhesives period 3 value

Age when the participant stopped regularly using adhesives period 3 as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09086 Risk Factor Questionnaire (RFQ-U) - days year work pesticide exposure 46 55 age frequency

The number of days with pesticide exposure during years with job with pesticide exposure from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08841 Risk Factor Questionnaire (RFQ) - additional body measurements head circumference value

Head circumference in centimeters (cm) as part of the Risk Factor Questionnaire (RFQ) - Height and Weight

 Supplemental Risk Factor Questionnaire (RFQ-U) - Height and Weight True Huntington's Disease Huntington's Disease
C08921 Risk Factor Questionnaire (RFQ-U) - work trifluralin use birth 25 age indicator

The indicator whether participant/subject used trifluralin at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C17682 Family history collection source informant specify type

The type of informant the family history data was collected from

 Supplemental Family History False Huntington's Disease Huntington's Disease
C08561 Risk Factor Questionnaire (RFQ) - taken Nifedipine Procardia Adalat Afeditab Nifediac Nifedical reason

Reason took Nifedipine or Procardia, Adalat, Afeditab, Nifediac, or Nifedical as part of the Risk Factor Questionnaire for Nonsteroidal Anti-Inflammatory Drugs (NSAIDS) and Calcium Channel Blockers (CCB)

 Supplemental Risk Factor Questionnaire (RFQ) - NSAIDS and Calcium Channel Blockers (CCB) True Huntington's Disease Huntington's Disease
C09781 Food Frequency Questionnaire - (FFQ)-dark meat fish indicator

Average total amount of fish dark meat the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C16639 Risk Factor Questionnaire (RFQ) - female health history-hormone replacement therapy use six month indicator

Participant/subject used hormone replacement therapy during or after menopause for a period of at least 6 months as part of the risk factor questionnaire female health history

 Supplemental Risk Factor Questionnaire (RFQ) - Female Health History True Huntington's Disease Huntington's Disease
C08520 36-item Short Form Health Survey (SF-36) - Interfered social activities physical emotional problems score

Score of interfered normal social activities with family, friends, neighbors, or groups due to physical health or emotional problems during the past 4 weeks as part of version 1.0 of 36-item Short Form Health Survey (SF-36)

 Supplemental Short Form 36-Item Health Survey (SF-36) True Huntington's Disease Huntington's Disease
C10244 Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ) - longest held occupation prePD text

Text describing the longest held occupation that the participant/subject had before being diagnosed with Parkinson's Disease, as a part of Parkinson's Disease - Mini Environmental Risk Questionnaire (PD-DOC-MERQ)

 Supplemental PD DOC Mini Environmental Risk Questionnaire for Parkinson's Disease Patients Baseline (PD DOC MERQ-PD-B) True Huntington's Disease Huntington's Disease
C09741 Food Frequency Questionnaire - (FFQ)-Brussels sprouts indicator

Average total amount of brusselsprouts the subject had over this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C15038 Brain atrophy neuronal loss nucleus accumbens severity result

Quantitative result of the severity of neuronal loss in the nucleus accumbens

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17219 Problem Behaviours Assessment - Short Form (PBA-S) - hallucinations worst score

The worst score for hallucinations as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08885 Risk Factor Questionnaire (RFQ-U) - personal gloves other type description text

The description of gloves participant/subject most often wore, if otherwise unspecified, when personally mixing or applying pesticides as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C18059 Ohio State TBI Method Short Form (OSUTBIMS) - more injuries loss of consciousness number

Number of injuries past the amount that can be listed in the table that have to do with loss of consciousness as part of Ohio State TBI Method Short Form (OSUTBIMS)

 Supplemental Ohio State University TBI Identification Method Short Form True Huntington's Disease Huntington's Disease
C16649 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - fall asleep time range

The range of time to fall asleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C09134 Risk Factor Questionnaire (RFQ-U) - other agricultural application work 56 65 age indicator

The indicator whether participant/subject worked in agricultural applications other than farming or ranching from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14970 Brain harvesting date and time

Date and time, if known the brain was harvested

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
Displaying 251 - 275 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.