CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 326 - 350 of 409

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The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C04802	C04802	Death date and time	Date (and time, if known) of participant's/subject's death	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15093	C15093	Lacunes singe or multiple vascular territories name	Name of the vascular territories where lacunes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15053	C15053	Brain atrophy substantia nigra pars compacta neuronal loss indicator	Indicator of neuronal loss in the pars compacta of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15101	C15101	Atherosclerotic vascular pathology indicator	Indicator of atherosclerotic, either non-stenotic or stenotic vascular changes (of the circle of Willis)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15061	C15061	Brain atrophy nucleus coeruleus Lewy body containing neurons Lewy neurites status	Status of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17733	C17733	Person completing form name	Name of person completing the form	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15109	C15109	Abnormality no diagnosis type	The diagnosis if there is no abnormality recognized	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15069	C15069	Brain atrophy medulla oblongata dorsal nucleus vagus reticular formation status	Status of dorsal nucleus of vagus reticular formation: Lewy body containing neurons (LBCN) and Lewy neurites (LN) in the medulla oblongata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C17742	C17742	Physician specialty type	The specialty of the physician who made the diagnosis	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08175	C08175	Cortical microinfarct indicator	Indicator of the presence of one or more infarcts that are detected microscopically (including "granular atrophy") and may not be grossly visible, or may appear to the naked eye as cortical granularity	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1207-C00035	C00035	Gender type	Self-reported gender of the participant/subject	Core	Demographics	False	Huntington's Disease	Huntington's Disease
F3107-C14695	C14695	Berg Balance Scale (BBS) - unsupport sit scale	The scale for assessment of sitting with back unsupported but feet supported on floor or on a stool based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1237-C15039	C15039	Brain atrophy fibrillary astrocytosis nucleus accumbens severity result	Quantitative result of the severity of firbrillary astrocytosis in the nucleus accumbens	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08097	C08097	Influenza vaccine first receive age value	Age participant/subject received his/her first influenza vaccination	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1237-C14971	C14971	Macroscopical examination fresh brain source	The part(s) of the fresh brain used for macroscopical examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F3107-C14703	C14703	Berg Balance Scale (BBS) - turn around scale	The scale for assessment of turning 360 degrees based on the Berg Balance Scale (or BBS), a clinical test of a person's static and dynamic balance abilities	Supplemental-Highly Recommended	Berg Balance Scale (BBS)	False	Huntington's Disease	Huntington's Disease
F1237-C15047	C15047	Brain atrophy subthalamic nucleus neuronal loss indicator	Indicator of neuronal loss in the subthalamic nucleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1212-C08117	C08117	Meningitis or encephalitis episode hospitalization indicator	Indicator of whether the participant/subject was hospitalized for the meningitis or encephalitis episode	Supplemental	Infection History	False	Huntington's Disease	Huntington's Disease
F1278-C14708	C14708	Godin Leisure-Time Exercise Questionnaire - strenuous exercise per week frequency	Numeric value counting the average number of times per week that a participant/subject reports doing strenuous exercise (e.g., running, jogging, hockey, football, soccer, squash, basketball, cross country skiing, judo, roller skating, vigorous swimming, vigorous long distance bicycling)	Supplemental	Godin Leisure-Time Exercise Questionnaire	False	Huntington's Disease	Huntington's Disease
F1237-C14979	C14979	Brain atrophy coronal sections cerebral white matter status	Status of cerebral white matter atrophy of the coronal section upon gross examination	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14948	C14948	Family history relative type no biological sample in repository count	The number of family members that do not have samples in a repository	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1807-C00313	C00313	Medical history condition SNOMED CT code	Systematized Nomenclature Of Medicine Clinical Terms (SNOMED CT) code for medical condition/disease reported by the participant/subject	Core	General Core	False	Huntington's Disease	Huntington's Disease
F1237-C14987	C14987	Brain atrophy striatum body of caudate nucleus (CN) severity result	Quantitative result of the severity of atrophy located in the body of the caudate nucleus (CN) (at the coronal section passing through the lateral geniculate body).	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1211-C08076	C08076	Breastfed indicator	Indicator of whether the participant/subject was breastfed by his/her mother	Supplemental	History of Early Exposure to Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C08153	C08153	Brain tissue formalin-fixed indicator	Indicator of whether formalin-fixed brain tissue is accessible	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 326 - 350 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.