CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 276 - 300 of 409

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15086	C15086	Ischemic or hemorrhagic changes event category	Category of the ischemic or hemorrhagic changes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15087	C15087	Ischemic or hemorrhagic vascular territories name	Name of the vascular territories where ischemic or hemorrhagic changes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15093	C15093	Lacunes singe or multiple vascular territories name	Name of the vascular territories where lacunes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15094	C15094	Lacunes single or multiple description text	The text description of the lacunes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15092	C15092	Lacunes single or multiple event category	Category of the lacunes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08176	C08176	Lacunes single or multiple indicator	Indicator of the presence of one or more cystic/old infarcts or hemorrhages 1-cm or less in diameter that are usually grossly identified and in the distribution of small parenchymal vessels, most often in basal ganglia, thalamus, pons, cerebellum and cerebral white matter	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C02411	C02411	Laterality type	Laterality type relative to the anatomic site of the body examined or affected	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17753	C17753	Macroscopic examination brain text	Note regarding macroscopic examination of fresh or fixed brain parts	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18993	C18993	Macroscopical examination fixed brain other text	The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14972	C14972	Macroscopical examination fixed brain source	The part(s) of the fixed brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18992	C18992	Macroscopical examination fresh brain other text	The free-text field related to 'Macroscopical examination fresh brain source' specifying other text. The part(s) of the fresh brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14971	C14971	Macroscopical examination fresh brain source	The part(s) of the fresh brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1212-C08115	C08115	Meningitis or encephalitis diagnosed type	Type of meningitis/encephalitis that participant/subject was diagnosed with	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1212-C08116	C08116	Meningitis or encephalitis episode age value	Participant's/subject's age at the time of the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1212-C08117	C08117	Meningitis or encephalitis episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1212-C08114	C08114	Meningitis or encephalitis history indicator	Indicator of whether the participant/subject has ever had meningitis or encephalitis (brain infection) diagnosed by a physician	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C17754	C17754	Microscopic examination brain text	Note regarding microscopic examination of blockage source	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18994	C18994	Microscopical examination blocks other text	The free-text field related to 'Microscopical examination blocks source' specifying other text. The source of blockage based on microscopical examination of brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14973	C14973	Microscopical examination blocks source	The source of blockage based on microscopical examination of brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1229-C17746	C17746	Molecular study lab name	The name of the laboratory that completed the molecular study to determine number of cytosine adenine guanine (CAG) repeats	Supplemental-Highly Recommended	DNA Elements - Information from the Study Investigator	False	Huntington's Disease	Huntington's Disease
F1228-C17744	C17744	Molecular study laboratory name	Name of laboratory that performed the molecular study	Supplemental	DNA Elements - Information from the Laboratory	False	Huntington's Disease	Huntington's Disease
F1225-C14955	C14955	Motor symptom first appeared informant date	Date the first motor symptom(s) were noted by the person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C14951	C14951	Motor symptom first appeared self report date and time	Date of the first motor symptom(s) as noted by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease

Displaying 276 - 300 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.