CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 326 - 350 of 409

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C17764	C17764	Striatum atrophy red nucleus atrophy severity result	Quantitative result of the severity of atrophy located in the red nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17765	C17765	Striatum atrophy hydrocephalus lateral ventricle severity result	Quantitative result of the severity of hydrocephalus located in the lateral ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17766	C17766	Striatum atrophy hydrocephalus third ventricle severity result	Quantitative result of the severity of hydrocephalus located in the third ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C17767	C17767	Striatum atrophy hydrocephalus fourth ventricle severity result	Quantitative result of the severity of hydrocephalus located in the fourth ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F2370-C18027	C18027	Comment text	Provide any additional information that pertains to the question	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1225-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18153	C18153	Data unknown text	The free-text field to Mark an "X" in to record if data are unknown or not available	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18667	C18667	Data source other text	The free-text field related to 'Data source' specifying other text. Source of the data provided on the case report form	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18669	C18669	Diagnosis final clinical death other text	The free-text field related to 'Diagnosis final clinical death type' specifying other text. Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1209-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1236-c18691	C18691	Imaging artifact other text	The free-text field related to 'Imaging artifact type' specifying other text. The artifacts present on the scan	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18700	C18700	Imaging matrix size value other text	The free-text field related to 'Imaging matrix size value', specifying other text. Value representing the imaging matrix size in millimeters	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18717	C18717	Imaging scanner model other text	The free-text field related to 'Imaging scanner model name' specifying other text. Name of model of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C18741	C18741	Other pathology ischemic vascular disease specify text	The free-text field related to 'Other pathology ischemic vascular disease indicator'. Indicator of the presence of another ischemic or vascular disease not specifically mentioned previously	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C18989	C18989	Huntingtons Disease motor symptom first appeared self report other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared self report type' specifying other text. The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C18990	C18990	Huntingtons Disease motor symptom first appeared informant other text	The free-text field related to 'Huntingtons Disease motor symptom first appeared informant type' specifying other text. The type of initial motor symptoms of Huntington disease (HD) described by the informant	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1225-C18991	C18991	Huntingtons Disease developing motor symptom other text	The free-text field related to 'Huntingtons Disease developing motor symptom type' specifying other text. Type(s) of motor symptoms of Huntington disease (HD) which developed over the course of Illness	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C18992	C18992	Macroscopical examination fresh brain other text	The free-text field related to 'Macroscopical examination fresh brain source' specifying other text. The part(s) of the fresh brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18993	C18993	Macroscopical examination fixed brain other text	The free-text field related to 'Macroscopical examination fixed brain source' specifying other text. The part(s) of the fixed brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18994	C18994	Microscopical examination blocks other text	The free-text field related to 'Microscopical examination blocks source' specifying other text. The source of blockage based on microscopical examination of brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 326 - 350 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.