CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 176 - 200 of 409

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Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15111	C15111	Arteriosclerosis severity score	Severity score for arteriosclerosis (small parenchymal arteriolar disease)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14944	C14944	Family history relative age value	Value for participant's/subject's family member's current age	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15071	C15071	Brain atrophy medulla oblongata inferior olivary nucleus indicator	Indicator of neuronal loss of the inferior olivary nucleus in the medulla oblongata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C08233	C08233	Drug or substance first illicit use date and time	Date (and time if applicable and known) the participant/subject first used the category of illegal drugs, prescription or over-the-counter drugs	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C17757	C17757	Striatum atrophy hypothalamus atrophy status	Status of atrophy in the hypothalamus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C17682	C17682	Family history collection source informant specify type	The type of informant the family history data was collected from	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15079	C15079	Brain atrophy cerebellum cortical neuronal loss in bergman gliosis status	Status of cortical neuronal loss in the Bergman gliosis (BG) of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1213-C17688	C17688	Non-prescribed controlled psychoactive drug substance opioid text	The text specifying the drugs within the 'Opioids/Narcotics: heroin, opium, morphine, methadone, codeine, Darvon, Percodan, Oxycontin, Dilaudid, Demerol/meperidine,' category as unprescribed, controlled psychoactive drugs or substances used by the participant/subject	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C17765	C17765	Striatum atrophy hydrocephalus lateral ventricle severity result	Quantitative result of the severity of hydrocephalus located in the lateral ventricle	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08080	C08080	Twin sibling indicator	Indicator of whether the participant/subject has a twin brother or sister	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15087	C15087	Ischemic or hemorrhagic vascular territories name	Name of the vascular territories where ischemic or hemorrhagic changes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14952	C14952	Huntingtons Disease motor symptom first appeared self report type	The type of first motor symptoms described by the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1211-C08088	C08088	Age value unit of measure	Unit of measure used to initially record the age value	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15095	C15095	Hemorrhages single or multiple event category	Category of the hemorrhages	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15055	C15055	Brain atrophy substantia nigra pars reticulata neuronal loss indicator	Indicator of neuronal loss in the pars reticulata of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08111	C08111	Preschool hour per week value	Approximate hours per week the participant/subject attended preschool as a child	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15103	C15103	Amyloid angiopathy indicator	Indicator of presence of cerebral amyloid angiopathy	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1207-C11139	C11139	Country of origin maternal ISO code	The ISO 3166-1 alpha-2 code for the participant's mother's country of origin	Supplemental	Demographics	False	Huntington's Disease	Huntington's Disease
F1237-C15063	C15063	Brain atrophy nucleus coeruleus globosum neuronal tangles status	Status of globosum neuronal tangles (GNT) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F2370-C53897	C53897	Stroop Color and Word Test (SCW) - Word age educate predict score	Score (Age/Edu. Predict) of the word test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1225-C17739	C17739	Informant participant family member relationship text	The free-text field to specify the relationship of the informant to a family member of the participant/subject	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15025	C15025	Brain atrophy striatum cerebellum status	Status of cerebellum atrophy in the striatum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20363	C20363	Pittsburgh Sleep Quality Index (PSQI) - Awaken night early morning past month scale	The scale to which the subject woke up in the middle of the night or early morning during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1237-C08167	C08167	Brain abnormality microscopic type	Type of microscopic brain abnormality identified through staining	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14964	C14964	Sedation used indicator	Indicator of whether the participant was administered any sedation	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease

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The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.