CDE Catalog | NINDS Common Data Elements

***Please contact the NINDS CDE Team (NINDSCDE@emmes.com) if you encounter any search difficulties.***

The CDE Catalog is a directory of the available NINDS CDEs. Users can search the Catalog to isolate a subset of the CDEs (e.g., all stroke-specific CDEs, etc.), and to view and download details about the CDEs.

Select any filter below to search the CDE Catalog.

For best results, clear form between searches. In addition, when specifying NeuroRehab, Sport-Related Concussion (SRC) or Traumatic Brain Injury (TBI) as the Disease, please select a Subdisease as well.

NeuroRehab Comprehensive includes all NeuroRehab CDE recommendations. NeuroRehab General includes all NeuroRehab CDE recommendations that are not disease specific. All other NeuroRehab Subdiseases include recommendations specific to existing NINDS CDE project disorders.

Choose your Time Frame for your SRC study (Acute (time of injury until 72 hours), Subacute (after 72 hours to 3 months), and Persistent/Chronic (3 months and greater post-concussion) or Comprehensive if your study falls across the study time frames.

Choose your type of TBI study (Acute Hospitalized, Concussion/Mild TBI, Moderate/Severe TBI: Rehabilitation, or Epidemiology) or Comprehensive if your study falls outside of the study types or incorporates aspects of more than one type of study.

Search Form

CRF Name

Displaying 301 - 325 of 409

Operations

Selected 25 rows in this page.

The search results below can be downloaded by clicking the checkboxes on the far left side of the table. Select the header checkbox to select all CDEs listed on the first page. Then choose CDE Detailed Report from the Choose an operation dropdown menu.
Select all	CDE ID	CDE Name	Definition	Classification	CRF Name	Copyrighted or trademarked	Disease Name	Subdisease Name
F1237-C15092	C15092	Lacunes single or multiple event category	Category of the lacunes	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15052	C15052	Brain atrophy cerebral white matter myelin loss severity result	Quantitative result of the cerebral white matter myelin loss	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15100	C15100	Cortical laminar necrosis single or multiple text	The text description of the cortical laminar necrosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15060	C15060	Brain atrophy nucleus coeruleus neuronal loss severity result	Quantitative result of the severity of neuronal loss in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1225-C14960	C14960	Diagnosis based abnormality type	What kind of abnormalities was the diagnosis based on?	Supplemental	Medical History of Huntington's Disease	False	Huntington's Disease	Huntington's Disease
F1237-C15108	C15108	Diagnoses final clinicopathological severity scale	Scale of the severity or intensity of the diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15068	C15068	Brain atrophy pontine nuclei globosum neuronal tangles (GNT) severity result	Quantitative result of the severity of globosum neuronal tangles in the pontine nuclei	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1236-C14965	C14965	Imaging artifacts indicator	Indicator of any obvious artifacts in the image	Supplemental	Magnetic Resonance (MR) Localization Imaging	False	Huntington's Disease	Huntington's Disease
F1237-C15076	C15076	Brain atrophy cerebellum cortical neuronal loss in receptive layer severity result	Quantitative result of the severity of cortical neuronal loss in the receptive layer of the cerebellum	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15084	C15084	Brain atrophy Braak and Braak neurofibrillary stage indicator	Indicator of whether neuronal tangles are present	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14986	C14986	Brain atrophy striatum head of caudate nucleus severity result	Quantitative result of the severity of atrophy located in the head of the caudate nucleus (CN) (at the level where the anterior limb of the internal capsule [ALIC] joins with the basal white matter).	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C18997	C18997	Clinicopathology diagnosis final other text	the free-text related to 'Clinicopathology diagnosis final type' specifying other text. The participant/subject's final clinicopathological diagnosis	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15022	C15022	Brain atrophy nucleus coeruleus appearance grade	Grade of pigmentation of the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15030	C15030	Brain atrophy cortical neuronal nuclear inclusions severity result	Quantitative result of the severity of cortical neuronal nuclear inclusions	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1209-C14946	C14946	Family history medical condition relative count	Number of family members with medical condition	Supplemental	Family History	False	Huntington's Disease	Huntington's Disease
F1237-C15038	C15038	Brain atrophy neuronal loss nucleus accumbens severity result	Quantitative result of the severity of neuronal loss in the nucleus accumbens	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14970	C14970	Brain harvesting date and time	Date and time, if known the brain was harvested	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15046	C15046	Brain atrophy thalamus neuronal loss nuclei severity result	Quantitative result of the severity of neuronal loss in thalamic nuclei	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C14978	C14978	Brain atrophy coronal sections cerebral cortex severity result	Quantitative result of the severity of cerebral cortex atrophy in the coronal sections of the brain	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15093	C15093	Lacunes singe or multiple vascular territories name	Name of the vascular territories where lacunes occur	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15053	C15053	Brain atrophy substantia nigra pars compacta neuronal loss indicator	Indicator of neuronal loss in the pars compacta of the substantia nigra	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15101	C15101	Atherosclerotic vascular pathology indicator	Indicator of atherosclerotic, either non-stenotic or stenotic vascular changes (of the circle of Willis)	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15061	C15061	Brain atrophy nucleus coeruleus Lewy body containing neurons Lewy neurites status	Status of lewy-body containing neurons (LBCN) and lewy neurites (LN) in the nucleus coeruleus	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15109	C15109	Abnormality no diagnosis type	The diagnosis if there is no abnormality recognized	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease
F1237-C15069	C15069	Brain atrophy medulla oblongata dorsal nucleus vagus reticular formation status	Status of dorsal nucleus of vagus reticular formation: Lewy body containing neurons (LBCN) and Lewy neurites (LN) in the medulla oblongata	Supplemental	Neuropathology Data Form	False	Huntington's Disease	Huntington's Disease

Displaying 301 - 325 of 409

The NINDS CDE Team does not post proprietary instruments/scales recommended by the CDE Working Groups on this website. This includes, but is not limited to, copyrighted or trademarked instruments/scales. Information about recommended instruments can be found in the Notice of Copyright (NOC) documents under ‘CRF Module/Guideline’ on each disorder’s data standards page. For any questions regarding these instruments/scales please contact the corresponding owner/author. The NINDS CDE Team is not responsible for the availability or content of these external sites, nor does the NINDS CDE Team endorse, warrant or guarantee the products, services or information described or offered at these other internet sites.