CDE Catalog

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

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Amyotrophic Lateral Sclerosis
Cerebral Palsy
Chiari I Malformation
Congenital Muscular Dystrophy
Duchenne Muscular Dystrophy/Becker Muscular Dystrophy
Epilepsy
Facioscapulohumeral Muscular Dystrophy
Friedreich's Ataxia
Frontotemporal Dementia
General (For all diseases)
Headache
Huntington's Disease
Mitochondrial Disease
Multiple Sclerosis
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
Myasthenia Gravis
Myotonic Muscular Dystrophy
NeuroRehab
Neuromuscular Diseases
Parkinson's Disease
Spinal Cord Injury
Spinal Muscular Atrophy
Sport Related Concussion
Stroke
Traumatic Brain Injury
Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage
Displaying 1 - 25 of 1756
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Selected 25 rows in this page.  
The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Sub Disease Name
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core General Core False Huntington's Disease Huntington's Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

 Core General Core False Huntington's Disease Huntington's Disease
C00313 Medical history condition SNOMED CT code

Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject

 Core General Core False Huntington's Disease Huntington's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Neuropathology Data Form False Huntington's Disease Huntington's Disease
C00322 Medical history condition text

Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history

 Core General Core False Huntington's Disease Huntington's Disease
C00035 Gender type

Self-reported gender of the participant/subject

 Core Neuropathology Data Form False Huntington's Disease Huntington's Disease
C58676 Birth sex assigned type

Self-reported phenotypic sex of participant/subject, assigned at birth

 Core General Core False Huntington's Disease Huntington's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core Demographics False Huntington's Disease Huntington's Disease
C58677 Gender identity type

Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth

 Core General Core False Huntington's Disease Huntington's Disease
C00020 Ethnicity USA category

Category of ethnicity the participant/subject most closely identifies with

 Core Demographics False Huntington's Disease Huntington's Disease
C00007 Birth date

Date (and time, if applicable and known) the participant/subject was born

 Core General Core False Huntington's Disease Huntington's Disease
C00035 Gender type

Self-reported gender of the participant/subject

 Core Demographics False Huntington's Disease Huntington's Disease
C16623 Risk Factor Questionnaire (RFQ) - significant injury lasting effects text

The free text field to specify the lasting effects from the injury as part of the risk factor questionnaire (RFQ)

 Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C16624 Risk Factor Questionnaire (RFQ) - significant injury surgery administered name

Anatomic site of the surgery performed as part of the risk factor questionnaire (RFQ)

 Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C16629 Risk Factor Questionnaire (RFQ) - female health history-ever pregnant indicator

Has the participant/subject ever been pregnant as part of the risk factor questionnaire female health history

 Exploratory Risk Factor Questionnaire (RFQ) - Female Health History True Huntington's Disease Huntington's Disease
C16625 Risk Factor Questionnaire (RFQ) - significant injury surgery administered anatomic site

The name of the surgery performed as part of the risk factor questionnaire (RFQ)

 Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C16626 Risk Factor Questionnaire (RFQ) - significant injury surgery administered year age value

Year or Age of participant/subject at time of surgery as part of the risk factor questionnaire (RFQ)

 Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C16627 Risk Factor Questionnaire (RFQ) - significant injury surgery administered year age unit of measure

Year or Age unit of measure of participant/subject at time of surgery as part of the risk factor questionnaire (RFQ)

 Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C16619 Risk Factor Questionnaire (RFQ) - significant injury treatment administered text

The free text field to specify the treatment administered for any significant injury as part of the risk factor questionnaire (RFQ)

 Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C16620 Risk Factor Questionnaire (RFQ) - significant injury treatment hospitalization indicator

The indicator of whether the participant/subject was hospitalized for injury as part of the risk factor questionnaire (RFQ)

 Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C16621 Risk Factor Questionnaire (RFQ) - significant injury treatment immobilized cast indicator

The indicator of whether any body part(s) were immobilized or needed a cast as a result of the injury as part of the risk factor questionnaire (RFQ)

 Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C16622 Risk Factor Questionnaire (RFQ) - significant injury lasting effects indicator

The indicator of whether the participant/subject had lasting effects from the injury as part of the risk factor questionnaire (RFQ)

 Exploratory Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia True Huntington's Disease Huntington's Disease
C09675 Food Frequency Questionnaire - (FFQ)-iron indicator

Iron indicator, as part of Food Frequency Questionnaire -(FFQ)

 Supplemental Food Frequency Questionnaire (FFQ) True Huntington's Disease Huntington's Disease
C21099 Frontal Systems Behavior Scale (FrSBE) - Missing answer subscale E count

Count of unanswered or missing questions for Executive Dysfunction subscale as part of Frontal Systems Behavior Scale (FrSBE) form

 Supplemental Frontal Systems Behavioral Scale (FrSBe) True Huntington's Disease Huntington's Disease
C15097 Single or multiple hemorrhages description text

The text description of the hemorrhages

 Supplemental Neuropathology Data Form False Huntington's Disease Huntington's Disease
Displaying 1 - 25 of 1756

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.