CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 409

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1211-C08109	C08109	Preschool start date	Date participant/subject first started preschool	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08110	C08110	Preschool end date	Date participant/subject ended preschool	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08111	C08111	Preschool hour per week value	Approximate hours per week the participant/subject attended preschool as a child	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08112	C08112	Birth weight category	Categorization of the participant's/subject's birth weight	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08113	C08113	Born prematurely indicator	Indicator of whether the participant was informed by a physician or family member that they were born prematurely	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1212-C08114	C08114	Meningitis or encephalitis history indicator	Indicator of whether the participant/subject has ever had meningitis or encephalitis (brain infection) diagnosed by a physician	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1212-C08115	C08115	Meningitis or encephalitis diagnosed type	Type of meningitis/encephalitis that participant/subject was diagnosed with	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1212-C08116	C08116	Meningitis or encephalitis episode age value	Participant's/subject's age at the time of the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1212-C08117	C08117	Meningitis or encephalitis episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C08147	C08147	Data source	Source of the data provided on the case report form	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08148	C08148	Neuropath specimen identifier number	Unique identification number given to the neuropathology specimen	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08149	C08149	Diagnosis final clinical death type	Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08151	C08151	Diagnosis final clinical death date	Date of participant's/subject's final clinical diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08152	C08152	Brain tissue frozen indicator	Indicator of whether banked frozen brain tissue is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08153	C08153	Brain tissue formalin-fixed indicator	Indicator of whether formalin-fixed brain tissue is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08154	C08154	Brain tissue paraffin-embedded indicator	Indicator of whether paraffin-embedded blocks of brain tissue are accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08155	C08155	CSF postmortem indicator	Indicator of whether banked postmortem cerebrospinal fluid (CSF) is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08156	C08156	Specimen other postmortem indicator	Indicator whether other banked postmortem specimens (e.g., blood, spinal cord, nerve, muscle) exist	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08157	C08157	Photograph macroscopic indicator	Indicator of whether macroscopic photographs were taken	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08158	C08158	Brain weight measurement	Weight of the participant's/subject's brain in grams	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08160	C08160	Brain tissue weigh type	Type of brain tissue weighed	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08162	C08162	National Institute on Aging (NIA) or Reagan Institute neuropathological criteria scale	National Institute on Aging (NIA)/Reagan Institute neuropathological criteria used to determine the likelihood of dementia being due to Alzheimer's disease.	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08163	C08163	CERAD neuropathological criteria scale	CERAD neuropathological criteria used to determine the probability of the participant/subject having Alzheimer's disease	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08166	C08166	Brain atrophy Braak and Braak neurofibrillary stage	Stages I and II correspond to NFT limited to the transentorhinal/entorhinal region; Stages III and IV to limbic stages; and Stages V and VI to neocortical stages. Stage VI implies involvement of primary cortices	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C08167	C08167	Brain abnormality microscopic type	Type of microscopic brain abnormality identified through staining	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 51 - 75 of 409

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.