CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1213-C00716	C00716	Drug or substance illicit use duration	Duration, in years, the participant/subject has used unprescribed, controlled psychoactive drugs or substances	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1213-C08233	C08233	Drug or substance first illicit use date and time	Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C08171	C08171	Diffuse plaques density category	Density of diffuse plaques (plaques with non-compact amyloid and no apparent dystrophic neurites)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14959	C14959	Diagnosis physician year date	The year the physician diagnosed the participant/ subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14958	C14958	Diagnosis physician indicator	Has diagnosis been made by a physician?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1209-C22864	C22864	Diagnosis Huntingtons Disease parent suspect indicator	Indicate whether there is a possibility of an HD diagnosis for a parent	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C08149	C08149	Diagnosis final clinical death type	Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18669	C18669	Diagnosis final clinical death other text	The free-text field related to 'Diagnosis final clinical death type' specifying other text. Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08151	C08151	Diagnosis final clinical death date	Date of participant's/subject's final clinical diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15105	C15105	Diagnosis concomitant main indicator	Indicator of whether the participant/ subject been diagnosed with a concomitant disease	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14941	C14941	Diagnosis certainty percentage range type	Option for the range of the clinician's certainty of the medical diagnosis of the disease or disorder	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14960	C14960	Diagnosis based abnormality type	What kind of abnormalities was the diagnosis based on?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15108	C15108	Diagnoses final clinicopathological severity scale	Scale of the severity or intensity of the diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C04802	C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08105	C08105	Day care start date	Date participant/subject first started day care outside of home	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08107	C08107	Day care hour per week value	Approximate hours per week the participant/subject attended day care as a child	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08106	C08106	Day care end date	Date participant/subject ended day care outside of home	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08104	C08104	Day care attendance indicator	Indicator of whether the participant/subject attended day care outside of the home as a child	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08147	C08147	Data source	Source of the data provided on the case report form	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C06005	C06005	Data collected date and time	Date (and time, if applicable and known) the data were collected. This may be the date/time a particular examination or procedure was performed	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1229-C14937	C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1228-C14937	C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.