CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C08630 Risk Factor Questionnaire (RFQ) - longest occupation 56 65 year text

Text describing the participant's/subject's longest held occupation from the age of 56-65 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation.

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C08798 Risk Factor Questionnaire (RFQ) - age stopped regularly soldering period 1 value

Age when the participant stopped regularly soldering period 1 as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09675 Food Frequency Questionnaire - (FFQ)-iron indicator

Iron indicator, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09145 Risk Factor Questionnaire (RFQ-U) - broadleaf herbicide exposure 56 65 age indicator

The indicator whether participant/subject used broadleaf herbicide products containing 2,4-Dichlorophenoxyacetic acid (2,4-D) at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08713 Risk Factor Questionnaire (RFQ) - age 56 65 residential history residence state text

Text specifying the participant's/subject's state of residence from 56-65 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08590 Risk Factor Questionnaire (RFQ) - military service city station longest text

The text describing the city the participant/subject was stationed in for the longest duration as part of the Risk Factor Questionnaire (RFQ) - Occupation.

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C21099 Frontal Systems Behavior Scale (FrSBE) - Missing answer subscale E count

Count of unanswered or missing questions for Executive Dysfunction subscale as part of Frontal Systems Behavior Scale (FrSBE) form

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C15097 Single or multiple hemorrhages description text

The text description of the hemorrhages

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08236 Imaging scanner software name

Name of the scanner software that runs the imaging camera

 Supplemental Magnetic Resonance (MR) Localization Imaging False Huntington's Disease Huntington's Disease
C09881 Food Frequency Questionnaire - (FFQ)-vegetable use ten years indicator

Indicator of how the subjects use of vegetables changed over the past ten years, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C21009 Frontal Systems Behavior Scale (FrSBE) - Inflexible frequency scale

Frequency of being inflexible, unable to change routines as part of Frontal Systems Behavior Scale (FrSBE) - Executive Dysfunction subscale

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C09723 Food Frequency Questionnaire - (FFQ)-orange juice calcium fortified indicator

Average total amount of orange juice the subject had this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09193 Risk Factor Questionnaire (RFQ-U) - landscaping work 66 onward age indicator

The indicator whether participant/subject worked in landscaping/gardening/groundskeeping from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C15057 Brain atrophy substantia nigra Lewy body containing neurons and Lewy neurites status

Status of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the substantia nigra.

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C09028 Risk Factor Questionnaire (RFQ-U) - number years pesticide exposure work 36 45 age count

The total number of years during which participant/subject held a job with pesticide exposure from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C14957 Huntingtons Disease developing motor symptom type

Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness

 Supplemental Medical History of Huntington's Disease False Huntington's Disease Huntington's Disease
C09841 Food Frequency Questionnaire - (FFQ)-walnuts indicator

Average total amount of walnuts the subject ate this past year, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C08638 Risk Factor Questionnaire (RFQ) - longest occupation over 65 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 66+ years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation.

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C08806 Risk Factor Questionnaire (RFQ) - First worked around metal dust or fumes value

Age/year the participant first worked around metal dust or fumes as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
C09683 Food Frequency Questionnaire - (FFQ)-calcium dolomite duration

How long have you taken Calcium or Dolomite, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C09153 Risk Factor Questionnaire (RFQ-U) - work benomyl product use 56 65 age indicator

The indicator whether participant/subject used benomyl products at work from age 56 to 65 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08721 Risk Factor Questionnaire (RFQ) - age 66 and over residential history residence duration

Duration at residence lived from age 66 and over

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08988 Risk Factor Questionnaire (RFQ-U) - work other fungicide use 26 35 age indicator

The indicator whether participant/subject used other fungicides at work from age 26 to 35 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work).

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08598 Risk Factor Questionnaire (RFQ) - military service prisoner of war city text

The text describing the city the participant/subject was a prisoner of war as part of the Risk Factor Questionnaire (RFQ) - Occupation.

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C08766 Risk Factor Questionnaire (RFQ) - use Stoddard solvent indicator

Ever use Stoddard solvent as part of the Risk Factor Questionnaire for Toxicants

 Supplemental Risk Factor Questionnaire (RFQ) - Toxicants True Huntington's Disease Huntington's Disease
Displaying 26 - 50 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.