CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 26 - 50 of 1756
Operations
Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C14989 Brain atrophy striatum globus pallidus external segment severity result

Quantitative result of the severity of atrophy located in the globus pallidus, external segment

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17198 Problem Behaviours Assessment - Short Form (PBA-S) - anxiety worst score

The worst score for anxiety since patient was last seen as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C08728 Risk Factor Questionnaire (RFQ) - age 66 and over residential history residence near farm fields indicator

Indicator as to whether the participant's/subject's residence from 66+ years of age was located near farm fields (within 1/4mile)

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08864 Risk Factor Questionnaire (RFQ-U) - fungicide exposure 46 55 age frequency

The frequency of exposure to fungicides from ages 46 to 55 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09301 Apathy Scale (AS) - Learn eagerness scale

The scale related to subject's eagerness to learn new things, as part of the Apathy Scale (AS) form

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C08605 Risk Factor Questionnaire (RFQ) - current job second duty text

Text describing the second of four major duties or tasks at the participant's/subject's current job as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C09113 Risk Factor Questionnaire (RFQ-U) - work rotenone product use 46 55 age indicator

The indicator whether participant/subject used rotenone products at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08155 CSF postmortem indicator

Indicator of whether banked postmortem cerebrospinal fluid (CSF) is accessible

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08688 Risk Factor Questionnaire (RFQ) - age 26 35 residential history residence near farm field indicator

Indicator as to whether the participant's/subject's residence from 26-35 years of age was located near farm fields (within 1/4mile)

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08948 Risk Factor Questionnaire (RFQ-U) - work fumigant use birth 25 age indicator

The indicator whether participant/subject used fumigants at work from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C09238 Risk Factor Questionnaire (RFQ-U) - work other pesticide 66 onward age text

The description of any other pesticides used at work from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08115 Meningitis or encephalitis diagnosed type

Type of meningitis/encephalitis that participant/subject was diagnosed with

 Supplemental Infection History False Huntington's Disease Huntington's Disease
C09073 Risk Factor Questionnaire (RFQ-U) - farm ranch pesticide exposure crops 46 55 age indicator

The indicator whether participant/subject exposed to pesticides on crops while working in farming or ranching from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08908 Risk Factor Questionnaire (RFQ-U) - landscaping work birth 25 age indicator

The indicator whether participant/subject worked in landscaping/gardening/groundskeeping from birth to age 25 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08640 Risk Factor Questionnaire (RFQ) - age 0 17 vigorous physical activity indicator

Hours spent doing vigorous physical activities by the subject in an average week between the ages of 0 and 17, as part of the Risk Factor Questionnaire (RFQ)

 Supplemental Risk Factor Questionnaire (RFQ) - All True Huntington's Disease Huntington's Disease
C16676 Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep) - not rested night sleep indicator

The yes/no indicator for not being rested by night's sleep from Cambridge Brain Repair Center Sleep Questionnaire (BRC-Sleep)

 Supplemental Cambridge Brain Repair Centre (BRC) HD Sleep Questionnaire True Huntington's Disease Huntington's Disease
C15025 Brain atrophy striatum cerebellum status

Status of cerebellum atrophy in the striatum

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C17206 Problem Behaviours Assessment - Short Form (PBA-S) - lack initiative apathy frequency score

The frequency score for lack of initiative (apathy) as part of the Problem Behaviours Assessment - Short Form (PBA-S)

 Supplemental Problem Behaviours Assessment HD - Short Version (PBA-s) True Huntington's Disease Huntington's Disease
C17706 Risk Factor Questionnaire (RFQ) - age 36 45 residential history residence street address text

Text specifying the partitipant's/subject's street address of residence from 36-45 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
C08872 Risk Factor Questionnaire (RFQ-U) - herbicide exposure 56 65 age frequency

The frequency of exposure to herbicides from ages 56 to 65 in a participant's/subject's life as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Home)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Home) True Huntington's Disease Huntington's Disease
C09309 Apathy Scale (AS) - Motivation scale

The scale related to the subject's self motivation, as part of the Apathy Scale (SC) form

 Supplemental Apathy Scale (AS) True Huntington's Disease Huntington's Disease
C08613 Risk Factor Questionnaire (RFQ) - longest occupation 25 year third duty text

Text describing the participant's/subject's third of four major tasks or duties at the longest held occupation from the age of 0-25 years of age as part of the Risk Factor Questionnaire (RFQ) - Occupation

 Supplemental Risk Factor Questionnaire (RFQ) - Occupation and Employment Status True Huntington's Disease Huntington's Disease
C09121 Risk Factor Questionnaire (RFQ-U) - work other fumigant use 46 55 age indicator

The indicator whether participant/subject used other fumigants at work from age 46 to 55 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)

 Supplemental Risk Factor Questionnaire (RFQ-U) - Pesticides (Work) True Huntington's Disease Huntington's Disease
C08167 Brain abnormality microscopic type

Type of microscopic brain abnormality identified through staining

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
C08696 Risk Factor Questionnaire (RFQ) - age 36 45 residential history residence location type

Type describing the participant's/subject's location of residence from 36-45 years of age

 Supplemental Risk Factor Questionnaire (RFQ) - Residential History True Huntington's Disease Huntington's Disease
Displaying 26 - 50 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.