CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 51 - 75 of 409

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1269-C20376	C20376	Pittsburgh Sleep Quality Index (PSQI) - Awaken past month time	The wake up time (recorded as 24-hour clock or military time) for the majority of the mornings in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20377	C20377	Pittsburgh Sleep Quality Index (PSQI) - Past month bed time	The bed time (recorded as 24-hour clock or military time) for the majority of the nights in the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1237-C18669	C18669	Diagnosis final clinical death other text	The free-text field related to 'Diagnosis final clinical death type' specifying other text. Physician's final clinical diagnosis for the participant/subject	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1269-C20353	C20353	Pittsburgh Sleep Quality Index (PSQI) - trouble sleep 30 minutes past month scale	The scale to which the participant had trouble getting to sleep within 30 minutes during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1269-C20361	C20361	Pittsburgh Sleep Quality Index (PSQI) - Partner report long pause breathe past month scale	The scale to which the subject's partner reported long pauses between breaths during sleep the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F2370-C53903	C53903	Stroop Color and Word Test (SCW) - Color T score	Score (T) of the color test, as part of the Stroop Color and Word Test (SCW)	Supplemental	Stroop Test	True	Huntington's Disease	Huntington's Disease
F1269-C20369	C20369	Pittsburgh Sleep Quality Index (PSQI) - Other reason past month scale	The scale to which the subject had trouble sleeping for other reasons during the past month, as part of the Pittsburgh Sleep Quality Index (PSQI)	Supplemental	Pittsburgh Sleep Quality Index (PSQI)	False	Huntington's Disease	Huntington's Disease
F1213-C18670	C18670	Subscribed drug or substance illicitly used category other text	The free-text field related to 'Subscribed drug or substance illicitly used category' specifying other text. Category of illegal drugs, prescription, or over-the-counter drugs the participant/subject used for purposes other than those for which they are meant to be used, or in large amounts	Supplemental	Non-prescribed Drug Use Questionnaire	False	Huntington's Disease	Huntington's Disease
F1209-C18678	C18678	Family history medical condition type other text	The free-text field related to 'Family history medical condition type', specifying other text. Type of medical condition or health related event for which the family history is taken	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1209-C18679	C18679	Family history medical condition relative type other text	The free-text field related to 'Family history medical condition relative type', specifying other text. Relationship of the family member or ancestor with the medical condition or health related event to the participant	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1236-C18708	C18708	Imaging pulse sequence type other text	The free-text field related to 'Imaging pulse sequence type', specifying other text. Type of imaging pulse sequence used	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18716	C18716	Imaging scanner manufacturer name other text	The free-text field related to 'Imaging scanner manufacturer name', specifying other text. Name of manufacturer of imaging scanner	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18700	C18700	Imaging matrix size value other text	The free-text field related to 'Imaging matrix size value', specifying other text. Value representing the imaging matrix size in millimeters	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1236-C18718	C18718	Imaging scanner strength value type other text	The free-text field related to 'Imaging scanner strength value type', specifying other text. Type of value, in Tesla (T), of the scanner's magnetic field strength used for the scan being reported	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15040	C15040	Brain atrophy neuronal loss and fibrillary astrocytosis globus pallidus anatomic site	Anatomic site in the globus pallidus where neuronal loss and/or fibrillary astrocytosis is/are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14960	C14960	Diagnosis based abnormality type	What kind of abnormalities was the diagnosis based on?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C14972	C14972	Macroscopical examination fixed brain source	The part(s) of the fixed brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15048	C15048	Brain atrophy subthalamic nucleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17740	C17740	Chorea anatomic site physician developing type	Anatomic site of the participant's/subject's body affected by chorea as noted by a physician as a developing issues from disease	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1278-C14709	C14709	Godin Leisure-Time Exercise Questionnaire - moderate exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing moderate exercise (e.g., fast walking, baseball, tennis, easy bicycling, volleyball, badminton, easy swimming, alpine skiing, popular and folk dancing)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14980	C14980	Brain atrophy coronal sections cerebral white matter severity result	Quantitative result of the severity of cerebral white matter atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14965	C14965	Imaging artifacts indicator	Indicator of any obvious artifacts in the image	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1225-C19060	C19060	Physician specialty other text	The free-text field related to 'Physician specialty type' specifying other text. The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1807-C00322	C00322	Medical history condition text	Verbatim text for the medical condition/disease reported by the participant/subject or documented in the medical record as part of medical history	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C14988	C14988	Brain atrophy striatum putamen severity result	Quantitative result of the severity of atrophy located in the putamen	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 51 - 75 of 409

« first
‹ previous
1
2
3
4
5
6
7
8
9
…
next ›
last »

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.