CDE Catalog

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

Displaying 26 - 50 of 427
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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
CDE ID CDE Name Definition Classification CRF Name Copyrighted or trademarked Disease Name Subdisease Name
C17758 Striatum atrophy hypothalamus atrophy severity result

Quantitative result of the severity of atrophy located in the hypothalamus

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17766 Striatum atrophy hydrocephalus third ventricle severity result

Quantitative result of the severity of hydrocephalus located in the third ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17765 Striatum atrophy hydrocephalus lateral ventricle severity result

Quantitative result of the severity of hydrocephalus located in the lateral ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17767 Striatum atrophy hydrocephalus fourth ventricle severity result

Quantitative result of the severity of hydrocephalus located in the fourth ventricle

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17755 Striatum atrophy claustrum atrophy status

Status of atrophy in the claustrum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17756 Striatum atrophy claustrum atrophy severity result

Quantitative result of the severity of atrophy located in the claustrum

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C17398 Specimen other postmortem text

Text area to describe other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08156 Specimen other postmortem indicator

Indicator whether other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15097 Single or multiple hemorrhages description text

The text description of the hemorrhages

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C15085 Silver staining methods type

Silver staining methods used for identifying Alzheimer disease type changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C18996 Silver staining methods other text

The free-text field related to 'Silver staining methods type' specifying other text. Silver staining methods used for identifying Alzheimer disease type changes

Supplemental Neuropathology Data Form Huntington's Disease Huntington's Disease
C08082 Sibling rank type

Sibling rank order to identify who is the eldest sibling and the second eldest sibling

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08083 Sibling name

Name of the sibling

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08084 Sibling gender type

Reported gender of the sibling. Gender is the socially constructed identity of sex

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08087 Sibling death age value

Age of sibling when he/she died

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08086 Sibling current age value

Current age of the living sibling

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08085 Sibling alive indicator

Indicator of whether the participant's/subject's sibling is still living

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C14964 Sedation used indicator

Indicator of whether the participant was administered any sedation

Supplemental Magnetic Resonance (MR) Localization Imaging Huntington's Disease Huntington's Disease
C00030 Race USA category

The patient's self declared racial origination, independent of ethnic origination, using OMB approved categories

Core General Core Huntington's Disease Huntington's Disease
C00031 Race expanded category

Category of race(s) or region(s) the participant/subject most closely identifies with

Supplemental-Highly Recommended Demographics Huntington's Disease Huntington's Disease
C08109 Preschool start date

Date participant/subject first started preschool

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08111 Preschool hour per week value

Approximate hours per week the participant/subject attended preschool as a child

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08110 Preschool end date

Date participant/subject ended preschool

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08108 Preschool attendance indicator

Indicator of whether the participant/subject attended preschool as a child

Supplemental History of Early Exposure to Huntington's Disease Huntington's Disease Huntington's Disease
C08099 Pneumonia history indicator

Indicator of whether the participant/subject has ever had pneumonia diagnosed by a physician

Supplemental Infection History Huntington's Disease Huntington's Disease
Displaying 26 - 50 of 427

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.