CDE Catalog | NINDS Common Data Elements

***Please contact NINDS CDE team (NINDSCDE@emmes.com) in case you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport Related Concussion or Traumatic Brain Injury as the Disease, please select a Sub-Disease as well.

NeuroRehab Comprehensive includes all CDE recommendations.

NeuroRehab General includes all CDE recommendations that are not disease specific.

All other NeuroRehab Sub-Diseases include recommendations specific to existing NINDS CDE project disorders.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Sub Disease Name
C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Huntington's Disease	Huntington's Disease
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	General Core	False	Huntington's Disease	Huntington's Disease
C00030	Race USA category	The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories	Core	General Core	False	Huntington's Disease	Huntington's Disease
C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Huntington's Disease	Huntington's Disease
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Huntington's Disease	Huntington's Disease
C00035	Gender type	Self-reported gender of the participant/subject	Core	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C58676	Birth sex assigned type	Self-reported phenotypic sex of participant/subject, assigned at birth	Core	General Core	False	Huntington's Disease	Huntington's Disease
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	Demographics	False	Huntington's Disease	Huntington's Disease
C58677	Gender identity type	Gender identity self-identified by the subject/participant. Gender type may or may not match sex assigned at birth	Core	General Core	False	Huntington's Disease	Huntington's Disease
C00020	Ethnicity USA category	Category of ethnicity the participant/subject most closely identifies with	Core	Demographics	False	Huntington's Disease	Huntington's Disease
C00007	Birth date	Date (and time, if applicable and known) the participant/subject was born	Core	General Core	False	Huntington's Disease	Huntington's Disease
C16622	Risk Factor Questionnaire (RFQ) - significant injury lasting effects indicator	The indicator of whether the participant/subject had lasting effects from the injury as part of the risk factor questionnaire (RFQ)	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C16623	Risk Factor Questionnaire (RFQ) - significant injury lasting effects text	The free text field to specify the lasting effects from the injury as part of the risk factor questionnaire (RFQ)	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C16629	Risk Factor Questionnaire (RFQ) - female health history-ever pregnant indicator	Has the participant/subject ever been pregnant as part of the risk factor questionnaire female health history	Exploratory	Risk Factor Questionnaire (RFQ) - Female Health History	True	Huntington's Disease	Huntington's Disease
C16624	Risk Factor Questionnaire (RFQ) - significant injury surgery administered name	Anatomic site of the surgery performed as part of the risk factor questionnaire (RFQ)	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C16625	Risk Factor Questionnaire (RFQ) - significant injury surgery administered anatomic site	The name of the surgery performed as part of the risk factor questionnaire (RFQ)	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C16626	Risk Factor Questionnaire (RFQ) - significant injury surgery administered year age value	Year or Age of participant/subject at time of surgery as part of the risk factor questionnaire (RFQ)	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C16619	Risk Factor Questionnaire (RFQ) - significant injury treatment administered text	The free text field to specify the treatment administered for any significant injury as part of the risk factor questionnaire (RFQ)	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C16627	Risk Factor Questionnaire (RFQ) - significant injury surgery administered year age unit of measure	Year or Age unit of measure of participant/subject at time of surgery as part of the risk factor questionnaire (RFQ)	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C16620	Risk Factor Questionnaire (RFQ) - significant injury treatment hospitalization indicator	The indicator of whether the participant/subject was hospitalized for injury as part of the risk factor questionnaire (RFQ)	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C16621	Risk Factor Questionnaire (RFQ) - significant injury treatment immobilized cast indicator	The indicator of whether any body part(s) were immobilized or needed a cast as a result of the injury as part of the risk factor questionnaire (RFQ)	Exploratory	Risk Factor Questionnaire (RFQ) - Epidemiology of Dystonia	True	Huntington's Disease	Huntington's Disease
C09200	Risk Factor Questionnaire (RFQ-U) - days year work pesticide exposure 66 onward age frequency	The number of days with pesticide exposure during years with job with pesticide exposure from age 66 onward as part of the Risk Factor Questionnaire (RFQ-U) for Pesticides (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Huntington's Disease	Huntington's Disease
C15064	Brain atrophy nucleus coeruleus globosum neuronal tangles (GNT) severity result	Quantitative result of the severity of GNT in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
C09035	Risk Factor Questionnaire (RFQ-U) - work trifluralin use 36 45 age indicator	The indicator whether participant/subject used trifluralin at work from age 36 to 45 as part of the Risk Factor Questionnaire (RFQ-U) for Pesticide (Work)	Supplemental	Risk Factor Questionnaire (RFQ-U) - Pesticides (Work)	True	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.