CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 251 - 275 of 409

« first
‹ previous
…
7
8
9
10
11
12
13
14
15
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1229-C14937	C14937	Cytosine adenine guanine repeats smaller allele number	The number of cytosine adenine guanine (CAG) repeats on the smaller allele	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1230-C14936	C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1229-C14936	C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1228-C14936	C14936	Cytosine adenine guanine repeats larger allele number	The number of cytosine adenine guanine (CAG) repeats on the larger allele	Supplemental-Highly Recommended	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
F1229-C17745	C17745	Cytosine adenine guanine repeats information source type	The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1229-C19061	C19061	Cytosine Adenine Guanine repeats information source other text	The free-text field related to 'Cytosine adenine guanine repeats information source type' specifying other text. The source of information used to determine whether the participant/subject had a molecular study done to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1230-C14938	C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1229-C14938	C14938	Cytosine adenine guanine repeat test indicator	Indicate whether a genetic test has been performed to determine the number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1230-C17747	C17747	Cytosine Adenine Guanine repeat results provider type	The type of provider who repeated the Cytosine Adenine Guanine (CAG) results	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1230-C19062	C19062	Cytosine Adenine Guanine repeat results provider other text	The free-text field related to 'Cytosine Adenine Guanine repeat results provider type' specifying other text. The type of provider who repeated the Cytosine Adenine Guanine (CAG) results	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1230-C14940	C14940	Cytosine adenine guanine repeat known indicator	Whether the participant's/subject's Cytosine Adenine Guanine (CAG) repeat lengths are known	Supplemental-Highly Recommended	DNA Elements - Participant/Subject Information	False	Huntington's Disease	Huntington's Disease
F1237-C14969	C14969	Cytosine adenine guanine repeat expansion result	Size of expansion of HD-IT 15 cytosine adenine guanine (CAG) repeats	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08155	C08155	CSF postmortem indicator	Indicator of whether banked postmortem cerebrospinal fluid (CSF) is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1207-C11136	C11136	Country origin paternal name	Father's country or countries of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C10675	C10675	Country origin maternal name	Mother's country or countries of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C11138	C11138	Country of origin paternal ISO code	The ISO 3166-1 alpha-2 code for the participant's father's country of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1207-C11139	C11139	Country of origin maternal ISO code	The ISO 3166-1 alpha-2 code for the participant's mother's country of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1237-C08175	C08175	Cortical microinfarct indicator	Indicator of the presence of one or more infarcts that are detected microscopically (including "granular atrophy") and may not be grossly visible, or may appear to the naked eye as cortical granularity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15099	C15099	Cortical laminar necrosis single or multiple vascular territories name	Name of the vascular territories where cortical laminar necrosis occurs	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15100	C15100	Cortical laminar necrosis single or multiple text	The text description of the cortical laminar necrosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15098	C15098	Cortical laminar necrosis single or multiple event category	Category of the cortical laminar necrosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08179	C08179	Cortical laminar necrosis indicator	Indicator of the presence of selective cortical necrosis of middle and lower cortical lamina most often associated with cerebral hypoperfusion and concentrated in border zones between major cerebral arteries	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15090	C15090	Cortical infarcts single or multiple vascular territories name	Name of the vascular territories where cortical microinfarcts occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15089	C15089	Cortical infarcts single or multiple event category	Category of the cortical microinfarcts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15091	C15091	Cortical infarcts single or multiple description text	The text description of the cortical microinfarcts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 251 - 275 of 409

« first
‹ previous
…
7
8
9
10
11
12
13
14
15
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.